Hi its 2 years since my op and i still feel like iv been mutilated for no reason the crohn's still active i am bleeding in pain fed up with abscess and i am so tired i cant stand the sight of my body and feel let down when i had surgery my Dr said he would make me feel like a new woman:ylol: Yet i am unable to go out because the stoma leeks and i hate having to change my bed two or three times a night the only thing that works for me is prednisolone 50mg or more and i feel wonderful but as soon as i have ween down it all flairs up now i take 10 mg because of side effects i have had loads of drugs nothing has worked so now have to try modulen ibd before my next op they took 80%of my large bowel but now they want to take 60cm more and stitch up my bottom anyone have better solution
Storma in a teacup
- Thread starter nannie
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Help Support Crohn's Disease Forum:
Terriernut
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Nannie, I'm sorry to hear you are having such a horrible time! Have you visited our subforum: http://www.crohnsforum.com/forumdisplay.php?f=46
You DONT have to live with leaks! You dont have to be afraid to go out! Whatever the issue is we can certainly try to help.
You DONT have to live with leaks! You dont have to be afraid to go out! Whatever the issue is we can certainly try to help.
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Hi Nannie
Welcome! I'm so sorry you're having such troubles with your bag and your health.
Have you got an ET nurse that you work with? What products are you using as appliance?
As Misty says, we'll all be happy to chime in with our thoughts and experience, and hopefully, something will work for you!
Warm regards,
Kismet
Welcome! I'm so sorry you're having such troubles with your bag and your health.
Have you got an ET nurse that you work with? What products are you using as appliance?
As Misty says, we'll all be happy to chime in with our thoughts and experience, and hopefully, something will work for you!
Warm regards,
Kismet
Terriernut
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- Dec 11, 2010
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Since you have asked for additional support, I'm going to move this to the stoma subforum for a bit and see if that gets more response.
ameslouise
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Hey there Nannie - Sorry to hear you are getting so many leaks! There are so many different kinds of bags out there - you just need to find the one that works best for you! I switched to convex and haven't had any problems in a year!!
I had a permanent ostomy last year and my bottom sewed up - I have been super happy ever since. Once you find the right type of bag that works for you, things will seem a lot less daunting.
Good luck! - Amy
I had a permanent ostomy last year and my bottom sewed up - I have been super happy ever since. Once you find the right type of bag that works for you, things will seem a lot less daunting.
Good luck! - Amy
