Secure-IBD Covid-19 data base

[Lady Organic]

Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE-IBD) is an international, pediatric and adult database to monitor and report on outcomes of COVID-19 occurring in IBD patients.

What is the purpose of this registry?
The goals of the registry is to rapidly define the impact of COVID-19 on patients with IBD and how factors such as age, comorbidities, and IBD treatments impact COVID outcomes.

https://covidibd.org/
There is also a covid-risk calculator for IBD patients:
https://covidibd.org/covid-19-risk-calculator/
I just attended a webinar at Crohn's and colitis Canada. GI doc J-F Colombel was one of the presentators who also participates in the Secure-IBD.
So far overall, good news for us. We are not more at risk to get covid as it was once first thought.
Systemic corticoids such as prednisone are to be used cautiously during the pandemic. So far, its the only medication that appears to be a risk factor for worse outcome of Covid-19, especially in high dosage (above 20mg/day). So for those on pred, be extra-cautious while you are still on.

If you get Covid, you can tell your doc to report (its anonymous) your case in the SECURE-IBD for a better comprehension of covid and IBD.

 

[jjb721]

Has anyone that has Crohns disease and currently take the Stelara injuection had the Covid19 vaccine?

 

[Scipio]

Has anyone that has Crohns disease and currently take the Stelara injuection had the Covid19 vaccine?

Yes, I am on Stelara and I had the first COVID-19 vaccine injection (Moderna) four days ago. So far no ill effects other than some mild arm soreness the next day. I'm scheduled to get the second injection in February.

 

[CatLover63]

Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE-IBD) is an international, pediatric and adult database to monitor and report on outcomes of COVID-19 occurring in IBD patients.

What is the purpose of this registry?
The goals of the registry is to rapidly define the impact of COVID-19 on patients with IBD and how factors such as age, comorbidities, and IBD treatments impact COVID outcomes.

https://covidibd.org/
There is also a covid-risk calculator for IBD patients:
https://covidibd.org/covid-19-risk-calculator/
I just attended a webinar at Crohn's and colitis Canada. GI doc J-F Colombel was one of the presentators who also participates in the Secure-IBD.
So far overall, good news for us. We are not more at risk to get covid as it was once first thought.
Systemic corticoids such as prednisone are to be used cautiously during the pandemic. So far, its the only medication that appears to be a risk factor for worse outcome of Covid-19, especially in high dosage (above 20mg/day). So for those on pred, be extra-cautious while you are still on.

If you get Covid, you can tell your doc to report (its anonymous) your case in the SECURE-IBD for a better comprehension of covid and IBD.

Hello, it's cold, frosty and I'm stuck indoors due to a third lockdown in the UK as Covid infections and deaths are still high. My risk factor is not bowel related but lung related. The virus attacks the lungs and destroys them in the worst cases and asthmatic and people with chronic lung disease are very vulnerable. Stopping smoking is recommended as well as taking moderate regular exercise, losing weight and taking daily vitamins, especially D and C. Doctors shouldn't frighten people with IBD on meds into believing they might have a worst outcome than non IBD patients. Encouraging people to get vaccinated, socially distance and wash their hands is more important.