Tips on coping with crohns

[mickey :)]

Up until this year i thought i had cracked ways to help me cope living with crohns, but after haviong my second op and it taking over 6 months for me to recover i just dont know how to cope. I recently had to hand my notice in as i cant cope with work as tummy has taken a turn for the worst, i have a boyfriend who is fantastiuc but doesnt see how i can always feel rough or tired. Over the last few weeks especially ive just hit rock bottom i dont know what to do with myself. I feel scared, alone, stressed, i cry over what seems like nothing. I just dont know what to do, has anyone got any advice.

Kind regards
-michaela x

 

[robbo87]

Sorry to read you are having such a tough time. It's never easy when things get to much but I always found coming on here to talk like you have done is always very helpful. Just being able to see that you are not alone and talk to people who have been there and "get it" really helped me. Thing's may seem sh1t (pardon my french) right now, But I promise you there is light at the end of the tunnel, Hang on in there. Things will get better

 

[mickey :)]

Thankyou, i know what you mean writing that post gave me a glimmer of hope because i can share things with people who understand me. I have an awesome family who are there for me without a doubt but they arent able to understand how im really feeling or what its like. I hope the light appears soon

 

[tots]

I am so very sorry you are having a hard time!

I have learned what helps with one flare or time period my change! This disease likes
us to be flexible on these things.

This is my third "big flare" and have needed much more agressive treatment this time. I am currently on Remicade and Entocort so I will say if you feel your Dr is not doing enough let him know it!

My husband is the same way as your boyfriend- dosent really get it. Its hard and adds
stress you just dont need!

Just remember- it will get better... just not as soon as we would like!

Lauren

 

[mickey :)]

I know what you mean about what works for one might not for the other wish it would understand that just creates more stress haha. Boyfriend is good just doesnt get things like if i sleep for 12 hours and say i tired he doesnt get why, or how i can suffer everyday. Hope things take a good turn soon
-michaela x

 

[Beebop]

I think my boyfriend struggles because I look normal when I am sick and I dont really like talking about my symptoms... He openly admits he forgets that I am sick sometimes and its something he is getting used to. One thing I would remind you to do is get your B12, Iron and vitamin D checked as well as read up on the medications you are currently taking. Chemical imbalances within the body can make the world seem like a much tougher place... I know that the prednisone has a really negative impact on me when I first got diagnosed and I really struggled until I came off it. Hope this helps. Hang in there!

 

[ontariomom]

Hey there!

I hve some mild depression that makes me cry as soon as one thing goes wrong. I refused treatment for it, its a personal choice. But my husband is like that. If i am in PAIN and in bed, cant move etc he totally gets it and does what he can to help. But if i am just feeling icky and having a slow and tired day he doesnt get it.

There are many days i feel scared, and alone and days where i cry all day.....i have friends that dont talk to me anymore cause i cant do things. My kids get frustrated cause i cant do things. My husband gets frustrated .....

that all leads to me being frustrated.

This is a great place for advice, suggestions and venting. I also started a journal which is great for me writing things in that maybe i am not ready to share publicly.....

it has really helped. I think seeing how i feel in black and white lets me handle it better.

Hope you are feeling better!!!

 

[silvermander]

Just last night I looked at my hubby and told him that I was bummed he was going to work today because I just wasn't up to playing 'mom' today to the (step) kids. He is great about being understanding about those things, but doesn't completely get it.

Actually, my hubby gets it better than most, and I'm very lucky about that, but the whole world isn't like him.

There's always going to be people who just don't get it, sad but true. When things get bad I do find it's better to talk to those who understand what it's like to feel like crap so much of the time. Being online here helps, and I have a good friend who is chronically ill and completely understands how it is to deal day in and day out.

Each and every day is different, so something that helped one day might not help the next. Remembering that you are NOT alone in all this crap, and there's always someone there to talk to is a big weight off my shoulders.

Also, getting it off your chest - whether anyone reads it or not - can really help. In fact, when I was in the potty a few minutes ago I had a very low moment, so I pulled out my phone, got into Google Docs and vented. I have a document set up just for those moments. Do I feel better physically? Nope, but I was able to come out of the potty and face the kids without having a crying jag.

One last thing, I agree with the person who said to have your levels checked. I'm almost guaranteed to be down in the dumps further and faster if by B12 is low (as it is right now). It's very important to stay on top of these numbers so you can take care of them before they bring your health and peace of mind down with them.

 

[mickey :)]

Hello all, thankyou so much for your advice has been a massive help. I have since been to my gp as am unwell but i also brought up my mood shes put me on anti depressants. She says although its understandable for me to feel low she doesnt think we can ignore it. So im on a small dose for a month shes going to reaccess me after. The journal idea is fantastic - i like the idea of writing how you feel so you can just get on with things without bursting into tears. Youve all be brilliant just hope they can sort out why my tummy is taking a turn for the worst at the moment. -michaela x

 

[Maximus72]

Foodstuff such as cabbage, beans, and cauliflower are gas-producers. Steer clear of these and other foods that create an excessive amount of gas. Particularly when your problem is active, bland is preferable to spicy.