Thought I'd share this dietary regiment

[InstantCoffee]

I've been in contact with a guy on another forum who gave me some information, take from it what you will he seems very knowledgeable, he's not trying to sell anything. He says he was diagnosed with crohns and had emergency surgery, he's been treating it with diet and supplementation based on research he's done from pubmed and other sources.

Everything he says made perfect sense to me and falls in line with everything I've read and experienced personally with diet experimentation. I have been symptom free since November 2012 with no drugs as a result of my diet, except for abscesses, and I believe I've found the answer to those as well with this guy's help.

And hopefully I might even be able to reverse my food restrictions and eat a normal diet one day if this works out.

Without further ado here's the basics from his words:

diagnosed with crohns at 15, had an emergency surgery at 21 & almost died, was good for about a year but it came back. Went into cocoon mode and read research studies nonstop on pubmed. I'm 24 now. Took me about 6 months to get rid of it. Can consider myself cured.

Avoid all grains (except brown rice), sugar, yeast, alcohol & dairy for the duration. Fruits are fine:
Take undecenoic acid 5 pills 3x a day for about 3 months (http://www.amazon.com/Thorne-Researc...dp/B000FGXMWC/)
Mega dose vitamin C and echinacea (4 grams of vitamin c) everyday for 6 months
Go and sweat somehow everyday to clean out your system. Has to be stationary sweating like a sauna for 10-15 min. candida really fuks **** up in more ways than just bowel inflammation, and clogs all your detoxification pathways. Make this a priority after the gym or something.
After you're done with the undecenoic acid, go on a large dosing probiotic for as long as possible, at least 3 months.

Your bacteria is what protects you from this fungus. Most of it died due to antibiotic usage. The undecenoic acid will convert the infection back to a harmless form. The echinacea/vitamin c combo will stimulate Neutrophils, which are the only white blood cells capable of killing the fungus. The other immune responses fail miserably and are what cause the chronic inflammation you experience. The heat from a sauna will help stimulate your immune system. Sugar / grains must be avoided throughout, as candida feasts on it. Limit marijuana as it decreases neutrophil counts.
PM me if you want more info / sources / good websites.

I've been asking him some questions, I don't want to bother him too much but if anyone comes up with anything really important I'll pass it along. Maybe I could get him to post here even idk if I want to return his help by becoming a pain in the butt though.

I had chronic abscesses as my sole remaining symptom, I had developed one in each arm pit a couple months back, one I got drained but the other was less of an abscess and more inflamed tissue and was not drainable. I ran two courses of strong anti biotics with only some reversal of damage. It wasn't until I started supplementing the vitamin C that I've seen a strong reduction in inflammation, the fluid beneath the skin is mostly gone, as is the pain and I've regained much of my range of motion that it had taken.

If nothing else I've taken from this that Vitamin C is awesome.

 

[Jennifer]

Would have been nice if they shared their research from pubmed rather than just state that they did some research and this is what they came up with.

Before starting any supplement regimen its important to have your vitamin levels tested (through blood work) to make sure if you're low or deficient and repeat blood work after you begin taking them to make sure its working and at the right dose. Taking too much of certain vitamins can actually be harmful including vitamin C.

...too much vitamin C or zinc could cause nausea, diarrhea, and stomach cramps. Too much selenium could lead to problems including hair loss, gastrointestinal upset, fatigue, and mild nerve damage.

Signs of a surplus of vitamin A may include nausea, blurred vision, and dizziness.
http://www.webmd.com/food-recipes/features/effects-of-taking-too-many-vitamins

Remember that just because something works for someone else doesn't mean it will work for you. We also don't know if they actively see a GI and have tests done to make sure they are actually in remission (some people think that no symptoms currently equals remission). Take care of yourself by continuing with testing to make sure that you're going into remission or possibly getting worse.

 

[InstantCoffee]

To put it in context he posted in a response to another person asking advice on gastro intestinal problems on forum where, typically, the community isn't big on reading large amounts of text so most people try to condense their posts as much as possible.

I could always ask him for specific source info to see what he has.

So far I've seen no negative symptoms from my high dose of vitamin C.
I've only seen improvement in the condition of my infections.

If no one else wants to try it that's fine, I will be your guinea pig and post up any and all results over the coming months.

 

[johnsir]

Can I ask how you went with this protocol?

 

[InstantCoffee]

It helped alleviate my symptoms for the duration of the diet, but it was very hard to stick to.

Many of the problems I was having at the time I believe to be SIBO or Candida related left and never returned, including the abscesses.

 

[johnsir]

I believe that candida is my problem as well, even though mainstream doctors deny it, I went on a long course of ab's to knock out some parasites and know I think I have candida overgrowth even though the gastro says I have non-specific IBD which I believe is another way of saying we don't really know.

 

[InstantCoffee]

Have you asked for SIBO testing?