Very worried - Aza and severe pain

[Mumof4]

Matt is on week four of azathioprine. He is on week six of modulen diet. This morning he took his modulen and within minutes had severeain in the centre of his abdomen and I mean severe, then green diarrhoea. The pain came on suddenly, and is a constant severe pain, worse if he moves about, abdomen too sore to touch and the spikes of really really severe pain every few minutes. After an hour of this I panicked and rang the GI nurse. Couldn't get her so rang the hospital ward and eventually got a call back. Was told it might be a tummy bug, or could be his crohn's or maybe appendicitis! But
Probably just a tummy bug. He was due to have his weekly bloods done this afternoon anyway so have been told to bring him up at lunch time so GI can see him before clinic. Was told his blood have been fine but am still panicking about pancreatitis from the azathioprine. I know that may seem a huge leap but I have never really seen him in so much pain.

It is now two hours since it started, the pain is still there constantly but the spiking to a higher level seems to have eased. As a mother I know this is no tummy bug, he has no temperature and only one bout of diarrhoea.

Oh how I hate this disease.

 

[Dexky]

I can't speculate about the pain but let us know what the GI thinks. I'm with you, it doesn't sound like the typical bug. I hope they get him straightened out quickly!!

 

[Mumof4]

Thanks. I am just sitting here on the bed beside him wishing the clock would move faster. I have decided if it gets worse stuff them I am taking him to A and E. Hopefully he will be okay until lunchtime but I am not pissing about with this I would rather over react than under react and put him at risk.

 

[DustyKat]

I'm probably a little late to this Mum but I agree, if in any doubt take him to A and E. You know your son better than anyone and if you think he needs to go then go. If it turns out to be nothing then you are no worse off but if it is something more serious then you are in the right place!

Good luck hun and let us know how things turn out. :hug:

Dusty. xxx

 

[scottmyster]

HI mum, i would like the others said take him to the ER. if the pain persists and gets severe which i think it already is. It doesn't sound like a tummy bug. Like the others said you know your son better than anyone. so i wouldn't hesitate. Let us know how you get on at the Hospital. or when he see's his GI. best wishes.

 

[Grant]

When I was on Azathioprine I was told to watch out for severe upper abdom pain. It could be Pancreatitis. I would get him to A & E promptly if it persists.
Rgds
Grant

 

[Crohn's Mom]

I agree with all the others...you know your son better than anyone!
I hope things have settled by now tho, if not I hope you are at the emergency department.
Best of luck and let us know how he's doing!

:ghug::ghug:

 

[Mumof4]

Hi guys, thank you for your replies. We saw the GI and they did blood tests and a scan to check for pancreatitis. We won't know the results until tomorrow, but the pain has eased now so hopefully it won't be that. But boy that was scary!!

 

[Dexky]

Let us know when you hear something Mum. Good to hear his pain has eased!

 

[Mumof4]

Got the results today and it was good news it is not pancreatitis. So thank goodness for that. BUT we had a repeat but milder episode this morning, starting to look like he may be starting to flare. Not good news as he only has one more week of modulen then is to start reintroducing food. But maybe it is just a blip and will settle down again, fingers crossed.

 

[kimmidwife]

Glad it is not pancreatitis. I also hate this disease! How is he doing?

 

[DustyKat]

I hope it's just a blip too Mum!

Fingers, toes and everything else crossed that it all settles down...:goodluck:

Dusty. xxx