Undiagnosed - but started humira last week..

[HeliGuy]

Hi everyone -

I'm currently undiagnosed as my colonoscopy and upper endoscopy came up clean. I had a thread titled "sick for 3 years most likely crohns" if you want some more back story in the my story section.

My rheumatoligist believes I have an autoimmune disease in the catagory that includes crohns, rheumatoid arthitis, sacriatic arthritis, anklosing spondilitis, and psorisis. Sorry about the spelling typing on a tablet

Anyways I just started humira last week and I'm hoping to start feeling better soon. I received a second prednison injection 2 weeks ago but it didn't give me as much relief as the first one.

Just wanted to say I have officially joined the humira club!

I'm just hoping it works.

 

[Arin B]

Hey HeliGuy, Me too! I've never met someone with the same diagnosis as me. I think we tested positive for the seronegative spondyloarthropathies... which include crohns and all the ones you listed above. I still don't have an official diagnosis but my Rheumy said that if the Humira worked for my gut it was definitely Crohns. I started Humira 2 weeks ago and it has worked wonders for me... though some funky side effects. Do you have stomach problems?

 

[MikeinBklyn]

Good Luck to you both.

It's been 1 year on the H for me. No problems at all, and after some dosage adjustment it cleared up all my problems.

 

[HeliGuy]

It has been 3 weeks and my joints are pounding all over. I think my last prednisone shot has completely worn off! I'm really hoping this stuff starts working soon. A few nights ago all the muscles in my feet started cramping so bad I was in tears for an hour. Does that happen to anyone else?

Also the glands in the base off my neck got really inflamed last weekend. I went to the doctors office and he said where I was pointing was were my thyroid glands are. He did some blood work and had me get an ultrasound to look at my thyroid glands on tuesday. Have not heard back yet so I will call him on monday. Does it usually take a while for the humira to start working? I will see my rheumatologist in 3 more weeks I hope its working by then.

 

[beth]

Whilst I noticed a difference in 4 days of the loading doses, it wasn't a miraculous recovery. It took going to weekly injections for that.
With so much going on I wouldn't be surprised if it takes a while to really kick in for you. Just got to keep faith and take those injections!

 

[HeliGuy]

They didn't start me on loading doses just 1 to start then every other week. I wonder if its because they don't know for sure what's. Goin on. I have read with some of the other diseases you don't do loading doses. I should talk to her about this next time I see her.

 

[Dayz]

It has been 3 weeks and my joints are pounding all over. I think my last prednisone shot has completely worn off! I'm really hoping this stuff starts working soon. A few nights ago all the muscles in my feet started cramping so bad I was in tears for an hour. Does that happen to anyone else?

Also the glands in the base off my neck got really inflamed last weekend. I went to the doctors office and he said where I was pointing was were my thyroid glands are. He did some blood work and had me get an ultrasound to look at my thyroid glands on tuesday. Have not heard back yet so I will call him on monday. Does it usually take a while for the humira to start working? I will see my rheumatologist in 3 more weeks I hope its working by then.

I am still left to be diagnosed but I definitley understand joint pain. I have been experiencing it for a couple of days and it can be crippling. My muscles feel like they are going to cramp but havent yet. I am so terribly annoyed of all of this. I am not sure whats worse doubling over in pain from stomach cramps or being paralyzed by all this joint pain!