Hi everyone.Just joined this great forum!
I have just been told ( although not diagnosed) with orofacial granulomatosis OFG -v uncommon auto immune disease which they think is dietary related & have been placed on a cinnamon & benzoate free diet which I'm really struggling with. Basically I woke up six weeks ago with a swollen face, cheeks & lips especially. My top lip became swollen 4 years ago but doctors just fobbed me off. I have Just had lip biopsies which came back as inflammatory & bloods were completely normal. I am having further allergy tests soon & a colonoscopy to see whether I have underlying crohns disease as i have had a long history of IBD. I was wondering if anybody has this condition that does have or not have crohns? The diet is definately helping but every morning I wake up feeling something different. It just feels my face doesn't belong to me anymore & I have pins & needles feeling all the time in my face :-( Be great to talk to someone who knows how I'm feeling! Thanks Emma
I have just been told ( although not diagnosed) with orofacial granulomatosis OFG -v uncommon auto immune disease which they think is dietary related & have been placed on a cinnamon & benzoate free diet which I'm really struggling with. Basically I woke up six weeks ago with a swollen face, cheeks & lips especially. My top lip became swollen 4 years ago but doctors just fobbed me off. I have Just had lip biopsies which came back as inflammatory & bloods were completely normal. I am having further allergy tests soon & a colonoscopy to see whether I have underlying crohns disease as i have had a long history of IBD. I was wondering if anybody has this condition that does have or not have crohns? The diet is definately helping but every morning I wake up feeling something different. It just feels my face doesn't belong to me anymore & I have pins & needles feeling all the time in my face :-( Be great to talk to someone who knows how I'm feeling! Thanks Emma
