Will it ever stop?

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samusca

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will it ever stop?

The diarrhea. I haven't been diagnosed with Crohns yet but since the beginning of January I've been having diarrhea and using the toilet around 20 times a day. I finally saw my GI doctor on 1/27 and he prescribed me some Asacol (anti inflammatory). Since the 27th I've been consuming nothing but Campbell's chicken noodle soup and Boost/Ensure. The food runs through me. I'm afraid to try other foods because of how bad it hurts.

Will the diarrhea ever stop? Will the pain? I don't sleep much anymore. I wake up every hour to two hours. Also, I feel best when I don't eat because it keeps me out of the bathroom. I had a sigmoidoscopy in October 2008 and they said I had Colitis. It was dormant until the beginning of this year. I'm really hoping that once I'm diagnosed and on medication that the diarrhea will stop. Its ruining my life. Work has been horrible with it.
 
Hey there, you shouldnt be suffering that much. Imodium helps but only a temporary solution. Ask your doctor for Questran, it is a powder and it slows your system down. Alot of people use it. I am sure the butt hurts too, buy some Calmoseptine to stop the burning butt, it really works. Small advice but these work! Try eating some banana's and apple sauce they are natural binders. Hope you feel better soon!
 
That sounds like me 2 years ago, you may need to ask the doc for something stronger.
It may feel best when you dont eat but you have to eat! I tried that and it put me in the hospital.

I hope thing calm down for you and you start to feel better.
 
Welcome Samusca :)

Sorry to hear of your troubles. I guess you'd best get back to the doc and maybe get some stronger meds?

Glad to have you here, it's a great place for support, info and advice :)
 
:welcome: Samusca......I think you should call the doc and let them know what is going on. Like Shaz said, maybe you need a different med. I hope you feel better.
 
Jettalady said:
Hey there, you shouldnt be suffering that much. Imodium helps but only a temporary solution. Ask your doctor for Questran, it is a powder and it slows your system down. Alot of people use it. I am sure the butt hurts too, buy some Calmoseptine to stop the burning butt, it really works. Small advice but these work! Try eating some banana's and apple sauce they are natural binders. Hope you feel better soon!
Click to expand...
Thanks for the advice. I'm calling the doc first thing tomorrow morning. Surprisingly, my bottom does not hurt. Haha. I'll try the bananas and apple sauce. I've been too afraid to try new food for fear of repercussions.
 
Fog Ducker said:
That sounds like me 2 years ago, you may need to ask the doc for something stronger.
It may feel best when you dont eat but you have to eat! I tried that and it put me in the hospital.

I hope thing calm down for you and you start to feel better.
Click to expand...
Thanks! I just want normal bowel movements again. I'm going to see if the doctor can get me in for an earlier colonoscopy.
 
shazamataz said:
Welcome Samusca :)

Sorry to hear of your troubles. I guess you'd best get back to the doc and maybe get some stronger meds?

Glad to have you here, it's a great place for support, info and advice :)
Click to expand...
Thanks! I really like it here. I'm going to get comfortable because I'm going to be here for a while.
 
imisspopcorn said:
:welcome: Samusca......I think you should call the doc and let them know what is going on. Like Shaz said, maybe you need a different med. I hope you feel better.
Click to expand...
Thanks! I'll let you all know what happens after I call the doc.
 
Jettalady said:
Good you are seeking advice, let us know what the doc says, hope you feel better soon!
Click to expand...
Thanks. I called and left a message for the doctor. I'm requesting to see him as soon as possible.

On a side note, won't the fiber in bananas totally wreck my stomach during digestion?
 
Hi there. Hope you get some relief really soon. About the bananas.... only eat bananas when their peel is yellow, not when they're speckly brown.
Yellow = binds. Speckly-brown = too much roughage.
 
violetcreams said:
Hi there. Hope you get some relief really soon. About the bananas.... only eat bananas when their peel is yellow, not when they're speckly brown.
Yellow = binds. Speckly-brown = too much roughage.
Click to expand...
Thanks for the advice. I'll pick up some bananas today. :)

And apple sauce.
 
samusca said:
Thanks. I called and left a message for the doctor. I'm requesting to see him as soon as possible.

On a side note, won't the fiber in bananas totally wreck my stomach during digestion?
Click to expand...

Banana's are not fiber induced. Not for me, some people get D but and others C or slowing down. The have prebiotics and very good for you and safe. Like everyone it is a hit a miss, trial and error. Hope it works for ya, let me know.
 
Fog Ducker said:
That sounds like me 2 years ago, you may need to ask the doc for something stronger.
It may feel best when you dont eat but you have to eat! I tried that and it put me in the hospital.

I hope thing calm down for you and you start to feel better.
Click to expand...
Welcome! I have to agree with Fog Ducker on the not eating. I didn't eat for 5 days, went in for my GI check up and they admitted me immediately! Luckily I was only there a few days, but it still stunk! Good luck with getting in to the doc sooner and getting feeling better!
 
Jettalady said:
Banana's are not fiber induced. Not for me, some people get D but and others C or slowing down. The have prebiotics and very good for you and safe. Like everyone it is a hit a miss, trial and error. Hope it works for ya, let me know.
Click to expand...
I'm hoping for a slow down then. Haha.
 
Nic said:
Welcome! I have to agree with Fog Ducker on the not eating. I didn't eat for 5 days, went in for my GI check up and they admitted me immediately! Luckily I was only there a few days, but it still stunk! Good luck with getting in to the doc sooner and getting feeling better!
Click to expand...
Thanks! I spoke with the nurse today and they prescribed me Prednisone. I just picked it up. I'm going to start it tomorrow. Also, I lucked out or I should say lucked in. I'm going to see the GI doctor on Monday for a colonoscopy. Wish me luck! Thanks for all the support! :)
 
Good luck mate hopefully they can pin point ya problem an work out a sollution too bring it under control
 
Soooo...how are you feeling????? I am sure that the miracle of Prednisone will work and make you feel better!!! Sue
 
Rob said:
Good luck mate hopefully they can pin point ya problem an work out a sollution too bring it under control
Click to expand...
Thanks. I'm hoping so too. I'm really looking forward to finishing the colonoscopy and getting the results. I'm not looking forward to the day of not eating. Its always so hard for me.
 
Sue-2009 said:
Soooo...how are you feeling????? I am sure that the miracle of Prednisone will work and make you feel better!!! Sue
Click to expand...
Since taking the Prednisone I am feeling really good. I'm not quite sure what its doing but its working. When I'm taking it and its effects are going I don't have to use the toilet as much as I was using it before. The only downside right now is I can feel when the effects of Prednisone wear off. I take the pills around 8am and around 7 or 8pm I can feel the effects waning. So my toilet trips rise in frequency. Its still better than when I wasn't taking it. I just want to find out what's wrong with me so we can start fixing it.
 
Good deal on some normalcy with the bowel movements. Pred is an animal all of it's own. Wired me up a lot, tons of energy, then the crash.
I hope you get some firm answers soon and find remission quickly.
 
Welcome!
when I read your first post, I thought to myself you should try prednisone. then i read your last post and see that you are!

you might try spreading out doses so you talk half in AM and half at night. that's what i did when i first started on 40mg/day.

good luck with your scope.
 
Hello, I'm back. My account was deleted because they thought it was spam.

I had my colonoscopy this past Monday. The procedure went well. The doc says I've got ulcerative colitis. My biopsies should be back within 7-10 days. Then I'll meet with the doc to discuss a game plan.

I can't wait to see the doc. I've noticed an unusual amount of bright red blood in my stool in the past few days.
 
I am glad you made it through the colonoscopy, I'm sorry you have UC.:(...If the blood loss doesn't improve call the doctor. Did he mention that you may need to take some iron and B12 to help with anemia?
 
imisspopcorn said:
I am glad you made it through the colonoscopy, I'm sorry you have UC.:(...If the blood loss doesn't improve call the doctor. Did he mention that you may need to take some iron and B12 to help with anemia?
Click to expand...
Thanks! I don't really remember what happened after the scope. The sedative worked really well on me. I recall the doc saying he wanted to speak to me afterwards and all I remember him saying was that I had ulcerative colitis. After that, the rest is a blur. I've just been waiting for the biopsies to come back so I can see him to figure out what we're going to do next. He did mention taking supplements before the colonoscopy. I've been on a daily multivitamin since. I will give him a call if he doesn't contact me within the 7-10 days.
 
Am sooo glad you have a diagnosis finally. Sorry it is UC BUT now you can find a treatment that helps YOU rather than suffering as you have been!!

Truly hope things start to improve for you as each day goes by. Welcome to the forum!

((hugs))
 
For me personally, I cannot drink soup broth or even have too many liquids at once. I use to LOVE drinking water all day long. I can't any more. It makes me live in the bathroom since it goes right through me. I found that Campbell's® Select Harvest® Healthy Request® Chicken with Whole Grain Pasta is good to me as long as I do NOT drink the broth.

I'm sorry about your diagnosis but at least you know what you are dealing with now. I wish you the best.
 
Hi Samusca
Good news now you now what to deal with!
Good luck with the Preds, theyve saved my life this last 4 weeks! Wished I'd have done it 5 years ago.
And it's true, if you don't eat, you get more diarrhea! How? I dunno, but not eating nearly killed me!
My friend has UC and is doing really well on Pentasa and Preds.
Joan
xx
 
i am back and i dont think im getting any better. i havent spoken with my GI yet. hes on vacation til feb 22. im scheduled to see him feb 24. i contemplated going to the ER last night. i called Kaiser's advisory nurse and explained my symptoms and she advised me im not in an emergency state and if i went to the ER the doctors there would not be able to provide any kind of immediately relief for me.

im still having diarrhea every single time. on feb 15 between the hrs of 12am to 12am i had 25 bowel movements.

for today feb 16 its not 12 am yet and ive had 28 bowel movements so far.

every single time i go its always diarrhea. ive been eating mainly chicken and rice, soup without drinking the broth and drinking ensure. ive also been eating apple sauce.

the asacol and prednisone arent working for me. i dont know what to do anymore. i called in for work yesterday and today. i have to make it for tomorrow. i feel like if i dont get relief soon i will most likely lose my job and with it my medical benefits. then ill surely be screwed even more.

ive been on asacol since 1/27 and prednison since 2/3. shouldnt i find relief by now? is the advisory nurse wrong? should i go to the ER? i dont know what to do.
 
Yikes Samusca! Sorry it is so bad right now!!! I don't really have any advice for you because if you have to wait to see the doc then I guess you have to wait!? I dunno, just wanted to say I hope you get better soon!!!
 
thanks shazamataz. ever since being diagnosed ive been doing plenty of research and most sites say if a person is having more than 10 bowel movements then its an emergency. i honestly swear ive been having at least 20 everyday since my flare.
 
Wow, that's a LOT! Maybe an emergency trip wouldn't be a bad idea, especially if you are feeling really weak - may be dehydrated?
 
thats the thing though, i informed the advisory nurse on the phone before actually driving to the ER and she said since my symptoms havent changed im not in an emergency state. i spent today drinking pediatlyte and water. if i was dehydrated which i think i might of been im feeling better now. i just hope the nurse/doctor isnt wrong.
 
Nice to 'see' you samusca! :) It is very frustrating because it seems you have to be pretty much dying before you can get any sort of urgent care!
What treatment are you on again? How long do you have to wait to see the doctor? I can't go back and look after starting this reply!!!
 
i figured my new friends and family should know what i look like.

ive been taking asacol since 1/27. i started prednisone on 2/3. the doc is on vacation til feb 22. my appt is scheduled for feb 24.

my results for the colonoscopy are that i have colitis through out my colon.
 
Hmmm, I would have thought the pred would be working by now? Sounds like a rough time for you! Good news is that your appointment isn't THAT far away? I know it feels like ages but hang in there, only a few more days!!!
 
Sorry Sam.....If you are feeling really bad, make a trip to an urgent care or ER. At least you could have some blood work done and they could see how much blood loss you have....BTW, it is nice to your face.
 
Wow Samusca, sounds like you are having a really hard time. Does your doctor not have a locum or stand in that you could see sooner than the 24th?
 
I finally heard back from the stand in doc. He is requesting I up the prednisone to 60 mg a day. Also, he wants me to get an ultra sound for my liver. I'm scheduled for the ultra sound tomorrow morning. My blood tests seems normal except for my liver is going through something. They're requesting another blood test after the ultra sound. I feel a bit better knowing I'm getting more work done.
 
Fog Ducker said:
That sounds like me 2 years ago, you may need to ask the doc for something stronger.
It may feel best when you dont eat but you have to eat! I tried that and it put me in the hospital.

I hope thing calm down for you and you start to feel better.
Click to expand...


Yyyaaa ... sounds like me. Before my surgery last year I did alot of fasting particularly on weekends ... Can only do that so much before you start drastically dropping weight and your GI raises an eyebrow.
 
Oh Samusca, please hang in there! Would it maybe be useful to split your pred doses? I'm not sure about this but perhaps it wears off by the evening? I know when i was first on it I took some in the morning and some at night.

I really feel for ya buddy - I'm sure the doc will be able to do something!!!
 
Hey sam

sounds a bit like the flare I'm goin thru ATM
I was going 30-40 times a day before being admired too hospital
I was on 50mg pred a day and yea nites and early mornings seem the worst
I started taking a drug called lomotil - it's a bit like imodium but seems stronger bit harder to get than imodium but yes it worked for me I dropped down to about 8 bm day
problrm was it worked so well I got the C pretty bad so be careful with it an speak too ya gp or pharmacist

in hospital I was given hydrocortisone which worked really well an now I'm back home again on pred again

one idea u could possibly try is spread the pred out over the day? 30 in the morning and 30 in the afternoon? Just an idea

hope somethin works for ya soon - keep on pestering ya dr as it's u suffering not them
 
Sam, are you taking your pred. all in one shot in the morning or is it spread throughout the day? If it's all in one shot maybe talk to your doc. about spreading it out ...
 
I was told by the pharmacist to take all the pills in the morning. I'm going to spred the 60mg out today. I just took 30mg. I'm going to take the next 30mg in the afternoon. Hopefully, splitting it up won't hurt me.
 
Samusca, hang in there, 60 mg is alot but it takes some time to kick in. You have something for pain? I would talk to your doctor about getting on Remicade or one of the biologics to help control the pain.

Many of us feel like you do at some point, but you have to fight! I mean it, I know your feeling frustrated and want the pain to stop, it will, try not to stress ok? (HUGS)
 
Hang in there Sam! I know how you're feeling, I'm feeling really down today, wondering if I'm ever going to be feeling better again....It's tough, especially right after diagnosis, the docs have to figure out what will work for you and what won't, it can be a yucky time. But they will find something for you and you will get better!! Keep your head up!!
 
samusca said:
I was told by the pharmacist to take all the pills in the morning. I'm going to spred the 60mg out today. I just took 30mg. I'm going to take the next 30mg in the afternoon. Hopefully, splitting it up won't hurt me.
Click to expand...


I would check with your doc or atleast talk to the pharmacy to make sure it's ok to split them up. Pred. is a strong drug and you don't want to mess with it.

Just hang in there man. We've all been through the wringer and it always amazes me that however bad you think you have it or some one else even has it, you always find someone who is even worse off.

As far as dealing with pain, heat pads are fantastic. Our reclyner heats and we also have a regular heat pad. When i'm in a flair i flop in the reclyner with both of them turned on, blankets and pilllows piled on top. I also take care of what i'm eating (when i can). It's tough relearning your body when you end up with something like Crohns ... But it's managable, just stay tough.
 
Thanks everyone. I'm currently sitting in the waiting room at the ER. I've tried contacting my GI with no luck. I've left several messages. Hopefully the ER doc can help me. Wish me luck. Thanks for all the support.
 
Good luck mate
exagerate a lil if need be
hell most er's are full of time wasting junkies wen ppl that really need help get fobbed off
so really let em know ya in pain etc don't jus say o it's ok ATM but....
Say - nah it f'n hurts and I'm in pain an discomfort
tell em eveything ab be persistant
ask why they are doin certain tests and make sure u get copy of results and understand them

good luck Sam
 
Im glad you went to the ER. I was really worried for you. Hope something came of your trip to hospital. Rob's advice is good advice (see above). Also, if you have someone who can go with you to appointments and fight for you that can be helpfu. Keep us posted please
 
wow samusca, It sounds like your having a really hard time.
I'm glad you have gone to the ER, hope you get some help soon!
 
I've always had great luck going to our ER. We have a decent hospital and if you tell them it hurts, they bring the morphine or better. No messing around. They seem to understand Crohns patience. Good luck! Hope all goes well.
 
Hello everyone. Thanks for all the support. So the ER took me in immediately and I didn't have to exaggerate my symptoms. Guess I was doing pretty bad. They ER doctor got a hold of my GI and my GI recommended I stay the night. So I stayed and I'm here still. They're not giving me any food. I've been on an IV and they've been giving me prednisone through the IV. I took something called lomotril, someone mentioned it in a previous post. I've had 7 bowel movements and they've pretty pretty solid so I'm feeling pretty good about that. They're keeping me another night and will probably release me tomorrow. I'm glad I finally went to the ER. I feel really good right now. They're taking good care of me. The doctor also mentioned they're going to start me on an immunosuppressant once I get out. I don't remember the name but it starts with an "I". So, I'm doing good everyone. Thanks for all the support. It really helps!!! :)
 
I feel as miserable as if I was at home. When I don't have the prednisone in me I feel like crap. I use the toilet so often its not even funny. I can't do it anymore. I'm requesting for the doctor and I'm asking to be checked out. I'm done. The hospital has done nothing for me but waste my time. I didn't sleep a single wink last night. They won't let me eat. I feel miserable. They have me hooked up to an IV and all I've been doing is peeing or pooing whichever comes first. I'm still having diarrhea and its still bloody. I'm done. I can't do this. If I'm going to be this miserable I'd rather be at home where I'm comfortable. Once I leave and get home I'm calling the hospital and complaining. They didn't do anything for me that I couldn't have done myself. What a waste of time. I'm so pissed right now.
 
They should of put you on hydrocortisone iv
normally takes about 2 days too kick in
once it does. U will normally really notice the difference

lomotil is prettty effective in slowing the bm's, jus hav becareful how many you hav

I know the hospitals are depressing etc but ya need hang in there, give it sometime
ATM your in the best place to get things done, example- if your still not improving they will organize a scope etc an there won't be a waiting period
as u are already admitted
plus they hav access to many diff types of medication too try

I was in hospital for 16days was worth It, as I now about too start a new drug trial :)

hold in there buddy an give them sometime
 
I'm home now. They weren't giving me any new medication. They gave me the same ones I was taking. Whenever the prednisone ran out of my system I would begin to have bloody diarrhea. They gave me lomotil and it helped the first day but not today. I requested to leave and they let me. They weren't doing anything to relieve my symptoms. The hospital visit has been a complete waste.

Guess what else happened? I was scheduled to see my GI today. The nurse at the hospital told me they cancelled my appt since my GI knows I've been there. I told them no and said I needed my appt. They tell me its been booked for 3pm today. Come to find out it was at 130pm. So I missed seeing my GI and I haven't seen my GI since the 8th. I called and complained. I'm switching GI doctors. He hasn't called me once at all even though I've called for my GI several times before I went to the ER.

Wish me luck guys. I feel I may never find relief until I find a GI that cares about me.
 

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