Stopping Remicade and Using stuff that didn't work at first

[Ih8crohns]

Has anyone successfully been on remicade for years then weened off of it and started medicine (pentasa) or others that originally didn't work before the remicade but worked after the remicade put you into remission and stopped remicade and stayed in remission with the other medicine?

 

[moogie]

All the stories I've heard about people stopping the medication like remicade were horror stories. This plague needs attention and until they find a real cure, I do not think changing medicine to something that never worked before to be a good idea.

But hey that's only my 2 coppers worth

 

[crazycanuck]

Not so sure about the going back to meds that previously didn't work but a guy I was getting my infusion beside the other day was in the process of weaning off the Remicade and he said he hadn't had issues. As long as your doing so with the guidence of a DR. I'd think you'll be okay.

Is Remicade just not working for you anymore? Why stopping?

 

[Ih8crohns]

Its working but I don't want to get Lymphoma from it.

 

[crazycanuck]

Understandable. Just need to ask though do you know what the potential risk increases by?

I believe you go from 1 in 10 000 chance as a normal healthy person to 4 in 10 000.

Edit: Here's an article on it.

http://www.medscape.com/viewarticle/491337

My numbers were off by basically with Crohn's disease on Remicade you have a .12/100 chance or a 0.12% chance of getting lymphoma.

For me and the quality of life it gave me back it's totally worth it. I understand though that everybody has their own priorities and its a very personal decision.

 

[Ih8crohns]

Understandable. Just need to ask though do you know what the potential risk increases by?

I believe you go from 1 in 10 000 chance as a normal healthy person to 4 in 10 000.

Edit: Here's an article on it.

http://www.medscape.com/viewarticle/491337

My numbers were off by basically with Crohn's disease on Remicade you have a .12/100 chance or a 0.12% chance of getting lymphoma.

For me and the quality of life it gave me back it's totally worth it. I understand though that everybody has their own priorities and its a very personal decision.

That link requires a log in. Can you post another way to get to that article.

 

[Ih8crohns]

Bump

 

[2thFairy]

If Remicade is working for you, you should stick with it. If you have a major flare down the road, you may not be able to restart Remicade if you need it due to major adverse reactions because your body might fight the drug rather than accept it as it is now.