Since i started humira

[tishbite]

since i started humira

all my stomach related symptoms have been far more mild and manageable which is a godsend. my only complaint is that since started my joint pain in my hands/wrists and feet have been much worst and much more noticeable. i'm still taking my dilaudid which is helping the stomach pain dissapear completely at time but as fr my horrid joint pain, it remains un fazed by pain meds. I know my doctor is gonna just tell me to wait it out for now. but my hands throb sometimes and it can be kind of unbearable. i'm sitting here worrying it is drug induced lupus. I have never had joint pain this bad.

 

[Gue33]

Hi tishbite,
You are not alone when it comes to joint pain. Have a read on this thread.
"Joint pain, what will make it stop?" There is good discussion on joint pain and other pain and how to try and manage it.

 

[tishbite]

Thank-you

 

[beth]

Back in July you said you were on Remicade and methotrexate, why did you swap to Humira? did it just 'stop working' or did you get reactions to it, and have they tested you for any lupus antibodies?

As for the joint pains, have you tried hot or cold packs, for a very long shot try an antihistamine (Benedryl as good as any) - I get odd itchiness/ache/throb in my hands still from an interaction between drugs I took a month ago, an occasional antihistamine has helped it to fade into the background for a while.

 

[Awbrey]

I am on Humaria and I also get horrible leg cramps almost like growing pains at night if you figure it out let me know.

 

[crohnicaly stinky]

I used to get terrible cramps in my calf muscles. So bad I could barely stretch in the morning. This was before Humira and now I'm not having them. I attribute my daily vitamins to getting over it, but its just a hunch that the cramps were nutrition related.

 

[tishbite]

I stopped Remicade because it stopped working unfortunately. Humira seems to be helping in the sense that i am able to stuff my face (keep on some weight) without puking. I just don't understand why my joint pain is getting so bad. I'm getting some blood drawn tomorrow morning so we'll see what that says. My GI is making me stop taking methotrexate for a couple weeks to see if that makes any difference. I have problems with pains in my legs as well ( more like a restless aching feeling where i feel like i need to stretch them like taffy). Praying it has nothing to do with lupus. I have been doubling my multi vitamin a day and have been getting mass amounts of protein which i thought would help with my legs/joints but it's not

 

[beth]

Cramps in the legs suggests electrolyte imbalance, everything else being equal. I'm assuming you are balancing the methotrexate with some folic acid (5mg) a few days later? And drinking a sensible amount of water. Not sure about doubling the vit's

Anyway, sounds like the doc is doing the right things with further tests.