Undiagnosed colonoscopy this fri, in pain now :(

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RTM03

Joined
Dec 5, 2012
Messages
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UPDATE after colonoscopy

Hi everyone I am 20 years old and the doctors believe I have Crohn's disease they are doing colonoscopy Friday tomorrow I cleanse. I have been bleeding per rectum during bowel movements and had blood in stools, sometimes going to the bathroom is unbearable mines more of constipation rather than diarrhea although even when i am not constipated I still have significant bleeding. I am in so much pain tonight but a week ago I had the same pain and thought it was my appendix so I went to the ER and Didn't think to tell the ER doc my GI issues since I didn't think it could be related but after the ct and he said it was fine not my appendix I told him the other symptoms and he said did I have family history of Crohn's I explained yes my uncle and grandmother on my dads side. I explained I was supposed to have colonoscopy done soon he said my symptoms were probably related to what was going on but he couldn't say for sure since he's not my GI doc and the colonoscopy hadn't been done so I got sent home on loratab for pain and phenergan for nausea. But here I am a week later and in tons of pain same side same pain and nausea but this time one of my eyes is swollen up and I have 3 mouth ulcers. Feels like I have to go to the bathroom bad but can't thoughts anyone?? Please I understand you probably all get this a lot from people but my pain is genuine and really want answers and thoughts. Please help give advice on if I sound crazy or what it's okay I want honesty. I don't know anyone with Crohn's so I have no one to ask these things





I got my colonoscopy showed clear however my doctor said I have extremely sensitive intestines and bowel spams he's unsure why and unsure where the bleeding is coming from. He said its prob all ibs.... An just putting me on a med to relax my intestines however he didn't do any biopsies and didnt even mention anything about endoscopy or pill can to get a further look at other parts??? I just don't get it. He said if the meds don't work he will look at my gall bladder although he doesn't think that's it..Thoughts???
 
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Welcome to the forum RTM03, so sorry to hear you are in so much pain. Does your GI have an after hours answering service or on call GI? If problems persist you may want to contact him or get back to the ER. Did the pain med and nausea medication help you last time? Alot of your symptoms do sound like CD, my son's CD flares begin with night fevers, mouth ulcers and pain. There are Extra Intestinal Manifestations of CD that can include issues with your eyes, so I would definitely bring this to your GI's attention or at ER if you decide to go there.

I hope you are able to get some relief soon and I'm sure more members will be by with advice or experience with your symptoms.
 
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My GI doc doesn't have an after hours number just go to the ER. I figure I'll take some of the loratab they prescribed me and get through tonight and the cleanse tomorrow :( then fri I'll have my colonoscopy and know something. Not knowing is very stressful.
 
hello and welcome!
I am sorry to hear that you are having so much pain and I hope that the scope can bring you a diagnosis. Your symptoms do sound a lot like IBD. Before I was diagnosed I was constantly in the E.R. thinking it was my appendix and then finally someone sent me to a GI and i was diagnosed. Be sure to check out the extra intestinal manifestations sub forum, you might find some answers there. let us know what happens with the scope, hopefully you get some answers soon
 
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LOL sorry IBD= irritable bowel disease. aka crohn's, colitis, etc
 
Hiya Rtm, welcome to the community. So glad you joined us. Please feel free to have a look around. Get involved, we have sub forums, games, polls, jokes and lots of encouraging info in here. We are here for you to ask away, vent or just let it all out. This is a very supportive site, very homey- like we are all family and can relate in some way. I do hope you get answers tomorrow, please keep us updated on how it goes and the results. BEST of luck with the prep....ugh, never fun. Thoughts n prayers with you. - hugs-
 
Hi RTM03

Have recently had exactly the same with my daughter. She had lots of pain and bleeding and mostly constipation/obstructions. We started off having to go through A & E or our GP, it is awful!! Hopefully once you have had your procedure you will be referred directly to the Gastro team. Once that happens you should be given a direct number for a IBD nurse who you can call and leave a message for, they will get straight back to you and are fabulous!!

I hope your procedure goes well and you get answers soon. Sometimes you will need a lot more tests before anything is diagnosed.

Good luck!!

Niks
 
UPDATE I got my colonoscopy showed clear however my doctor said I have extremely sensitive intestines and bowel spams he's unsure why and unsure where the bleeding is coming from. He said its prob all ibs.... An just putting me on a med to relax my intestines however he didn't do any biopsies and didnt even mention anything about endoscopy or pill can to get a further look at other parts??? I just don't get it. He said if the meds don't work he will look at my gall bladder although he doesn't think that's it..Thoughts???
 
I'd continue to work on him to get an endoscopy at the very least. Bleeding could be higher up. Ulcers, sores etc.... I do hope he continues to do tests so that the root of your issues can be addressed. Keep on him and stay positive. Muah- hugs-
 
Hi RTM, * hug *

I'm sort of in the same boat as you but you're further ahead than I am. I'm 30, have been diagnosed with IBS for years, but had severe symptoms for 2 weeks. Doctors seem completely clueless as to what it is and keep sending me home telling me to 'wait and see'.

Anyway, I hope you get the answers you need and I agree - not knowing is one of the most stressful aspects of this whole thing!!!

Good luck!
 
With your symptoms and family history of CD it seems odd he didn't take biopsies. I wouldn't stop pushing until I had answers. Bleeding does not occur with IBS. Next time there is blood get a pic with your phone. You have to be your own health advocate if you don't get answers and are still having symptoms then keep pushing, switch docs, insist on more tests. I hope you get answers soon.
 
Hiya RTM03
and welcome

IBD is Inflammatory Bowel Disease not Irritable Bowel Disease
IBS is Irritable Bowel Syndrome (huge difference)

Hope you get some answers soon, but please don't let them take out your gallbladder, also get a second opinion, you do not bleed with IBS, and there is a connection/genetic link ie your uncle and grandmother.
good luck
xxx
 
How are you getting on? Have you got any answers?? Hope you are at least feeling a little better x
 
I haven't recieved any answers really only that I have very sensitive intestines and bowel/intestinal spasms unknown as to why they have no idea why I'm bleeding so much and seem to not care to find out why bc he wrote me a script for a yr of Levbid to relax the intestines..he thinks that's whys causing the pain. I've been on the meds a few days still in pain had diarrhea and vomitting yesterday. Ughhh frustration. Seems like I'm the only one concerned with my health. I'm 20 yrs old and my heart rate is 40-50 now...my bp is in the 80s over 30s I'm exhausted I have anal skin tags mouth sores I bleed per rectum with almost every bm my grand mother and uncle have Crohn's I'm very anemic. My colonoscopy appeared fine no hemm, or fissures so he doesn't know what's causing the bleeding he didn't do biopsies or suggest anything but to try these meds and if that doesn't work look at my gallbladder although he doesn't think it's that either..just frustrated
 
After reading through all this I believe that you should get a second opinion. It's standard practice for GI docs to do biopsies during colonoscopies, especially when ruling out IBD. Crohns Dz has a specific cell pattern that presents and just because there are no visible "skip lesions" (typically seen with Crohns in your colo) doesn't always mean you don't have active disease.
Was the GI doc able to get to your small bowel with the scope? Have you had a CT or upper GI x-ray series with a small bowel follow through?
The bleeding is quite possibly from straining to have a bowel movement. Did they say you have hemorrhoids?
Find a GI doc that has 24hr service. Someone from the office should always be on call.
Good luck!
Karen
 
I concur. Time for another doc/ opinion. I wouldn't stand for the i don't know. My bowels were very sensitive as well, but i pushed like he** to get in and get things done. My health is my family's livelyhood. I would most certainly be pro active. Go to the ER if need be, presentation alone will at least get you a CT and pain meds. Good luck! - hugs-
 
Had a ct on abdomen before my colonoscopy and it was clear and no small intestines was not scoped :( also doc said no hemm. and no fissures or anything so he's unsure as to where I'm bleeding from.
 
There are so many people I have come across in this same situation. I think it is very important to get a Doctor who is willing to listen and who is also willing to get further blood work and more thorough investigations done.
There are more specific tests for Inflammatory Bowel Disease. There are sections on this forum including the Wiki section that have these tests listed. generally when you go to the ER they will run very general blood work ,these tests will not show specific Crohns or Colitis . These are more difficult to detect and require a good GI to do the investigating. If you are unhappy do please find a new doctor and take note of your symptoms over a short period and also have the information from your previous scopes.
I have had a very similar experience. But in the end constant inflammation gave the game away . I am now on Asacol and although it is not the answer it certainly is a big difference.
Peter
 
Im very nauseous lately I vomited the other morning but I suspect it was from the new meds.. But I hadn't taken the meds yet that morning so I dunno it was not coffee grounds more like stomach acid and I also have notice my appetite decreasing and cramping pains coming more frequently often starting up after eating :/
 
RTM,
Have you spoke to doc about antinausea meds? Good not coffee ground like cause that means bleeding could be higher up as well. What is the new med called? Hyoscyamine, dicyclomine? You shouldn't vomit from this as it promotes gastrointestinal peristalsis. It shouldn't be backing things up causing nausea or vomiting issues. But don't know what exactly you're on. I would again get ahold of doc and tell him what's going on, communication is the key to finding out what's really going on. Good luck, stay strong and keep tredging forward. - hugs-
 
Levbid which I believe the generic is called hyoscamine. He didn't prescribe anti nausea meds said he wants to see how I do with this first.
 
Hey RTM! I am new here too.

Question for you to ask: If you just have "sensitive bowels" then why are you bleeding and what's up with the mouth sores?? I have the same, family history of Crohn's, my cousin died of it 10 years ago. I was diagnosed last year! I am not a doctor, but generally if you are bleeding red blood it is from your colon and lower.
I have mouth sores too, and tongue and gums. Not exactly my colon! LOL
 
Rtm,
If the doc is unwilling to listen to you or take steps to help all your symptoms, i would definitely go for another opinion. It's your body and you are the one who ultimately has to live with the pain and symptoms. I feel for you, hope and pray your pain and spasms subside with hyoscyamine and that your nausea has decreased. Best wishes! - hugs-
 

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