Sooo annoyed with myself knew it was too good to be true!

Crohn's Disease Forum

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Aug 11, 2011
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I have been really good this year apart from a few nights stay in hospital In February my symptoms have drastically changed and I was always back to normal, I even managed to go on holiday last month and not take any loperamide and only had one real major omg I need to find a toilet moment and things have been going really well for the first time in since being diagnosed 5 years ago.

But for the last 3 weeks my stomach has been in utter agony and I've been feeling so sick. My bowels are going about once a day but I am doubled over in agony every time I need to open my bowels. I had my infliximab infusion last Thursday was hoping it would start to kick in, I saw my specialist the week before that but it's gotten worse. I don't want to burden them as I can't take anything for the pain and their isn't much they can do just wondering about going to my doctor and maybe getting a laxative in case I'm backed up and that's what's causing the pain as my bowels aren't opening as frequently.

It's just typical I have been good for the best part of the year then bam Xmas is coming and as normal I'm getting ill, I just really don't want a full on flare, I'm trying not to let it get to me but I'm so drained with it all I don't have much energy to fight it.

Sorry guys major rant and just wanted somewhere I could vent where others would understand xx
 
Sorry to hear you feel a flare up coming. Is there anything that could prevent you from having a full flare up? It's hard, but even on anti-tnf you can have flare ups occasionally. Did you talk with your gastroenterologist or nurse about an early course of steroids? Maybe it's better to take additional medication now than waiting until it's fully present. I would recommend to talk to your consultant team and see what they would advise in your situation. Best of luck it calms down soon.
 
I would still call your GI
Since what you might consider insignificant they might not
Your GI is best to handle your ibd
 
Your not bothering them, its their job to help you.
Call and get it taken care of, the sooner the better.

Hope you feel better soon.


lauren
 
Thanks for all the support guys, I'm actually feeling a lot better today I haven't had any major pain and my bowels have gone in the opposite direction and I've had a good clear out if you know what I mean. I m wondering if my symptoms were exasperated as my bowels weren't opening as frequently. I'm going to call tomorrow and get some advice.
 

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