There must be others...

[NickM]

Hello All,
My name is Nick and I was diagnosed with Crohn's about eight years ago. It's funny, I had not realized before a few days back that I have never talked to another human being with my disease. I joined this forum and have spent some time reading your stories and completely understanding your pain and heartache.

This month my symptoms have been worsening. I am scheduled for another colonoscopy (oh the excitement), have been re-prescribed prednisone, and am beginning to take a newer medication called Lialda. Let's hope we can see some results

I don't really know what to say now that I am typing this. For those of you out there who feel alone and afraid, there are others who have spent just as much time with their legs numb on the toilet, nauseated, and unable to eat much. Some of you may be reading this right now. I know what you're feeling, you know what I'm feeling; you are still a valuable and REAL person. This disease doesn't define us.

Thanks for listening to my short rant,
Nick

 

[Isla]

Dude if that was a rant - you must be an angel when your being nice

Welcome to the forum.

 

[katiesue1506]

BAHAHA! Yeah, my rants generally include a few swears. Welcome to the forum!

 

[Jeff D.]

Welcome to the forum. I agree with the others my friend, rants usually contain a few curse words, maybe a knock at a doctor, and a lot of sarcasm.lol

Good luck with the scope and let us know how it goes.

 

[butt-eze]

Welcome!!!

 

[Guest]

hi Nick - welcome to the forum

it's not pleasant having Crohns, and i think all of us here know that 'special bond' you get with the toilet lol - but, the silver lining is this forum, to me.

it's a pretty special place, with great people - all of us brought together by suffering similar pain and symptoms. i'm really glad you joined us

 

[Sharky]

Hey everyone!
Im new to this site!Got diagnosed with crohns a few months ago!Havent really got any pains my main problem is weight loss and fatigue!They put me on prednisolone and humira!They also recommend i go on a low residue diet!Since ive been on the medication i dont feel any different and im still not putting on weight which is very annoying as i cant stop eating!
Am i doing more damage by eating to much,might be over doing it!
Also,Is it the prednisolone that is making me unable to sleep and feel very anxious all the time!

 

[Sharky]

Does prednisolone give you very pale skin!Cause since i was diagnosed my skin has become very pale!Is anemia a condition brought on by crohns?

 

[katiesue1506]

Anemia does cause paleness... and anemia can go hand in hand with Crohn's. I have it and many others do. You could very possibly have it too, maybe you should have a blood test run to see.

 

[Guest]

hi Sharky, welcome!

i would say, particularly if you're flaring or in pain, give the low residue diet a go - it really can make a difference.

nice to have you here. see you around the forum.

 

[soupdragon69]

Hi Sharky and Nick,

Welcome to you both! Good to have you around and hope you are both on the upturn soon.

Looking forward to seeing you both post more.

 

[NickM]

Thanks!

Thank you guys for the warm welcome! I look forward to reading more about you guys and your experiences!

Sharky- Prednisone definitely makes me unable to sleep and a lot more jittery, it comes with the territory. The good news is you'll acclimate to it (at least a little), and hopefully you'll be able to lower your dosage eventually.

I'll be seeing you guys around!

Nick