Will anything ever work?

[Blue]

hey,

so i've been trying different tablets for about 5 months now, and it still feels like i am just as worse as i was before. Its really frustrating.. especially when hardly anyone knows you have anything wrong with you, and those who do never say anything ever. Its like its a taboo topic, but i'd rather peeps actually asked how i was every now then..
And then theres the people that don't know, who say "wow you've put on weight on your face" and i just sit there awkwardly and embarassed..

I find it hard enough to even talk to my family about it, idk why. But its really starting to take its toll on me, no one seems to care, its like everyone in this world is for themselves.

Heck, i don't think anyone i've told has ever asked me how i was. Not even my grandparents talk about it to me.. and they give me awkward looks when im taking the tablets..

tbh i don't know what to do anymore, i guess im slightly depressed but have no one to talk to. Theres ofc more problems than just this, but i guess this contributes a lot..

well, theres my vent. had to say it somewhere.

|foreverAlone|

 

[Jennifer]

My family and friends were the exact same way. Unfortunately after all this time my grandparents still have no real clue what it is and still think its all food and exercise related. They're just dumb. Can't raise people's IQs or care levels. My parents eventually understood and so did my oldest sister and younger brother. Unfortunately again my second oldest sister who also has Crohn's still thinks that medication is useless and that I make myself sick. I guess its a bad thing for me to wish a stoma on her but I just can't stand all the stupid comments.

Once you start being blunt with the people who don't know you have an illness they shut right up. For me they did anyway.

As for your condition, I don't know how bad you are or what your symptoms are or what meds you're taking. What meds have you tired?

 

[Blue]

atm im on 10mg predinsolone (but decreasing the dosage), 6 of those pentasa tablets, 2 azathiorpine tablets ( i think its 100mg), vitamin D and calcium tablets, and soon iron tablets. The prednisolone didn't work after like 5 months on it. Doctor kept on saying when it wasnt working to up the dosage, but it never worked. Now the azathioprine dosn't seem to be working after a month or two, and on top of that thanks to the blood tests I know now im anaemic.. so more tablets! :|

 

[crohn2thebone]

I know what you mean. Everyday at work I have to deal with doing the same jobs as everyone else, only I'm the only one in pain. And when I can't keep up, or have to take frequent breaks, people get mad at me. And yet I still have to show up everyday to pay the bills..

 

[Solicitous Spirit]

Blue - have you tried looking up support groups in your area? It helps talking to people who understand what you're going through, and are going through at least something similar, and you might find it easier opening up to them (as you are doing here) and then maybe find it easier to tell people around you how you feel/to stop being so awkward around you/or to just shove off if they're making you feel bad. And if there are no support groups, jump on forums and have a chat, or start a blog or diary, simply venting how you feel. Maybe if you get it out you'll at least start to feel better...

Crohn2 - have you explained or even mentioned to your colleagues (or simply your boss) that you have issues and may need to take more breaks? If so, and people are still giving you a hard time, tell them to stick it and allow it to not bother you, but if it still does...I know it sounds rash, but would you look for another job? I've had loads of jobs (none seem to be the right fit!) and in every position people have been understanding and accommodating, to the point of looking up what Crohn's is when I tell them I have it and speaking to me about it to find out more... I don't think you should let your work stand in the way of your health - physical or mental - you're just going to end up hating the work, your colleagues, and at the end of the day, yourself - and trust me...that's not a good place to be.