Back in 2014 I was diagnosed with Crohns.. i had had IBS for about 20 years though, so maybe it was longer than that, though tests didnt show much (runs about 3-5 times a day, same today too, no change).. I'm 41 years old at this point for a time reference ...
For about 9 months now I've been doing remicade every 8 weeks or so, in conjunction they have me on 50mg of 6MP.. I was on humira before this.. in either case, my bathroom trips have not really decreased by much.. dr has told me the truth in things will be to see the colonoscopy (coming again in april, usually yearly) and see if Ileum small intestine inflammation (where mine mostly was), is now reduced/gone.
I also had perianal cysts.. one drained, had setons now with fistulas, i did manage to get the setons removed, so that is somewhat better though still some drainage some 1.5 years later or more too.
That brings me to more recently..
I was feeling pretty sick to my stomach about a month ago.. wasnt sure if it was a virus or related to the 6mp.. throwing up near the end of 4 days of it too.. went to the ER, they said likely just a bug (i've had symptoms from immuno blockers before though).. its been about 7 months or more on 6mp..
I noticed at the time of the er I had weird sandpaper like pain on my right shoulder blade.. it felt like someone was taking sandpaper over that area to remove a shirt or be touched.. it gradually reduced and has gone away..
(drs werent sure what to make of it at the er).. i have also had joint / muscle pain at times, randomly.
This brings me to now.. suddenly now my right arm near my elbow, but mainly on the muscle area on the side of the arm is now feeling the same burning when touched.. just sitting there, no issues, moving no issues.. but touch its weirdville.
Another weird pain but maybe unrelated happened the other night too, had a sudden series of severe pain just under my left ribcage area.. felt like fireworks tearing me apart.. fortunately it went away after about 30 seconds.
So i'm just wondering if anyone out there has ever had similar symptoms and if so how did it turn out.. was it related to immuno blockers / side effects of remicade or maybe something completely unrelated..
Thanks in advance for any insight..
For about 9 months now I've been doing remicade every 8 weeks or so, in conjunction they have me on 50mg of 6MP.. I was on humira before this.. in either case, my bathroom trips have not really decreased by much.. dr has told me the truth in things will be to see the colonoscopy (coming again in april, usually yearly) and see if Ileum small intestine inflammation (where mine mostly was), is now reduced/gone.
I also had perianal cysts.. one drained, had setons now with fistulas, i did manage to get the setons removed, so that is somewhat better though still some drainage some 1.5 years later or more too.
That brings me to more recently..
I was feeling pretty sick to my stomach about a month ago.. wasnt sure if it was a virus or related to the 6mp.. throwing up near the end of 4 days of it too.. went to the ER, they said likely just a bug (i've had symptoms from immuno blockers before though).. its been about 7 months or more on 6mp..
I noticed at the time of the er I had weird sandpaper like pain on my right shoulder blade.. it felt like someone was taking sandpaper over that area to remove a shirt or be touched.. it gradually reduced and has gone away..
(drs werent sure what to make of it at the er).. i have also had joint / muscle pain at times, randomly.
This brings me to now.. suddenly now my right arm near my elbow, but mainly on the muscle area on the side of the arm is now feeling the same burning when touched.. just sitting there, no issues, moving no issues.. but touch its weirdville.
Another weird pain but maybe unrelated happened the other night too, had a sudden series of severe pain just under my left ribcage area.. felt like fireworks tearing me apart.. fortunately it went away after about 30 seconds.
So i'm just wondering if anyone out there has ever had similar symptoms and if so how did it turn out.. was it related to immuno blockers / side effects of remicade or maybe something completely unrelated..
Thanks in advance for any insight..
