The "rem" in remicade means remission!

[Jessi]

I just had my GI appointment to follow-up on last month's blood work. Everything is perfect! :dance: And my blood pressure today was 122 over 78. Remicade and I have a love/hate relationship, but today, I'm in love. :Karl:

How's everybody else doing? :hug:

 

[MADiMarc]

I am so happy for you! So glad Remicade is helping.

 

[scoutfinch]

That's great! I'm very happy for you! Doesn't it feel awesome to feel like you're LIVING again?

Remicade is sort of working for me. The first 3 months were fabulous (started working immediately and I had very little to no pain) but it's been sort of bumpy since. After 3 months, my infusion started to fail after 2 weeks. This last infusion my doctor increased the dosage. I feel OK, but definitely not 100%. If it gets worse, I'm really going to need to consider increasing the frequency as well. Hopefully it won't come to that.

 

[SarahAnne]

So excited for you Jessica! I could feel the happiness in your post!

I'm 2 weeks post-op from surgery, and next remicade is scheduled for Nov. 15th. I expect to feel amazing by Thanksgiving, or at least my birthday in early December. I want to be completely in remission by the new year!

 

[xJillx]

Congratulations, Jessi! Let the good times roll, baby!

 

[DustyKat]

Oh wow Jessi, that is fab!!!...anda:anda:anda:...Long may it continue hun!

:mademyday:

Dusty. xxx

 

[Lisa]

I got the biopsy results today from my colonoscopy - NORMAL MUCOSA...woo hoo.....Remicade is still working for me!

 

[DustyKat]

YEEHAW!!! Fab news for you too Paso!...:banana::banana::banana:...May it keep on keeping on mate. :thumleft:

So happy for you!
Dusty. xxx

 

[Jessi]

Thanks for the comments, everyone! I'm sorry it took me awhile to reply. I've been busy the last couple days.

@ Scout ~ Are you still getting infusions every 8 weeks? If it loses its efficacy after just 2 weeks, maybe they will have to bring them really close together. Keep us posted on what happens.

@ Sarah ~ I hope you're continuing to heal nicely. I'm crossing my fingers for you to reach a nice long remission very soon.

@ Paso ~ Yay for Remicade, baby! Glad you're doing so well!!

 

[barmybev]

Great news! long may it continue to work for you Bev x

 

[xJillx]

Congrats, Paso!

I am so happy for you two!

 

[gfab1025]

Hi Ladies! Remicade is the bomb. I've been on it since 2003. I've had no reactions and no problems. I am very well. I hope everyone continues to feel well.

Greg

 

[QuicksWife]

Is Remicade a Steroid? what are the side effects of it?

 

[gfab1025]

No, Remicade is not a steroid. It's administered IV once every couple of weeks, to once every few months. The patient sits in the Dr's office while it's infused over a few hours. It's an anti-tumor necrosis factor. Essentially, it suppresses a part of the immune system, preventing the immune system from attacking it's own tissues and cells. Like every medication the side effects are different for everyone. I feel no side effects. My blood work is always normal every year. Unfortunately, some people experience horrible side effects and must stop taking the IV medication. I've been lucky taking this since 2003. How are you feeling?

 

[QuicksWife]

gfab1025, Thank you for the information. I was sent Remicade info in the mail and watched a dvd about it, but never given the info you gave me. I am feeling pretty good. I am not on Remicade, my GI just put me on Pentasa 500mg (4 times a day, 2 pills per time). I was on Lialda 1.25 mg (two pills a day). My Crohn's started in my large intestine in my lower abdomen and came upward to my small intestine. Just taking it easy and hoping i will go into remission soon. How are you? Are you in remission?

 

[gfab1025]

No problem. Yes, I'm perfectly well and I've been in remission since commencing Remicade back in 2003. The traditional meds that you're on now didn't work for me. You basically have to be dying before anybody will approve you for Remicade. I know. That's terrible. Now I don't even know I have Crohn 's anymore. Quicks,You feeling well now?

 

[hannah-rose]

Yey! So happy for you Jessi

I <3 Remicade so far (only had 1 infusion though, haha)

 

[Jessi]

Thanks, Hannah. I'm praying that it does the trick for you, too! :hug:

 

[Entchen]

Jessi: Late to see this but so so so delighted for you!!!!!!!!

 

[Jessi]

Thanks sweetie! How have you been?

 

[Entchen]

Good overall, thanks for asking! Odd thing happening right now (it's in the Imuran thread) but this too shall pass. And we had a beautiful warm day today so I traipsed through our neighbourhood park on my way home from church (and an International potluck, mmm!).