Uveitis

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Joined
Aug 7, 2010
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I have had Crohn's disease for many years, diagnosed in my 20s but suffered for two years before I was diagnosed - and that was through surgery which was felt to be an appendix rupture - but it was an abscessed blockage. I had been very very ill with severe weight loss but for a few months after the surgery, I was starting to get better. But... about four months post surgery, I flared bad and stayed in the hospital for 15 days - was put on steroids, antibiotics, sulfasalazine (sp), steroids via injections. It took me a couple of years to completely recover to a normal weight and health. This was in the mid 1980s. However, through the years, although I never got as ill as I did during that phase, I have had costocondritis, joint pains, rashes, chronic urticaria, and eye inflammation. The eye inflammation was here and there, and I cannot believe I had not educated myself more on the subject. I assumed it was merely "red eyes." It came and went, but I have always been sensitive to light, and actually had tender pain in my left eye. It was due to blurriness that I went to my eye doctor who saw the uveitis.

Right now I'm on the second week of steroid eye drops. My left eye still hurts and the blurriness hasn't completely resolved. I have heard uveitis can cause blindness and this scares me. I wish that I had understood what eye inflammation due to Crohn's really meant and how serious it is. Had a colonoscopy 8 months ago that was fine - an upper GI in May that showed severe inflammation at the base of my esophagus and underwent 4 iron infusions due to severe anemia from March until June. I am not anemic now fortunately but it took those last two infusions back to back to bring my levels up. Now the eye problem. I feel I had this illness under control but I know it can manifest itself in these other ways - it's just so frustrating. Been under a lot of stress the past year and I'm wondering if that is why I'm having so many problems.
 
Hi and :welcome:

I'm glad you found your way here. Stinky has not long started a thread about IBD and eye problems -

http://www.crohnsforum.com/showthread.php?t=11969

Many people here attest to the fact that stress sends them into a flare so you are not alone there! This is a safe and friendly place to hang out with loads of knowledgeable people. Since you've had your Crohns for quite a while I reckon you would fit that description as well.

Welcome aboard!

All the best, :)
Dusty
 
Hi J, welcome to the forum. Dusty has given you some good advice already so I'll just say glad you're here and hope you stick around. You've got a lot of valuable experience to share I'm sure. I hope you can get your eye problem and the esophogal inflammation under control. What meds are you on now? Good luck!!!
 
Yes, I have had the illness long enough to know one thing...when you are in remission and can live your life without thinking about Crohn's every day and where is the nearest bathroom...you thank your lucky stars. When you have a bad day with the runs and eating is actually scary...I've actually NOT eaten anything except maybe white rice when I have some commitment and I'm really afraid I will have a bathroom attack... boy, you appreciate the times when things are calm.
 
Hi jhill
and welcome

Yes it is scary! and when things are calm, you still can't relax, can you?
I have a lot of eye problems too, mainly styes and I can wake up bloodshot!
I've had urticaria too, it was an allergic reaction to the azathioprine! Once I stopped it, it all went away!
glad you found us, lots of support here and friends
lotsa luv
Joan xxx
 
Yes Astra, it is scary. I had symptoms of Crohn's most likely as a teen-ager, but they came and went. And even when I developed the bowel obstruction, I had pain in my right side for a long time before things started really going downhill. I was constantly misdiagnosed - I was often told there was nothing wrong with me. Despite telling at least five different doctors - all primary care physicians, that I was vomiting, losing weight, spiking fevers and that I had, believe it or not, a MASS in my right side that hurt - sometimes it was raised, sometimes it went down but it was there and could be felt. One PCP told me that it was a BOWEL MOVEMENT in my intestine and that's why I could sometimes feel it, and sometimes not. It was unreal. I was literally dying right before my family's eyes - I was about 104 pounds (from about 125) by the time a surgeon saw me in the ER after vomiting over and over and in terrible pain - the one doctor who believed something was wrong with me in the ER got the surgeon and of course they thought it was appendicitis. After a three hour surgery, I woke up with an NG tube in my nose and was told by a recovery nurse that I didn't have appendicitis - that it was Crohn's - my sister-in-law also had it so I knew what it was. But I kept asking that ER nurse "Did they get it?" meaning my appendix! Even after I was aware that it was not my appendix - they actually did remove it along with the cecum and bad section of my small intestine. It's not an easy disease to live with, that's for sure, and now this eye inflammation - it's scary. I see my GI doctor the week after next after I go back to the eye doctor this week to see if the steroid helped. I know I don't want to go on any maintenance drugs if I can help it. But we do what we have to do and then be grateful for when we are healthier.
 
Aw jhill

you've had a rough ride there! sounds very familiar tho, with me and lots of us on here, misdiagnosis, being told we're mental, all in the head, yup, we've heard it all!
glad you've got a good opthalmologist tho, he spotted it early and gave you appropriate meds, assuming it's corticosteroids eye drops like Pred. with early detection, all should be well,
good luck with it
xxxxx
 
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