What does remission feel like?

[mere282]

I'm pretty new to all this. But I've had a really
Good week. Pain is very little and the amount
Of bathroom trips has reduced. I've been on
Encort for awhile I started to taper down.
So I guess my question is ( could this be remission?)
Do u have to be off steriods to be considered
In remission. I don't want to get my hopes
Up.. But I haven't felt this good in awhile even have
Some energy. I know it's only been 5-6 days
Just hopeful I guess..

 

[Amaze]

I'm pretty new to all this. But I've had a really
Good week. Pain is very little and the amount
Of bathroom trips has reduced. I've been on
Encort for awhile I started to taper down.
So I guess my question is ( could this be remission?)
Do u have to be off steriods to be considered
In remission. I don't want to get my hopes
Up.. But I haven't felt this good in awhile even have
Some energy. I know it's only been 5-6 days
Just hopeful I guess..

you are in the beginning stages of remission. Continue taking your medications as prescribed no matter how good you feel. Also, dont get greedy and go on an eating binge.

 

[SarahBear]

Hi, mere!

You could definitely be on your way to remission. I agree that it's best not to get your hopes up, but don't dwell on the negative either - just try to take things as they come and enjoy the good days you're having.

:hug: I hope things continue to go well for you!

 

[Amy2]

For my 17 year old son, remission means a moderate appetite and only occasional difficulty pooping (either feeling exhausted afterwards, or he sees food in his stool) occasional aches and pains here and there and s-l-o-w weight gain. He feels good most of the time, but not great, not like a normal 17 year old. Before he was diagnosed, he suffered from constipation and exhaustion, not diarrhea.