Seeking hope..

[FDK80]

Hi there,

My name is Fahad, male,31, from kuwait. I found this forum by luck after i was searching for some information regarding my Disease (crohn's disease).

Allow me to share my story with you,
first in 1997 I have had my first surgey after doctors diagnosing Piles, but it did not stop after, infact it kept coming and coming so in 3 years I had to undergo about 4 surgeries in the same area for several reasons ( Piles, Abscess, Fistulae and Anal Fissure), but no disease has been conformid yet.

After 2 peaceful years, in 2002 one day I was in my appartment feeling nothing but good, all of a suddent i had this horrible pain, coundn't resist it then I went down lying of the floor and start yelling, lucky me a friend came visiting and so my condition, he took me to the hospital where I had an immediate surgery and to cut half of the Colon and remove it.


Now after almost 9 years, im under those numerous medications, some of them just for Crohn's disease, other for relevant diseases.

Life now seems much difficult , yet I have to adapt, I can't eat anything, it feels better when i only drink hot water or cup of green team instead.

It's embarrassing especially when I lose control of gases or diarrhea.

Lately, I have been suffering for Joints pain ( nigative results so far nigative for Rheumatusm), also i have severe eye dryness.

Frankly speeking, I feel this is just too much for my carry on, my social behaviors getting bad. I bacame more of lonesome guy, i don't like to be far away from home.


I know im in the right place to share this, as I hope i will get your opinions and thoughts.


Thanks..

 

[rygon]

welcome to the forum. Bad that it took so long for you to be diagnosed. Yeh its pretty hard to adapt. I find green tea and also peppermint tea to be good for the stomach (no caffine) and plenty of water.

Hope you find this place of some help. the food section is pretty good if you are finding it hard to eat (each person is different to what they can and cant eat unfortunately but it may give you some good ideas)

 

[FDK80]

welcome to the forum. Bad that it took so long for you to be diagnosed. Yeh its pretty hard to adapt. I find green tea and also peppermint tea to be good for the stomach (no caffine) and plenty of water.

Hope you find this place of some help. the food section is pretty good if you are finding it hard to eat (each person is different to what they can and cant eat unfortunately but it may give you some good ideas)

Thanks dude, I really think this forum could be very beneficial for me. I already found some good infromation available.

 

[MADiMarc]

Hi! You have been through a lot with this dreaded illness. I cannot add much to what has already been said, just wanted to welcome you to the forum.
Michele

 

[ameslouise]

Hi FDK and welcome!

You will find lots of info, support and advice here! Sorry you are feeling poor right now. What meds are you on currently? what have you been on in the past?

Many of us find it hard to have a social life when this disease is so unpredictable. But there is a lot you can do from home to keep your mind occupied.

Are you working now?

Hang in there! We're all here for you and know exactly what you are going thru!

- Amy

 

[Jennjenn]

Hi welcome

I know many here can relate to the impact that it has on one's life and the difficulty to adapt to the life of crohns. You have come to the right place for support and information from friendly and knowledgeable people that are on this forum!

 

[e13 boy]

Hi there,

My name is Fahad, male,31, from kuwait. I found this forum by luck after i was searching for some information regarding my Disease (crohn's disease).

Allow me to share my story with you,
first in 1997 I have had my first surgey after doctors diagnosing Piles, but it did not stop after, infact it kept coming and coming so in 3 years I had to undergo about 4 surgeries in the same area for several reasons ( Piles, Abscess, Fistulae and Anal Fissure), but no disease has been conformid yet.

After 2 peaceful years, in 2002 one day I was in my appartment feeling nothing but good, all of a suddent i had this horrible pain, coundn't resist it then I went down lying of the floor and start yelling, lucky me a friend came visiting and so my condition, he took me to the hospital where I had an immediate surgery and to cut half of the Colon and remove it.




Thanks..

Hi,

Some of your history sounds similar to mine.
5 anal abcecess,2 fistulas (7 seperate op's to cut them out) but i was never given any reason why i kept getting these problems.
8 years later,one week following being told i had crohn's,i underwent right side hemi colectomy.
All the drugs i was given failed to control the CD,so 10 years on i had another resection.

Thankfully now i am in complete remission after i looked for 'alternative' help.

Best Wishes

 

[AndiGirl]

Welcome to the forum! We hope that you join us in participating. There are so many terrific and supportive people here. You're sure to make some new friends who can also share your pain.

 

[FDK80]

Hi! You have been through a lot with this dreaded illness. I cannot add much to what has already been said, just wanted to welcome you to the forum.
Michele

Thanks a lot :thumleft:

 

[FDK80]

Hi FDK and welcome!

You will find lots of info, support and advice here! Sorry you are feeling poor right now. What meds are you on currently? what have you been on in the past?

Many of us find it hard to have a social life when this disease is so unpredictable. But there is a lot you can do from home to keep your mind occupied.

Are you working now?

Hang in there! We're all here for you and know exactly what you are going thru!

- Amy

Hi Amy.

My Meds are: Asacol - Risek - imodium plus other pain killers for different complications caused by crohn's.

I really feel im in the right place, there are a lot of info here, i feel like i belong here with you and i hope we will all help each other through.

Thanks god my work in-office and i don't have to go here and there, this makes it easier for me, but my boss is Rude and Arrogant ! I allready have explained everything to him, crohn's and its complications, but he doesn't want to help and he takes it hard on me when i (sometimes) show up late at work.


Thanks, I appreciate your kindness.

 

[FDK80]

Hi welcome

I know many here can relate to the impact that it has on one's life and the difficulty to adapt to the life of crohns. You have come to the right place for support and information from friendly and knowledgeable people that are on this forum!

Hi Jennjen, to be honest some times i just like to stay at home rest watch tv instead of going out because i really like to be near to my medications and bathroom. But when the disease becomes stable i go out like crazy to make it up for my family and my self.

Thanks

 

[FDK80]

Hi,

Some of your history sounds similar to mine.
5 anal abcecess,2 fistulas (7 seperate op's to cut them out) but i was never given any reason why i kept getting these problems.
8 years later,one week following being told i had crohn's,i underwent right side hemi colectomy.
All the drugs i was given failed to control the CD,so 10 years on i had another resection.

Thankfully now i am in complete remission after i looked for 'alternative' help.

Best Wishes

Sorry to hear that you have been a lot, i hope your feeling much better now.

Please i would like to know more about the "alternative help" you found.

Thanks a lot.

 

[FDK80]

Welcome to the forum! We hope that you join us in participating. There are so many terrific and supportive people here. You're sure to make some new friends who can also share your pain.

AnidGirl, I'm really glad i found this forum.

It does feel good to find a place where I can express my self freely and everybody seems to understand what am talking about.

 

[Astra]

Hi Fahad
and welcome

So glad you found us, lots of friends here for you!
lotsa luv
Joan xxx

 

[e13 boy]

Sorry to hear that you have been a lot, i hope your feeling much better now.

Please i would like to know more about the "alternative help" you found.

Thanks a lot.

Hi FDK80

Re 'alternative help' ~ my full story of 21 years of CD to finding complete remission is on my websitehttp://www.livingwithcrohns.org.uk
Also please click on my username on here to read any of my posts.
If you have any questions please feel free to PM me or send me an e mail via my website.

Best Wishes

 

[FDK80]

Hi Fahad
and welcome

So glad you found us, lots of friends here for you!
lotsa luv
Joan xxx

Hi Astra,

Thanks for your lovely words you're amaizing..

 

[FDK80]

Hi FDK80

Re 'alternative help' ~ my full story of 21 years of CD to finding complete remission is on my website
Also please click on my username on here to read any of my posts.
If you have any questions please feel free to PM me or send me an e mail via my website.

Best Wishes

e13boy. I will check it out, it seems very useful.

Thanks..

 

[JetWhite]

Welcome Fahad

it sounds like you've had a horrible time of it and I can relate to your feelings of not being far from home.
I am also new to the forum and, like you, am so glad I have joined. Everyone here is warm and understanding and I hadn't realised how valuable that was until I came here

All the best,
Jet

 

[crohnicaly stinky]

Welcome Fahad!

I just wanted to mention that joint pain is a symptom of Crohn's. I get arthritis symptoms that resolve in a few days. Sometimes my shoulder sometimes my knees.

Also, I was seeing an eye doctor and just asked him if Crohn's affects the eyes and surprisingly he said that it does. He told me the eys can become inflamed from crohns and the symptoms are blurry visions\, sensativity to light and soreness. The treatment is steroid drops to reduce the inflamation.

Sorry you're suffering.

 

[FDK80]

Welcome Fahad

it sounds like you've had a horrible time of it and I can relate to your feelings of not being far from home.
I am also new to the forum and, like you, am so glad I have joined. Everyone here is warm and understanding and I hadn't realised how valuable that was until I came here

All the best,
Jet

Hi Jet.

After all we're not so different. we all need to share our experinces with CD so everyone will benefit.

Thanks for your greetings.

 

[FDK80]

Welcome Fahad!

I just wanted to mention that joint pain is a symptom of Crohn's. I get arthritis symptoms that resolve in a few days. Sometimes my shoulder sometimes my knees.

Also, I was seeing an eye doctor and just asked him if Crohn's affects the eyes and surprisingly he said that it does. He told me the eys can become inflamed from crohns and the symptoms are blurry visions\, sensativity to light and soreness. The treatment is steroid drops to reduce the inflamation.

Sorry you're suffering.

Hi there.

looks that both of us are dealing with the same symptoms.

- Last week i saw another Ophthalmologist ( which makes the total of 4 -untill now) he said its related to CD just like the others.
But none of all doctors i've seen really solved the issue effectivly, i've tried so many differ Meds to reduce dryness level and redness sourding the eye, but its all for short time then its all coming back to me!

I think it should be treated internally rather than those eyedrops.

...


-Oh yeah, Regarding joint pain, I did some medical check (blood test) and the result were negative of (Rheumatsim)! and everything seem to be ok on papers !

It's very weired to feel pain without knowing the cause!!!

so, for now i'm taking pain killers on daily bases.

 

[mario]

Hi Fahad
Glad you found the forum. There is so much help here. Sorry to hear about your ignorant boss! I think most of us have had negative experiences like this, as crohn's is so difficult to describe, and so unpredictable. Hope you stay with us because, if nothing else, we DO understand!!

 

[FDK80]

Hi Fahad
Glad you found the forum. There is so much help here. Sorry to hear about your ignorant boss! I think most of us have had negative experiences like this, as crohn's is so difficult to describe, and so unpredictable. Hope you stay with us because, if nothing else, we DO understand!!

Hi Mario,

unfortunately some people don't understand or dont want to, so im just ignoring and i stopped showing medical reports everytime i must do.
i not going to give more explanation anymore becuase it just doesn't feel good.

 

[n8an]

After 2 peaceful years, in 2002 one day I was in my appartment feeling nothing but good, all of a suddent i had this horrible pain, coundn't resist it then I went down lying of the floor and start yelling, lucky me a friend came visiting and so my condition, he took me to the hospital where I had an immediate surgery and to cut half of the Colon and remove it.

That's horrific man, but you've lived through it all. You must be a strong dude. :hang:

As far as social life etc. I find that you have to almost view a longterm illness as beginning a fresh chapter in your life. You may be unable to play sports or socialise as much as you did in the past but you'll appreciate the little things way more. You've experienced so much more darkness than the average person that you now cherish the light. You find out who your friends are quickly too. The others, the ones that never visit you when you're ill... you know the guys I mean... well... F em!!

 

[FDK80]

That's horrific man, but you've lived through it all. You must be a strong dude. :hang:

As far as social life etc. I find that you have to almost view a longterm illness as beginning a fresh chapter in your life. You may be unable to play sports or socialise as much as you did in the past but you'll appreciate the little things way more. You've experienced so much more darkness than the average person that you now cherish the light. You find out who your friends are quickly too. The others, the ones that never visit you when you're ill... you know the guys I mean... well... F em!!

Hi there, thanks for these cheerful words.

I opened a new chapter in life, quit smoking and many other BAD habits. I used to have soo many friends now I barely see any of them. Most of them didn't understand my condition and i not the man i used to be.

Now now any easier but it has improved, i'm a fighter dude

 

[Astra]

Hiya Fahad

Hope you're doing much better
Glad you've put your meds up, and I see you're on Celebrex
Be careful with this med, it's a fab anti inflammatory but a big no no for a Crohnie. All NSAIDS are.
Long term use can cause more intestinal problems. Have a word with your doc.
take care
xxx

 

[FDK80]

Hiya Fahad

Hope you're doing much better
Glad you've put your meds up, and I see you're on Celebrex
Be careful with this med, it's a fab anti inflammatory but a big no no for a Crohnie. All NSAIDS are.
Long term use can cause more intestinal problems. Have a word with your doc.
take care
xxx

Hi Astra,

Thanks for your advice and concern.

Lately I've been suffernig from joints pain and it's so harsh and severe, and I couldn't take anymore so my Doc. prescribes Celebrex to me when needed only, however, i'm trying not to take it but i can't take this pain anymore.

Another Med. prescribed to me is Arcoxia (etoricoxib) it helps to reduce joints pain, but i again it's part of NSAID's group.

All NSAIDs Med. are not suitable for all crohn's patient but in somecases they might do. other wise i have to swich to cartisone doses increase the likelihood of life-threatening side-effects (which i had to take it for short term).

Thanks dear

 

[rygon]

I dont know if it will help at all but theres a factsheet for uk employers about crohns disease (what it is and how to help your employee). May be worth giving your boss this to show him what to expect

http://www.nacc.org.uk/downloads/factsheets/employers.pdf

 

[Astra]

Yeah that's a good un!
I gave it to my employer too when my sickness and absence were questioned.
An interesting bit in it says that long term related conditions must not be counted as sickness with other non related absenses ie a cold
They are to be recorded separately.

 

[FDK80]

Rygon thanks a lot for those doc. I printed those and pass them out to my boss just to clear things out to him, hopefuly he would understands what's writen 1st before he makes and jugdments !