Why talk down to someone suffering?

[Swirl]

If only I could put someone else without my problems (mr know it all) into my body for a day with my thoughts and pain, I think I would be worship! LOL

This is for those who don't suffer from it but have to upset those who do because they're not doing what you think they should especially when it comes to diet.

Oh and who comes back with something to eat for me that I find on a do not eat list with my condition on various diets. Mr. researcher!!!!!!!!!!!!


When I get this under control, I will rule my world and get back to doing what I have to!!!!!

Now I'm off to youtube to watch animals kill each other with angry loud metal music!!!!!!!!

I'm piss because I was on my way to relocating to another state and living my life on my own. Now I'm stuck home everyday not able to work like the old me but because of my illness now hearing the same sh!t from people. But with new excuse of a disease or two.

 

[Keona]

Wow Swirl.. sorry you're having such a bad day!
I hope you can get this under control so you can rule your world again.
Sorry to laugh, but I thought the youtube comment was funny - I guess because I have been in that headspace before - never tried the youtube idea though.

Hope things are better for you

 

[xX_LittleMissValentine_Xx]

I know exactly how you feel! One of my flat mates friends at uni is always in our flat coz they cook together. I would call him my friend too if I liked him. But for reasons like you just said I don't. Although maybe it is nice that the person you are moaning about does to some research. Even if it isnt all that helpful. My know it all doesn't even know anything about crohns. He tries to tell me how to deal with it how I should be thinking and feeling. He can bog off! (I normally use worse words!) He annoyed me so much the other day, trying to tell me I shouldn't be going back on azathioprine because Its better to be on less drugs. I know that preferably I wouldn't be on any! But I am getting iller. His response to this was 'to be honest your not though' ..... Umm excuse me? are u in my body? do u know how I feel? Made me sooo angry I was on the phone to my sister for half an hour moaning!
Sorry I have kind of hijaked your thread! Anyway my point is your not alone, we all feel like this about some people. Sometimes I do just shout at him! I proved him wrong about coloured pasta the other day! Its not food colouring its tomato and spinach powder! That felt amazing.
I dont rly know the best thing to advise. Probably just to try and keep your cool and vent off to us if you need to!
x x x

 

[orchard archer]

Swirl, way to tell it like it is.
The Cone Heads will Never get it..........................................

 

[markbills85]

i was speaking to a amputee patient the other day and i asked him whats the worse thing people could do, his response when people say "i know how you feel", how could u possibly know how someone feels until you walk a mile in their shoes - this commonly can happenw ith crohns - and its fusterating.

 

[Swirl]

I know exactly how you feel! One of my flat mates friends at uni is always in our flat coz they cook together. I would call him my friend too if I liked him. But for reasons like you just said I don't. Although maybe it is nice that the person you are moaning about does to some research. Even if it isnt all that helpful. My know it all doesn't even know anything about crohns. He tries to tell me how to deal with it how I should be thinking and feeling. He can bog off! (I normally use worse words!) He annoyed me so much the other day, trying to tell me I shouldn't be going back on azathioprine because Its better to be on less drugs. I know that preferably I wouldn't be on any! But I am getting iller. His response to this was 'to be honest your not though' ..... Umm excuse me? are u in my body? do u know how I feel? Made me sooo angry I was on the phone to my sister for half an hour moaning!
Sorry I have kind of hijaked your thread! Anyway my point is your not alone, we all feel like this about some people. Sometimes I do just shout at him! I proved him wrong about coloured pasta the other day! Its not food colouring its tomato and spinach powder! That felt amazing.
I dont rly know the best thing to advise. Probably just to try and keep your cool and vent off to us if you need to!
x x x

Yeah I got that too, the less drugs part lol I'm trying not to talk about my condition anymore with people that's not on the web lol

Going to Occupational Health to do that, wow lol Its better not to put up a fight that's for sure.

What hurts is hearing people say 'I know how you feel' lol That does take on a new meaning now. Not just something you say just to say it. When people say that or hi how are you just to say it and keep walking , I just say 'Yeah' in a low voice lol.

It seems like we are more down to earth and don't use words so loosely.