The day our world changed forever

[taterslady]

On July 12, 2010 at age 15 our daughter, Brittany was diagnosed with Crohn’s Disease after ten months of misdiagnoses. This month her surgeries will break the double digit mark. Her sweet 16 was a bowel resection. As a parent you prepare for bumps, bruises, broken bones, and broken hearts. You think you are ready for everything, but no one can ever prepare you for Crohn's. I would like to share something I wrote late night, in one of our many hospital stays...

When Dreams Change

When you have a child you count all their fingers and toes and thank the Lord above that they are perfect. You raise your child close to your heart and dream the biggest dreams for them to achieve. You keep them out of harm’s way, kiss the boo-boos and hug the pains away. You scare away monsters under the bed with sniggles and giggles. You protect their innocence with every essence of your being. You teach them to love but in the end it is them who teaches you.

No one prepares you for the overwhelming sadness that over takes your emotions. No one warns you about the about the guilt that you carry but never share aloud. No one can close the hole in your heart when your child hurts. And no one prepares you for the day that your little girl has to put her head on your shoulder and whisper “Mommy I am going to be alright.”

That's enough for now

 

[Crohn's 35]

:welcome: Taterslady. I know how you must feel as a mom and I am a crohnie and have been all my adult life. It really sucks for kids because their life is just beginning. I know you need time and with all the struggle of almost of year (so was I) of pain and waiting for a diagnosis. I have a daughter who is 24, and this disease runs heavily in our family, and I would give anything for her not to get it. I am glad it is me and not her.

You can gain alot of knowledge here and your daughter could come here as well and share her anxieties and know this isnt always that way. What meds is she on now? Glad you joined us and hugs to you too. I know it is hard but we are here to help, hope she gets relief and in remission. Thanks for sharing.

 

[DustyKat]

Hi taterslady and :welcome:

Oh my, I feel for you so much Mum...:hug:...what heartbreaking and heartfelt words and so very true and accurate.

I know and understand exactly what you are going through as do all of the parents here. We find ourselves in a position of never being able to achieve the one thing we wish for above all else...to take this disease away from our babies.

I know you are going through dark days right now so I won't ask questions but just know we will be here waiting when you feel the time is right to chat some more. Pop by the parent's forum and have a browse around there...

http://www.crohnsforum.com/forumdisplay.php?f=49

There's loads of info, support and laughs there but best of all you are not alone. We hate the reason we are all there but thank god we do have a place to come to where everyone understands and the silence is never awkward.

Take care hun, and I hope I see you around. :heart:

Dusty. xxx

 

[Crohn's Mom]

Hi Taterslady and welcome

Your "When Dreams Changed" was so touching and brought tears to my eyes. My daughter is 18 and we are looking at her 2nd surgery this year in just a few more days, so I can completely relate to how you must feel.

Please join us in the Parents of Kids with IBD forum whenever you feel ready. There are so many parents here that would love to talk with you, help you, or just listen :rosette2:

We're happy to have you and hope to see you around the forum more

big hugs and best of luck to you and your sweet daughter
~T~

 

[LynE]

My mom was my rock, and still is, through this entire journey ever since I was 15 and started having stomach problems.I know how hard it was on her, and how much worry and mental pain and stress she went through and still goes through. Reading how much you love your daughter and how much support you give is fantastic, and makes me tear up. I hope the best for you and your family. My mom still comes and sits with me, reads a book for some of my infusions just to be there with me

 

[Jessi]

Hello and welcome, sweet mommy. :hug:

My heart goes out to you.

I really hope Brittany's surgery goes well this month. You are both in my prayers.

 

[Tesscorm]

Hi Taterslady, I am so sorry that your family must deal with these issues. Thank you for sharing When Dreams Change! Your thoughts will touch every parent's heart. :heart:

My son was diagnosed with Crohns this past spring, at 16. I can understand your fears for the future, the difficulty in coming to terms that your child's life has changed (as has yours) and the frustration at feeling you have lost control of the circumstances surrounding your child. I felt each of these, as I'm sure have all the parents here, but as you take some time reading through the forum, you will find much support, knowledge and, most importantly, comfort and hope! :ghug:

Don't hesitate to ask questions or ask for support. You will find a wonderful group of people on this forum who are always happy to help or just listen!

Thinking of you and your daughter :rosette2: