Wondering about Olestyr

[Peggy H]

Hi,

Wondering what experience people have had using Olestyr long-term for Crohn's or their IBD. How long have you had success with it?

I've been on 2 grams of Olestyr daily for about 3 years now. It's keeping the diarrhea under control, but i can't miss a dose or my gut explodes. And I'm very careful about what i eat. It doesn't seem to do anything about slowing the scarring in my intestines, but it does control the symptoms, so I've been happy with it.
Thanks.

 

[D Bergy]

It is my understanding that it is not a Crohn’s treatment. It does slow down the intestines and block cholesterol. It originally was a cholesterol medication. Its the only medication I take.

I take four grams once a day because my ileum was removed and a pretty important valve is no longer there. I don’t use it if I am staying home.

It works well in preventing that urgency. Well enough that I could drive a mail route & become a volunteer driver for our county.

It isn’t capable of helping with Crohn’s in any other way that I know of.

Dan