Specialist Appointment Earlier Today

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Apr 5, 2015
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So as the title says I had my specialist appointment today since I was diagnosed 8 weeks ago...

It wasn't as positive as I expected as I have found out that the Prednisolone course hasn't worked and I am now to be move onto Azathioprine as soon as my doctor receives his letter and we can set up my weekly blood tests...

I hate blood tests...

Has anyone else had this? I was hoping it was going to be a positive result but feel it is actually a very negative ending with things not going as me or the specialist was hoping... bloody disease...

:frown: :confused2:
 
I was on 40mg of prednisolone for 2 weeks then was to reduce by 5mg a week. When I was down to 10mg before I got an infection and they started me back on 40mg as well as azathioprine. I've been having weekly blood tests too and have had no problems so far.
 
Thank you for the info guys :)

I think I am just feeling a little down that the steroids have not done much and I was hoping they would of had a better effect but I suppose now I can hopefully get better and into remission!! I think the fear that nothing is going to help and the thought of surgery scares me a little
 
It is quite a shock when you're first diagnosed and takes a bit to get used to with all the changes. But, it'll get easier once you get the hang of it. That's what we're here for, especially while you're learning and we'll still be here along the way afterwards. Just let us know.
 
Thank you, I will do

I think it's more just the upset that I was hoping the prednisolone was working and that would be it and it's ended up not working so I will have to go through more and I hate blood tests with a passion haha
 
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