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Crohn's Disease Forum

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  1. K

    23andme IBD Study

    Nonutsnoglory, I had already checked out the link and it said existing 23andme customers can't participate in the study but we can contribute by doing the surveys. They're just referring to their own surveys, which I've already done. I hope my data will be factored in to somebody's research to...
  2. K

    23andme IBD Study

    Darn, I am a current 23andme customer and therefore can't participate. There is obviously a lot to learn about the genes involved in Crohn's disease. According to 23andme, my genetic profile shows I'm at below average risk for developing it.
  3. K

    Surgery date

    The doctor sent me home today after four days even though I still hadn't passed any gas. I had gone on full liquids yesterday and a general diet today but nothing had come out yet. I was growing quite uncomfortable and was surprised when she told me I could go. Within about two hours of...
  4. K

    Pelvic pain

    I had my surgery last Friday but don't know the details because my surgeon went on vacation the next day. The doctor covering for him said he did a resection and two stricturplasties but she didn't know about any adhesions. I guess I will have to wait until my follow up appointment on the...
  5. K

    Surgery date

    Yes, they've had me up walking. I will ask them to get me up more. I have cramping in my lower abdomen so I have something to pass, it's just not quite there yet and obviously my muscles are quite sore. It’s hard to push it out. Thanks to you both for the advice.
  6. K

    Surgery date

    Well, I had surgery yesterday and I'm feeling pretty well today. Unfortunately, my surgeon went on vacation today so I wasn't able to talk to him after and get the details. The doctor who did his rounds said she didn't know much but it sounds like my one long stricture was actually several...
  7. K

    Med alert bracelets

    Thanks, Malice67. That's a great idea for people with changing meds.
  8. K

    Surgery date

    Hawkeye, I was told the same thing by four different doctors: my GI doc, second GI doc, my primary doc and my surgeon. I guess I'm stubborn. It took me getting to the point where I couldn't even walk before I grasped the reality of it. My surgeon thinks there may be an adhesion from my...
  9. K

    Surgery date

    Okay, thanks, hawkeye. That's what I was doing before I started on liquids so I'll know how to do that afterward. That's the same thing my dietician told me: under 10 grams/day. When was your surgery and how are you doing now?
  10. K

    Surgery date

    Thanks, I will.
  11. K

    Surgery date

    Hi UnXmas. Thanks for the reply. The liquid diet is to try to get my inflammation down. The last solid food I ate was a danish Thursday morning and then my doctor put me on full liquids because I was having so much pain I had to go to the ER. By Friday I couldn't even take a single step and...
  12. K

    Pelvic pain

    I went for a surgery consult and I have resection surgery scheduled for Friday. The surgeon is speculating that my intestine may be fusing to my abdominal wall and that's what's causing this pain.
  13. K

    Question about eating with a stricture

    I'm having resection surgery this Friday for a stricture. I think it's been forming for several years and I've difficulties with raw veggies, especially, but it's only been the last few months that it's gotten so bad I've gone on a strict low residue diet. I've been working with a dietician...
  14. K

    Surgery date

    So, a couple of months ago I naively asked, "Who would elect to have a resection?" I've since learned that "elective" doesn't mean I can elect whether to have it, just somewhat when I will have it. My surgery date is this coming Friday. I'm having an ileocecal resection. I'm not thrilled...
  15. K

    Pelvic pain

    So I spent several hours at the ER today and I had a CT scan. My GI doc was concerned that I may have an abscess or something because of the new, recent pain that I'm having. I've been having problems for several months due to a long stricture in my TI, causing a constant firmness and soreness...
  16. K

    Med alert bracelets

    Another great idea. I have an iPhone. Thanks, Carrie!
  17. K

    Med alert bracelets

    Thanks for the info, Cross-stitch gal and LodgeLady. I ended up at the ER most of the day today but I will definitely do this tomorrow!
  18. K

    Med alert bracelets

    Hmm, I think a card sounds like a great idea. I'll make myself one tomorrow. I like the idea of the online health record but wonder how you can be sure you're data is secure.
  19. K

    Med alert bracelets

    Wow, grumpy1, I'd say you need one! That's some list of allergies. We all have sulfa so that must be pretty common. Yeah, I think it's a good idea. I've done some browsing online and there are so many styles to choose from. Not like when I was a kid.
  20. K

    Med alert bracelets

    Not to mention being on Imuran and Remicade.
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