Hi everyone,
I'm from Europe/Portugal and I'm new to this forum but I have been diagnosed with Crohn's in 2011.
To quickly sum up my history:
- In 2011, start getting pains in some areas but keep taking medication for gases and similar for 1 or 2 months since it was the doctor's first guess.
- Go to the hospital and I have some fistulas and abscesses which result on me staying in the hospital for 1 month taking some sort of antibiotic infusions and eating limited, for 2 months including the time in the hospital, to specific liquid yogurts that would give me the minimum amount of nutrients.
- After that was put on Imuran and then changed to Azafalk which is what I'm currently doing.
- Up until now only had a fairly small issue. For some reason it seems that when I started cycling on a stationary bike it triggered something on my rectum and I started having trouble passing stool. I got a colonoscopy and that problem went away after some medication.
Thankfully nothing major up until now. But even though I felt perfectly fine, a few months ago my blood tests revealed that my iron levels seemed to have dropped quite a bit which could be a sign of infection so I got a few infusions and a CAT scan which showed some inflammation.
Since my iron levels dropped, my doctor has recommended me to start on the remicade treatment.
Which was a surprise since I feel completely fine and have been that way for the last few years but I understand that it might be a prevention to start instead of waiting for my levels to drop.
Finally the point of this thread:
I will be moving to Japan in January 2020 for a year or more which makes me really worried since from what he told me and what I've read it's not something I can stop for a while and go back to it.
So if I wanted to start here and continue in Japan I would have to make sure I could get those infusions in a 8 week period or less when I arrive in Japan.
My concern is that not only it's a new country where I can't speak the language but also how much time would it take for me to be able to get those infusions there.
From my point of view I have these options:
- Start the treatment and continue the treatment there. (Might be really complicated because of the timing for the infusions)
- Deny treatment and when I'm stable in Japan start looking for a place to start the treatment and to be followed.
- Start treatment and come back to my country for the infusion if I can't get it there in time ( This one is troublesome mostly money wise).
I'm more inclined to the second option since I feel perfectly fine and I would keep taking my medication as usual until I could start treatment there.
Please give me your opinion
I'm from Europe/Portugal and I'm new to this forum but I have been diagnosed with Crohn's in 2011.
To quickly sum up my history:
- In 2011, start getting pains in some areas but keep taking medication for gases and similar for 1 or 2 months since it was the doctor's first guess.
- Go to the hospital and I have some fistulas and abscesses which result on me staying in the hospital for 1 month taking some sort of antibiotic infusions and eating limited, for 2 months including the time in the hospital, to specific liquid yogurts that would give me the minimum amount of nutrients.
- After that was put on Imuran and then changed to Azafalk which is what I'm currently doing.
- Up until now only had a fairly small issue. For some reason it seems that when I started cycling on a stationary bike it triggered something on my rectum and I started having trouble passing stool. I got a colonoscopy and that problem went away after some medication.
Thankfully nothing major up until now. But even though I felt perfectly fine, a few months ago my blood tests revealed that my iron levels seemed to have dropped quite a bit which could be a sign of infection so I got a few infusions and a CAT scan which showed some inflammation.
Since my iron levels dropped, my doctor has recommended me to start on the remicade treatment.
Which was a surprise since I feel completely fine and have been that way for the last few years but I understand that it might be a prevention to start instead of waiting for my levels to drop.
Finally the point of this thread:
I will be moving to Japan in January 2020 for a year or more which makes me really worried since from what he told me and what I've read it's not something I can stop for a while and go back to it.
So if I wanted to start here and continue in Japan I would have to make sure I could get those infusions in a 8 week period or less when I arrive in Japan.
My concern is that not only it's a new country where I can't speak the language but also how much time would it take for me to be able to get those infusions there.
From my point of view I have these options:
- Start the treatment and continue the treatment there. (Might be really complicated because of the timing for the infusions)
- Deny treatment and when I'm stable in Japan start looking for a place to start the treatment and to be followed.
- Start treatment and come back to my country for the infusion if I can't get it there in time ( This one is troublesome mostly money wise).
I'm more inclined to the second option since I feel perfectly fine and I would keep taking my medication as usual until I could start treatment there.
Please give me your opinion