Trying to stay positive but losing it

[Jackie010307]

I don't go back to the dr again till the 1st, and I'm losing the ability to stay positive about everything, or anything. I usually have a good sense of humor about things, but I'm losing it. This week has been bad, and not just with running to the bathroom. I have zero energy. Just getting to the bathroom is a challenge. I started having chest pains earlier this week, hubby took me to be er and they did tests and said chest wall pain. I feel like I'm leaving my husband to take care of everything on top of working a 50 hour work week of nights. I can't be there for him or the kids. Their school had family night tonight and I couldn't go. I'm getting down lately, and with no diagnosis in sight it isn't getting any better. I haven't managed to leave the house except for dr appoinents in about a month. If you read this, thanks. I just needed to get that out without making my dear hubby feel worse than he already does.

 

[Artificial]

Hi Jackie,

I'm sorry to hear that you feel so bad at the moment :-( Although I am diagnosed, my crohns is not under control at all so I know how hard it can be to stay positive. Hope things go well at the docs next week x

 

[Johnnysmom]

Jackie,
Life is difficult enough sometimes when you feel great but put being sick in the mix and it can feel completely overwhelming. Let go of those things in your life that aren't absolutely necessary. It is a long process but be patient and let other people help you out. If you have to order food out for a while instead of making dinner or you can't get all the beds made or whatever, just let it go. It will get better. It is stressful for both you and your husband but that is what marriage is about. He is able to be strong when you can't and you will teach your kids something about working through hard times together as a family.

Hang in there, keep putting one foot in front of the other and this too shall pass. You will be a better family for it if you can stick together through this. Sometimes our biggest trials can be our biggest blessings.

((((hugs))))))
Tiffany

 

[Cat-a-Tonic]

I hope things look brighter soon, Jackie. Your husband sounds like a good, supportive guy. Try not to worry too much about not being able to do things around the house. Are you still able to read or watch movies in bed with your kids? Even stuff like that I'm sure they'd enjoy and it wouldn't require a lot of effort. Don't worry about not being able to do stuff around the house - as my mom once told me, she has never looked back on her life and said "I wish I cleaned more" but she does say "I wish I spent more time with the kids". Do what you can, try not to feel bad about what you can't, and I hope you feel better soon. Good luck at your appointment! In the meantime, hang in there!

 

[Jackie010307]

Thank you for the support! Thankfully we have a very strong marriage. We've already been through heck and back together, and we'll get through this, too. I had three back surgeries in 2 years and that was horrible, but at least we knew what was going on. This is stressful simply because we don't he know what it is or how to deal with it. It will get better when we know what it is and we feel like we have some control of the situation, and I feel like I have some control over my body!

 

[Peanuttt]

I am also undiagnosed & having a terrible time of it. Since my symptomss have never been in remission, I giess you can say I have been in a 6 month flare. It is very frustrating, and I completely feel for you. I am 24 & am always exhausted... Even hanging out with a feiend requires an amazing amount of effort, not to mention I have been unable to work for a full month since last September. The constant pain and using the restroom anywhere from 6 to 8 times a day sometimes more if I include the nocturnal diahrrea... It has affected my job, my life, my relationships, ive had to put off law school because of it... The list is never ending... All I can say is hang in there and be ur own medical team & advocate for urswlf or no one else will... Stay proactive & keep a log of ur symptoms since it will allow ur doc to see just how much you are going through!

Most of all try to stay positive & dont let it get ypu down. I hope you can get a resolution soon & graduate from our undiagnosed posse!! Feel better please!