What pain meds is everyone on?

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

I mainly just take paracetamol. Occasionally, I'll have to take codeine.

I have a fairly high pain tolerance, but when it gets to a certain level then something isn't right, and I'll see a doc asap.
 
I take Darvocet-N 100, it is one of the few narcotics that have the least "gut binding" effects. As I have the opposite kind of Crohns symptoms, I get obstructions and constipation when I flare - not diarrhea. If it is so bad that the pills don't work I go to the ER.
 
i take cocodomol as its the only ting that really helps.. paracetamol only helps upto a point. but cocodomol makes me sleepy and feel light headed so i can only take it if im not going to work or going to drive. it can also make me constipated so i have to be careful how much i take and only have it when neccessary
x
 
Last edited:
I've never been able to get anything other than tylenol 3 for pain when I needed it. I'm not sure why. I'm a very outwardly calm person, so when I tell a doctor that I have pain I probably don't look very distressed. Or maybe they look at my tattoos and think that I can take it? I won't take tylenol 3 anymore, after my surgery it made me constipated and I had to go to the ER which was a worse ordeal than the surgery I had just gone through a couple weeks before.
 
Darvocet 100/650

Darvocet works better for crohn's than most other things because it slows the intestinal spasms causing the pain.
 
I don't take anything for pain I have a really high pain tolerance. But I also had a bad experience in the ER where the nurse acted like I was a drug seeker, he made me feel awful. I had a fever of 107.5 and was in terrible pain and he said why are you acting like that are you just here for drugs. I refused the pain meds that day and from then on never took any. It turned out that day that my Crohns was so bad I had surgery a few days later. Even after my surgeries I never used pain meds at home.
 
Wiles I have the same problem. I'm covered in ink and always immediately get labeled. You can see the docs face change, actually his whole demeanor from before and after my shirt comes off. Its like HELLO I'm asking for something for pain because i'm in pain! Damn that ish pisses me off. Luckily I finally found a GI that didnt judge and is giving me pain meds. Its quite obvious i'm suffering.
 
Ya the ER doctors can be horrible. They are the ones who never believe I am abstinent and also think that I am a drug addict (this crap occurred even before the pink hair!) Oddly enough though, my GI will not prescribe me any pain pills. I get them from my primary - needless to say I may be looking into getting another GI sometime in the near future.
 
I had that problem before too - My previous G.I. told me my family doctor should be the one prescribing pain medication and my family doctor wasn't comfortable with it and wanted the G.I. to do it. :lol:
 
Ya I think the specialist should prescribe any medication that pertains to the disease they specialize in. It only makes sense!
 
Agreed. I def get scared when I have to take them daily like I am now but even with 2 percs every 4-6 it still brings me to the floor and close to pass out pain. Before I had this doc I was having a breakdown in pain and someone gave me a 5 mg methadone. Now we all know the first thing you think of when you hear that word. I have to say that nothing ever on earth besides IV Morphine has ever helped me like that and it lasted the whole day! No buzz or anything. So if I could have anything it would be that and more and more docs are prescribing it for chronic pain. Def very addictive but like any opiate you gotta stay in control and not get comfortable.
 
Since LDN is an opioid antagonist blocker, any type of pain medicine containing opioids will be rendered useless, unless the person takes a HUGE amount of it... which would be borderline overdosing. So I could take them, but they wouldn't do anything unless I took enough of it, and by then it'd be a dangerous amount.

I stick to Tylenol anyhow just because I'm not a big fan of pain meds and how they make me feel. I'd rather deal with the pain and feel it and understand why I have to take care of my diet and body than just not feel anything and continue to make bad diet choices. I learn the hard way anyhow most of the time. :)
 
hey i just went to a pain management doctor and he wanted to give me methedone. he said it wasnt addictive but my mom got freeked out cause of the stigma. i take half a perc when needed but since i get reverse symptoms i have to be careful of constipation
 
I was on Tramadol for awhile and then decided it wasn't helping. I take a vicodan here and there and sometimes Tylenol 4 to help with the D since it helps stop you up a bit. I know bad way to go about it but it works. I try my hardest to go without anything though and just tough it out but I have the joint pain issues that require something, I've tried 4000mg of Ibuprofen but my Dr said that wasn't a good option to be doing that every day, too hard on the kidneys so I go the narcotic route when need be.
 
methadone

isaacs18 said:
hey i just went to a pain management doctor and he wanted to give me methedone. he said it wasnt addictive but my mom got freeked out cause of the stigma. i take half a perc when needed but since i get reverse symptoms i have to be careful of constipation
Click to expand...

Like I said i've tried most pain meds and absolutley nothing has matched the methadone. Don't get it twisted though, I did some research and it is EXTREMELY addictive. Once you become physically addicted its the same as trying to quit heroin. Thats daily use though and for at least a month or two straight. If you only need it on occasion and you don't have an addictive personality, I say go for it for sure. I'm working so hard to try and get it. The percs just don't cut obstruction pain.
 
sorry

katiesue1506 said:
Since LDN is an opioid antagonist blocker, any type of pain medicine containing opioids will be rendered useless, unless the person takes a HUGE amount of it... which would be borderline overdosing. So I could take them, but they wouldn't do anything unless I took enough of it, and by then it'd be a dangerous amount.

I stick to Tylenol anyhow just because I'm not a big fan of pain meds and how they make me feel. I'd rather deal with the pain and feel it and understand why I have to take care of my diet and body than just not feel anything and continue to make bad diet choices. I learn the hard way anyhow most of the time. :)
Click to expand...

If you're comfortable i'm wondering why you're on a blocker. Is it part of an IBD treatment?
 
dude

drew_wymore said:
I was on Tramadol for awhile and then decided it wasn't helping. I take a vicodan here and there and sometimes Tylenol 4 to help with the D since it helps stop you up a bit. I know bad way to go about it but it works. I try my hardest to go without anything though and just tough it out but I have the joint pain issues that require something, I've tried 4000mg of Ibuprofen but my Dr said that wasn't a good option to be doing that every day, too hard on the kidneys so I go the narcotic route when need be.
Click to expand...

For a while I took Tramadol and come to find out it killed my stomach so bad and then I noticed that it has a major interaction with opiate pain meds. Just never put 2 and 2. That stuff is the worst.
 
If you're comfortable i'm wondering why you're on a blocker. Is it part of an IBD treatment?
Click to expand...

LDN is a newer drug that some are currently using for Crohn's Disease. LDN stands for Low-Dose Naltrexone. It is exactly what it sounds like, its a lower dose of a drug called Naltrexone. It was originally used in higher doses(50mg each) to help drug addicts come off of opiates and heroin. I think they also used it for alcohol addiction. It basically blocks the feel-good feelings that those drugs give you so the drug user no longer wants them. Using a lower dose of the Naltrexone, this blocking effect only works for a couple of hours instead of a whole day. The Low-Dose Naltrexone is taken right before bedtime. This way, the endorphin receptors are blocked for a couple hours while you sleep and the body freaks out and makes extra endorphins to compensate. After the LDN is metabolized in your body, the amount of endorphins left are a normal amount which in turn helps to set the immune system right.

Not many people are taking this drug. But it has only one minor side effect which comes in the form of vivid dreams for the first week of use. It can, however, take up to 3-4 months to kick in. I've only been taking it for 1.5 months so I'm still in pain and still having minor flare symptoms. I think the fact that people would have to stop taking opiate pain killers to get onto the LDN treatment will discourage a lot of people from taking it. I do get really bad joint aches, and intestinal pain... but like I said, I push through it and then make better diet choices :)
 
cool

katiesue1506 said:
LDN is a newer drug that some are currently using for Crohn's Disease. LDN stands for Low-Dose Naltrexone. It is exactly what it sounds like, its a lower dose of a drug called Naltrexone. It was originally used in higher doses(50mg each) to help drug addicts come off of opiates and heroin. I think they also used it for alcohol addiction. It basically blocks the feel-good feelings that those drugs give you so the drug user no longer wants them. Using a lower dose of the Naltrexone, this blocking effect only works for a couple of hours instead of a whole day. The Low-Dose Naltrexone is taken right before bedtime. This way, the endorphin receptors are blocked for a couple hours while you sleep and the body freaks out and makes extra endorphins to compensate. After the LDN is metabolized in your body, the amount of endorphins left are a normal amount which in turn helps to set the immune system right.

Not many people are taking this drug. But it has only one minor side effect which comes in the form of vivid dreams for the first week of use. It can, however, take up to 3-4 months to kick in. I've only been taking it for 1.5 months so I'm still in pain and still having minor flare symptoms. I think the fact that people would have to stop taking opiate pain killers to get onto the LDN treatment will discourage a lot of people from taking it. I do get really bad joint aches, and intestinal pain... but like I said, I push through it and then make better diet choices :)
Click to expand...

I actually know a kid who takes suboxone which has naltrexone for addiction. Hes been on it for like 4 years. Wierd I never heard of it for that use. Cool idea though. I wish I was lucky enough to say my pain was bearable and diet mattered. My body doesn't care if I make the #1 choice on everything. It still acts up just as bad. Let me know if you see any good changes from this. Good luck.
 
I was on percocet which I consider a miracle but now that I'm pregnant I get vicodin.Unless I end up in the hospital where they tell me tylenol will work for the pain and refuse to give me anything but.Excuse me but I'm the one in pain and I know all to well how little tylenol helps with my rotten flare ups.
 
I've been taking Percocet on a daily basis for my small bowel obstruction which by the way barely even takes the tiniest bit of pain away. I called the doc for a refill and I quote he said, "We're gonna turn you into a junky before we fix your Crohns". Could not believe he said that. I asked him if he ever had an obstruction before. No he hasn't. I said if you want you can meet me at the hospital right now and cut this thing out, I just cant take the pain anymore. That way I wont become a junky. Until i'm no longer in pain I cant get through my days without a little relief. People are so f**ked like I created the obstruction or I want it there so I can get Percocet. Ridiculous.
 
skinzdogg said:
I've been taking Percocet on a daily basis for my small bowel obstruction which by the way barely even takes the tiniest bit of pain away. I called the doc for a refill and I quote he said, "We're gonna turn you into a junky before we fix your Crohns". Could not believe he said that. I asked him if he ever had an obstruction before. No he hasn't. I said if you want you can meet me at the hospital right now and cut this thing out, I just cant take the pain anymore. That way I wont become a junky. Until i'm no longer in pain I cant get through my days without a little relief. People are so f**ked like I created the obstruction or I want it there so I can get Percocet. Ridiculous.
Click to expand...

Are you seriously considering having surgery? I mean I hate to recommend it but if you are in constant pain maybe you should consider it. I have had three surgeries and I don't regret any of them. Good luck I hope the pain gets better
 
Skinzdogg,

being on Pain management, after having a bad time with narcotic induced Illeus last year, which was freakin HORRIBLE, I have found that I have a few things in my home arsenal that dictates when I need to head to the ER.

For Pain below a 5-of-10 I use Tramadol and Bentyl. This usually holds me good, unless I am having serious diarrhea and then I use DONNATOL to dry me up and that it does well with the Belladonna and Atropine, plus the Phenobarditol clams the spasms well. If my pain increase about a 6 I use Norco 10/325, now I have an agreement with my Pain Docs, that I don't wait for pain on a 9 anymore, since that Illues issue I almost lost part of my colon, and they want to manage my swelling and pain under-hosptial-conditions from now on, which I agree so much with.....
So if I have Nausea Vomiting and Diarrhea and a pain scale of 7-8, I am in the Hospital without asking questions, that scare was enough for me!

I hope this might give you insight to things possible for you care and pain relief...

peace
 
I'm on a daily regiment of Darvocet and Percocet. Usually I can get away with taking a single pill of each per day, except when I start flaring then the dose goes up understandably.
 
I was waiting for you to say that. In fact I can't believe it took this long. Obstructions are not only painful but can be dangerous - you shouldn't be waiting around for it to only get worse.
 
I'm soooooo stubborn. I was suppose to admit myself and I didnt cuz I hate hospitals. I deff suffered more cuz of it.
 
this is kind of off topic but i was 15 (now i'm 16) when i got my surgury and the gis i see and my doctor friend always says to me how are you in no pain before i got my surgury the 3 days before i was in more pain then i ever felt in my life it was terrible but before i was going to practice and i just ignored it now they said with all the ulcerations i have i should be in the hospital on a morphene drip even after my surgury were they removed 3 feet of intestins a tumor and my appendix i didnt feel pain only when i had all the ulcerations and they said they should have found out i had crohns disease way before i got to the last stages of it with the surgury and because my high pain tolerence i need lots of tests 2 see wats going on in my stomach will i always be pain free like this? or when i get older will my stomach be wore out and i will feel the pain everyone keeps telling me i should be feeling?
 
Springsteenfan21 said:
this is kind of off topic but i was 15 (now i'm 16) when i got my surgury and the gis i see and my doctor friend always says to me how are you in no pain before i got my surgury the 3 days before i was in more pain then i ever felt in my life it was terrible but before i was going to practice and i just ignored it now they said with all the ulcerations i have i should be in the hospital on a morphene drip even after my surgury were they removed 3 feet of intestins a tumor and my appendix i didnt feel pain only when i had all the ulcerations and they said they should have found out i had crohns disease way before i got to the last stages of it with the surgury and because my high pain tolerence i need lots of tests 2 see wats going on in my stomach will i always be pain free like this? or when i get older will my stomach be wore out and i will feel the pain everyone keeps telling me i should be feeling?
Click to expand...

I don't think that you'll feel the pain I also have a very high tolerance for pain and I rarely feel any pain. Like you when I was sixteen I had my first surgery I wasn't in pain at all I was playing field hockey and basketball all the time. My doctor thought that I should be in the hospital in horrible pain but I wasn't. Good luck to you I hope that you feel better soon.
 
I have a very cool pain management doc. He has had a few crohn's patients, so he knows how intense the pain can be. I've had crohn's for a couple of years now, I have ulcers in my large intestine and deep inflammation in my small intestine. They think I might also have AS. Needless to say the pain is horrific at times. He scripts me oxycodone instant release. It's very powerful, but it works wonderfully. I can't stand the tylenol in vicodin and percocet (it upsets my stomach), so he went with the oxy route. It has no tylenol and it works fast!
 
Shihua you're lucky!

So I saw the doc last friday and he said that the blockage opened up so much that surgery is not even on the table right now. I know its still there cuz I still cant eat and im in crazy pain. Im down to 10mg of Prednisone a day and completely off of entocort. Its obvious that im steroid dependant but i have to stop cuz ive lost my mind and it has completely torn my relationship with my girl apart. I know how hard it must be for her. I just wished she could understand a little better how much pred can effect you. So im callin doc on monday and telling him its back almost full force and I still cant make up my mind about Humira. Im scared of it plus i just want this gone instead of it coming back every 6 months.
 
pain meds?? are we in pain with chrons??? SURGERY??? why do we need surgery?? think i got told by GP it cant be cured??!!
 
No, there is no cure for Crohn's Disease... go to your other thread... I posted a little bit about Crohn's to help you out. But yes, Crohn's Disease causes very very painful pain. lol... It sometimes is just too much to handle.
 
I just had a hellish night with pain. Mostly arthritic (shoulders, elbows, hips), but also in the groin area. I'm on nothing for pain at the moment. I was tempted to take Ibuprofen (what I found was the best in the past), but from what I understand it is bad to take with Asacol.

Thankfully it's Sunday, so I slept in a bit. Pretty stiff and sore right now. Took me a good half-hour to "unlock' myself from my sleeping position when I woke up. Having to go to the can is the usual motivation.

Going to have to ask the Doc about this. Not sure what I do in the meantime.
 
I take Hydromorphone for the pain. Its pretty powerful stuff from what I can tell. Less side effects then morphine, and about 7 times stronger.
 
Snatch250 said:
I take Hydromorphone for the pain. Its pretty powerful stuff from what I can tell. Less side effects then morphine, and about 7 times stronger.
Click to expand...

Lucky. I suffer mostly cuz cant get scripts.
 
ridiculous. i just emailed my gi's assistant that im not a drug seeker either, but was still denied. ive had crohns for 19 years and my pain makes me hallucinate at its worst. it feels like i ate a live wolverine and its shredding my small intestine to pieces. i cant sleep all night and then have to either go to work (mechanic) dying and sleepless, or be poor and miss work. coincidentally i am also coverred in tatoos. i work 6days a week and also am an artist so its like having 2 jobs.
he has given me oxycodone, which makes me sleepy enough to go to bed in pain and sleep. but now i ran out and he prescribed it to me 2 months ago. i dont down them like jelly beans, only when i cant deal with the pain. from what i gather here, its time to get a primary. what sucks is im flaring now and they are denying me. last time i checked, a dr is supposed to bring you out of pain. all mine wants to do is cut me apart. im sure thats how he makes the most money. i myself am to busy and have way too many priorities to be a junky.
 
toddadamm said:
ridiculous. i just emailed my gi's assistant that im not a drug seeker either, but was still denied. ive had crohns for 19 years and my pain makes me hallucinate at its worst. it feels like i ate a live wolverine and its shredding my small intestine to pieces.
Click to expand...

That is absolutely the best description i've ever read. I was in the car, with my then 5 year old son next to me when I fainted due to chrohn's pain. Luckily, we were in standing traffic and all that happened was that the car stalled. I have never experienced anything as excruciating in my life.

These days, having been pred dependent, and then suffering pred induced psychosis, I rely on entocort and codeine. Luckily, never had a problem with a blockage, the codeine seems to slow things down without causing any other problems. I just wish I could find something that would deal with the joint pain - that's driving me insane, I'm awake every 2 mins (that's how it feels anyway) all night as every time I move, it hurts.

I can't even have a hot bath as I can't pull myself up out of it - my wrists are too sore. That feels like the final insult, you know? It was one of my great pleasures, sinking into hot water and feeling some of the pain disappear...and now I can't even do that unless dh is home to help me out the bath (ds is 9 - he would die a thousand times over if he had to see me naked :lol: )
 
Donnotel for the win :)

The only pain med I currently have. When I'min the hospital they usually give me Dilaudid (sp?). That shit is the bomb! No pain :)
 

Similar threads

Anna's Bandit
Hospital
Replies
3
Views
371
my little penguin
my little penguin
F
what are the reasons to postpone humira shot
Replies
1
Views
782
Scipio
Scipio
W
Diet during flare?
Replies
1
Views
1K
kiny
kiny
P
Bad flare, what next
Replies
17
Views
2K
Anna's Bandit
Anna's Bandit
N
Loose stool 6-months post-op and diet questions
Replies
0
Views
530
NeverBeenEasier
N

Latest posts

Back
Top