Since surgery Lukas has only been on Pentasa, which his GI says doesn't do much.
As of right now, he's doing great and his last labs in February were the best they've ever been. His GI said if he continues to do great clinically and endoscopically we could just do nothing... but after everything he's been through, that really scares me. His GI is also very open to both 6MP or Remicade as well, but quite honestly, I'm not sure he knows which direction to go either. It's like we're waiting for something (presumably bad) to happen to point us in a direction.
I'm a little bit at odds with the GIs statement that Pentasa doesn't do much. My son has been on Pentasa since diagnoses and is doing *great*! That was 3 years ago in March (side note -I can not believe it has been 3 years!!)
Anyhoo... At one point early on his GI was looking at his labs and though they were not high by any means, they were not "normal" and she said, we might want to consider a Level 2 med - 6MP. I was opposed to go stronger at that time because his labs were not *bad* and I instead asked if we could up his Pentasa doseage - and she said yes we could try and see what happens. He was clinically doing great hence he wasn't in any danger (I think that is really important to know - as there are some kids who are in DANGER if they don't move on immediately to a stronger med).
You said your son is doing great... then why introduce a drug that he may not need yet? My Mum has always taught us - not to borrow trouble where there is none...
Talking to your GI is a great idea - but (and this is JUST me and my opinion!) I wouldn't want to give a med that may not be needed yet.
I hope that makes sense. I read this and walked away and then felt prompted to respond.
I pray he continues to do GREAT!