Worried about starting Remicade

[hugs3656]

hi and help please,
i have crohns and i am on methrotrexate 150mg a night and have been since jan 11 went to hosp last week and my test didnt come back to good, been told that thay are going to start me on remicade (inflixmab) when thay get goverment funding about 3 weeks had test done so i can start asap, but i have also read about hair loss worrying me and all the other stuff that comes with it any help how you feel after can i drive home after haveing this !!!!! no clue thanks
i put the serious as i am so frightened x

 

[Norwegiangirl]

I was on Remicade 5 years ago and the only side effect I had was fatigue... Im starting on Remicade again next week and I must admit I am a bit worried about what side effects I might be getting this time.. Are you gonna be on Imuran too? My GI tells me that Remicade works better if I am taking Imuran at the same time..
Regarding loosing hair.. I did loose a lot of hair when I as on Imuran 5 years ago, so if I stopped taking them since I didn´t wanna get bold

All in all Remicade worked really well for me the last time and I have since 2007 up on till January this year been out of any medication..

Good luck!

 

[hugs3656]

bless you and good luck to yourself also, its taken a week to right this, i have never been so frightened in all my life, havent got a clue about the imuran, all that happend was i was sent for a tb blood test and cheast x ray, i got to go 1hr 50mins away to have it done, i hate needles, i got more frightened looking in to it, its crazy coz its a 50/50 thing thanks very much x

 

[rygon]

Ive just started Remicade (3 shots so far) and have found it amazing. A lot of crohns drugs will give hairloss as well as other things as a side effect. I havent had a problem at all.
I think its worth trying first to see if it works. If it does, great. If it doesnt, try something else

 

[Lisa]

I've not had noticeable hair loss - been on Remicade since the fall of 2005.....it has been pretty much a life saver as it caused my fistulas to heal finally.....no other real side effects from it either - I don't get sick more than anyone else in the family - if anything less so.....

 

[SarahAnne]

No hair loss or nausea for me.....no little colds or coughs either. The very worst side effect I think I've ever had was one night of arthritis pain in my knee. Loving my Remicade! I think a lot of the side effects might be brought on by a combo of the Remi and other drugs (Imuran, etc.) but I'm not on any of these, just the remicade and prednisone for the Crohn's right now.

 

[hugs3656]

i am on
azathioprine 50mg x 3 a night
prednisolone 30mg a night going down by 5mg a week
omeprazole 40mg a night
folic acid 1 a week 5mg tramado 50mg 4 a day
and nystan, thay just stoped pentasa !!!

 

[muppet]

Sarah, my daughter, had a terrible experience with Remicade, but severe reactions like hers are very rare. It seems to really work well for a lot of people, though 5 years seems to be the maximum for most. 5 years of no symptoms may well be worth it, though. I've been afraid to try it myself.

 

[hugs3656]

Sarah, my daughter, had a terrible experience with Remicade, but severe reactions like hers are very rare. It seems to really work well for a lot of people, though 5 years seems to be the maximum for most. 5 years of no symptoms may well be worth it, though. I've been afraid to try it myself.

didnt soud like your daughter had a good time, hope shes ok nowx

 

[beth]

methrotrexate 150mg a night

I think you mean azathioprine?...

 

[Kenny2hm]

I'm here at the infusion clinic receiving my dose right now. Due to the hot summer I got very dehydrated and my last dose didn't last as long as it usually does. I had forgotten how bad the cramps and stomach pain was before remicade. Any side effects, unless life threatening, are not as bad as the normal effects of crohns on your body. You can always stop the treatment, but once you start to feel better you won't want to. Good luck with your treatment, don't stress out about it. Bad side effects are rare.

 

[hugs3656]

I'm here at the infusion clinic receiving my dose right now. Due to the hot summer I got very dehydrated and my last dose didn't last as long as it usually does. I had forgotten how bad the cramps and stomach pain was before remicade. Any side effects, unless life threatening, are not as bad as the normal effects of crohns on your body. You can always stop the treatment, but once you start to feel better you won't want to. Good luck with your treatment, don't stress out about it. Bad side effects are rare.

thank you very much and good luck with whats going on with yourself, cramps, oh my days loloo:

 

[Grumbletum]

Hi Hugs
Seems we are on very similar treatment plans! They just took me off Mesren (mesalazine) which is similar to Pentasa. Re: the driving, you shoul be OK unless they give you an antihistamine before the infusion, which some places do and if it's one that will make you sleepy or not.

 

[hugs3656]

Hi Hugs
Seems we are on very similar treatment plans! They just took me off Mesren (mesalazine) which is similar to Pentasa. Re: the driving, you shoul be OK unless they give you an antihistamine before the infusion, which some places do and if it's one that will make you sleepy or not.

yer it look that way, have to keep an eye on your posts, you a head of me, good luck