Walmart story

[callypat]

This week, my sister picked me up for our usual Friday of lunch and shopping. She suggested chinese food and since I'm trying to be in denial about this disease I said ok. I was very careful about what I chose (or so I thought). I knew I was playing with fire with the deep fried crab thingies so I only had one. Fried rice, chicken and brocolli (minus the brocolli which I did not eat since it was still crunchy). I had some red sauce and only water with lemon to drink. I made sure to chew well and eat slowly and all seemed well.....until we got to the store to get the food shopping done.

Within 15 minutes of eating that meal I was running to the bathroom for the rest of the afternoon. By the time I got home I was exhausted and feverish. I couldn't focus on the shopping, only where I was in relation to where the bathroom was. There was even a point where I had strayed too far and ended up having to throw away my panties, right in the bathroom at Walmart. I'm so depressed I can hardly stand it. It seems even at home whatever goes in just comes right back out. I was formerly on asacol/entacort and when that wasn't working any more I was put on humera shots and imuran and that doesn't seem to be working either.

I know I am whining, and I thank you all for listening. I don't have anyone to talk to that understands how this disease makes you feel. I thought once I was diagnosed correctly and got on medication I would be feeling better. Now it's been months and I don't feel any better. I go back to the doc on the 19th but I don't have much faith in medicine anymore.

 

[Brando]

sorry to here about your situation. just remember what doesnt kill you makes you stronger. it's a hard road but you can't let it get you down or it will defeat you.

have you looked into more of a natural remedy approach? probiotics have helped many on and off this forum. i would at least give them a shot.

 

[Jeff D.]

I remember those times. Hopefully you start feeling better soon.

Best of luck

 

[Sojourn]

Sorry to hear of your recent experience. It sounds like you knew what you were getting into with the Chinese food but you were out with your sister and you wanted to have a normal afternoon. I know the feeling. When I tell people I can't eat with them, sometimes they get upset or take it personally. My family by now though understands. I've been in denial about the disease also.

 

[callypat]

learned my lesson

I am happy to report that while out with friends this afternoon we ended up at Mcdonalds. After what happened the other day I didn't dare press my luck again and chose not to get anything. Funny, as much as I used to love Mcdonalds I sat there while they were eating and it didn't even bother me. I kept thinking of how quiet my belly was and I wanted to keep it that way.


I have not tried probiotics. What are they? Where can I get them? Is it a supplement pill or vitamin of some kind? I'll try anything, especially something that others have had success with.

Thanks for the support, it means a lot.

 

[D Bergy]

Probiotics are basically good bacteria that is normally present in your digestive tract that are in a supplement form.

I have ordered Primal Defense brand on the recommendation of another forum member. There are likely many good ones available but I am not too well versed in this area either. But, they can do no harm so it is worth a try.

D Bergy

 

[Mazen]

I also used to have very bad reaction when I ate the wrong foods. Now I don't care what people say, and only eat what I can tolerate.

I suggest you try taking Omega 3 fish oil. it helped me a lot

 

[lizziecee]

Taken short....

Hi - I know the feeling of messing in public so do sympathise.

You asked about different meds - for the past 6 yrs I have been on methotrexate, an immunosuppressant. For the first 4 years I was on 25 mg orally weekly, but since having to come off it in 2003 in order to have FEC chemo for breast cancer, when I restarted mtx my gastro prescribed 12.5mg by injection, weekly, which I do myself. It has made such a difference to my life and I can eat anything not too fibrous, and only have a slight diarrhea problem first thing in the morning.
I take two other meds to control the Crohn's: codeine phosphate 15 mg, and Triptofan (a combined tablet with both an anti-depressant and anti-psychotic) not for those purposes, but to slow down the motility of food through the intestines.
I also Arimidex for breast cancer, but don't think this has any relevance to Crohn's

I was dx with Crohn's in 1970 when I was 24 yrs, so it has been a long haul.
Steroids did bring a flare under control, but my gastro won't prescribe these anymore as I had a steroid induced psychosis when dx with bc, and have osteopenia through their use. I am on meds for the bone loss.

Hope this helps.
Take care,
Liz.

 

[Lody]

PROBIOTICS! PROBIOTICS! PRIMAL DEFENSE ULTRA AVAILABLE AT ALL VITAMIN WEBSITES- I GOT MINE AT VITACOST.COM- ALSO DRINK THE DANNON YOGURT'S PROBIOTIC DRINK "ACTIV" AND EAT THE ACTIVE YOGURT- AFTER 2 DAYS SINCE STARTING ON THESE, I FEEL WAY BETTER!!!!! ON THE ROAD TO REMISSION yay!!!!!