Where is your Crohns located exactly
- Thread starter Second e
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theOcean
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I'm pretty sure my Crohn's is throughout my whole colon. I was in active flare for over a year, and eventually landed myself in the hospital where I was on solumedrol for eleven days. Was sent home with a short taper of prednisone and that was enough to get me out of flare, and then I was placed on Imuran and Humira. Eventually dropped the Imuran and I've been fine with just Humira since then!
I have absolutely no symptoms and my GI said after my last colonoscopy that I healed so well it didn't even look like I had IBD.
I have absolutely no symptoms and my GI said after my last colonoscopy that I healed so well it didn't even look like I had IBD.
Distal ileum but supposedly sparing the terminal ileum. I would have frequent flare ups but pentasa seems to have helped. Some meds may not work as we'll depending on your gut transit time and the ph in your stomach. That's why asacol and pentasa, while both mesalamine, supposedly work on different parts of the GI tract.
I have been in a flare for about 3 years now. Went on prednisone for a long while to get me out of it but it came right back a few months later. I've noticed a lot of people are on Humira so I'm considering that for my next step. The pain is what drives me over the edge. I can deal with not eating or living on liquids, but the pain is ridiculous. My doctor told me there was nothing I could take for the pain. Although I have read that some here have taken pain medication which I know nothing about. Thanks for the input, I hope to hear from more people, it is extremely helpful for me..
Are you on anything that has been sucessful for treating it?
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My crohns was in the last part of the small intestine and the first part of the large , I say was because I had these areas removed last year. I also had some patchy ares of inflammation toward the end of the colon, and ulcers throughout.
Medications wise I used prednisolone and entocort, they both helped symptoms and kept things at bay but I couldn't taper without relapsing.
Medications wise I used prednisolone and entocort, they both helped symptoms and kept things at bay but I couldn't taper without relapsing.
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My daughter has it in both her colon & small intestine, and in her esophagus. When first diagnosed there was barely any un-diseased areas. She has had considerable healing and not her worst spots are bottom of esophagus, her terminal ileum and the top part of her colon ( the part that runs from right to left at the top of her abdomen). You can see the drugs she is on based on my signature below, but something not added in there is suppository enemas which are helping deal with the most troublesome part, the terminal illieum. We also doubt Humira is working. Just had the antibodies test to find out.
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@ second e. I am on a combination of remicade and azathioprine, and it has me (knock on wood) in remission. All my surgeries happened before remicade. I was "blessed" with stricturing crohn's, and it always formed skip lesions. Best of both worlds it seems. The combination of meds that I am on combined with a more sensible approach to working life (quit my previous job that had me working late hours) seems to have made a huge difference.
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Hubby has it in his colon & small intestine the only time he was in remission other than surgery was when he was on prednisone & 6mp.
Thank you! There are some medicines listed here I've never heard of that I can now look into. My Crohns is located in the ilieum. I've had 10" cut out and now there's about 4 more inches inflamed. I was considering more surgery but my doctors worried about me only having 4" left for vitamin absorption. I really would like to avoid having vitamin B12 shots for the rest of my life. Thanks again!
