He had his checkup on Friday. He's down 6lbs, but considering that he's 95% for weight and height I guess that's okay. We talked about what was going on and all the test he has had done. She even said she didn't know what else I was supposed to do. I did find out that the only ped gi's are through the children's hospital which we have seen before that wouldn't do any further testing so it really wouldn't do much good to rush there. She said to keep giving him the probiotics and use miralax as needed. We're going to start using a calendar to keep track of when he goes so we'll know when he starts to get constipated to give him the miralax. I'm going to keep track of his weight and symptoms for awhile and go to the gi with more information that will hopefully convince them to test further. I could go another city to see a gi from a different children's hospital, but I've done it before with my other son who started having seizures at a month old and it didn't work then either. They just got his seizures under control, and sent him right back to the ped neurologist in our own city. So I guess we're just stuck in another round of wait and see for awhile which I really hate. I just want a diagnosis. Is that too much to ask for :ybatty:?
Update on Xavier
- Thread starter kandy
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It's not too much too ask! While we already had testing in hand, we went out of state to get a second opinion (We went to Boston Childrens...we are in upstate NY). It wasn't originally a doc covered by our insurance, but we appealed and they payed for a consult.
I wish your doc was more helpful...but hope that the additional info you provide helps to push him along!
I wish your doc was more helpful...but hope that the additional info you provide helps to push him along!
DustyKat
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I'm so sorry that you are getting nowhere with the docs. 
I agree with Angie's suggestion to go further afield for opinions. Is that possible for you to do?
Your idea of tracking Xavier symptoms is spot on Mum. Perhaps you would find the suggestion we have listed in the wiki to include in a diary would be helpful...
http://www.crohnsforum.com/wiki/Diary-Inclusions
Good luck and keep and us posted!
Dusty. xxx
I agree with Angie's suggestion to go further afield for opinions. Is that possible for you to do? Your idea of tracking Xavier symptoms is spot on Mum. Perhaps you would find the suggestion we have listed in the wiki to include in a diary would be helpful...
http://www.crohnsforum.com/wiki/Diary-Inclusions
Good luck and keep and us posted!
Dusty. xxx
