soupdragon69
ele mental leprechaun
- Joined
- Dec 7, 2006
- Messages
- 1,210
I went to see my GP this evening because my blood tests are climbing again liver function wise and the Rheums nurse on the phone has told me to stop my Methotrexate, keep doing blood tests and restart Metho when my levels are below 50 again at 5mg less than I have been taking.
Problem.. this is what happened when I was on Azathioprine and 6MP last year and ended up having to stop them because my liver function deteriorated.
I went to update my GP to keep him in the loop this evening.
He asked me to tell him how I was overall on the pain, gut, joints, muscles, fatigue levels.
He knows I dropped to 5mg last monday on my pred and the plan to stop it monday coming.
His words to me?
" I am not so sure you really should be working right now"
I told him I had done 2 x 4hr shifts and was wiped out after them (Sun and Tues) and actually stood in work yesterday wondering if I could get back to coping with my job again.. but it never dawned on me that I should stop working at all!
I also said there is a certain amount I have to learn to live with. He agreed but said the question was - was I making myself worse by continuing to work?
I said I needed time to work out whether I could return to work i.e. am trying now by doing a phased return and to be honest have never felt so drained in my life on a return to work.
I told him several folk had been at me more than once to apply for Disability Living Allowance (because I have severe crohns and also multiple other health issues impacting on my mobility and quality of life) he said it was a hard bridge to cross for many and knew it would be for me in respect of coming to terms with applying but that it was something I should consider.
He said with the levels of pain and mobility issues I have he really doesnt know how I manage to work and cope.
I saw him at 5pm and its almost 10pm and am still shellshocked by his comments. I guess its because I always think there is someone worse off than me and what do I have to whinge about? I am thankful for what I can do.
Yes I have my down days - but who doesnt?
We have agreed to review things once I have seen gastro and rheums in the coming weeks and go from there.
I know am waffling here but just trying to make some sense of it all...
Problem.. this is what happened when I was on Azathioprine and 6MP last year and ended up having to stop them because my liver function deteriorated.
I went to update my GP to keep him in the loop this evening.
He asked me to tell him how I was overall on the pain, gut, joints, muscles, fatigue levels.
He knows I dropped to 5mg last monday on my pred and the plan to stop it monday coming.
His words to me?
" I am not so sure you really should be working right now"
I told him I had done 2 x 4hr shifts and was wiped out after them (Sun and Tues) and actually stood in work yesterday wondering if I could get back to coping with my job again.. but it never dawned on me that I should stop working at all!
I also said there is a certain amount I have to learn to live with. He agreed but said the question was - was I making myself worse by continuing to work?
I said I needed time to work out whether I could return to work i.e. am trying now by doing a phased return and to be honest have never felt so drained in my life on a return to work.
I told him several folk had been at me more than once to apply for Disability Living Allowance (because I have severe crohns and also multiple other health issues impacting on my mobility and quality of life) he said it was a hard bridge to cross for many and knew it would be for me in respect of coming to terms with applying but that it was something I should consider.
He said with the levels of pain and mobility issues I have he really doesnt know how I manage to work and cope.
I saw him at 5pm and its almost 10pm and am still shellshocked by his comments. I guess its because I always think there is someone worse off than me and what do I have to whinge about? I am thankful for what I can do.
Yes I have my down days - but who doesnt?
We have agreed to review things once I have seen gastro and rheums in the coming weeks and go from there.
I know am waffling here but just trying to make some sense of it all...