Where/when do you get your Remicade?

[copeland]

I've gotten my infusions in several places over the last 10 years. My first were in an infusion center attached to a doctor's office. Most since then have been outpatient hospital sorts of things.

I will probably go back on Remicade soon, and I'm looking for a place to do it in my new(ish) home of Asheville, NC. I prefer not to talk about Crohn's at work if at all possible, partly just because I don't share that with everyone and partly because of a lot of the horror stories I've read here about how some employers act (I wouldn't expect mine to be very bad, but still). So... I'm looking for a way to do my infusions on nights/weekends.

None of the hospitals here in town has an infusion center that's open on weekends, but I do know of one that does them in Greenville, SC (about an hour long drive). Since it's only every 8 weeks, I think I could do that trip 6 times a year.

A friend who has another condition for which she gets very frequent infusions (several a week) said she works with a service that has a nurse come to her house and give her infusions. Has anyone done that? I think it might be a little weird doing it at home, and I actually kind of enjoy having some company as I get infusions like you get in an infusion center (or at least people to watch).

Also, Greenville is pretty cool, so maybe I'll just decide that making a little excursion every 8 weeks isn't so bad.

 

[rrhood1]

In Canada we can get our infusions either at the hospital or a private infusion clinic. I love the clinic I go to - large lazyboy chairs, TV, movies, snacks. I spend 3 hours just relaxing, sleeping with no phones, no worries. I hope you can find something like that - maybe the Remicade site has some information on infusion clinics in your area. Take care!

 

[rrhood1]

I just checked the site and they have a support group that you can contact about locations for infusion. Remicade.com. Hope this helps.

 

[araceli]

You can get your infusion at the oncology center, I will not be comfortable doing it at home, in case of an allergic reaction.

 

[ThanksP]

When I lived in the US, I went to a clinic and sat with three other patients in a small room with no tv, no internet, and no blankets.

Now that I live in Costa Rica, I receive my infusion as an inpatient at a hospital. I have my own room, get two meals of my choice, and have wifi and cable tv. I enjoy getting my infusion…it's like a mini vacation.