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Hello, I'm similar in that my bloods are almost always normal and I believe that this caused a significant delay in me getting scans and treatment sorted out. I would suggest asking your GI to perform a fecal calprotectin, this is a much more sensitive tests for inflammation and has the added...

I don't know the exact science or the specifics of how they do it, but they can look at the samples with a microscope and look for the inflammation, usually they can see the "pattern" of inflammation and use this to determine the most likely cause. When I've had biopsies they've come back with...

Hello and welcome The biopsies taken should help to determine which type of IBD you have and work out the best way forward in terms of treatments. Although for some people diet is a factor in triggering symptoms, food does not cause ibd and is not always linked to flare ups or pain. In some...

They give ultrasounds away like sweets here, so that should be really easy to get if an mri isn't possible. To be honest if they take on board what the physio said to me in the way that I think they will then I don't think an mri or rheumy referral should be too much of an issue, it's just a...

Thanks again Maya! My old xrays were done by an old gp practice and I've changed doctors since then, so it might be a bit tricky to get hold of those, but if my memory is correct data protection means they should have kept them and should keep them until I'm 25. But I'm hazy on that stuff. I...

Thanks both. I've been chatting to my mum and we can't actually remember the rheumatologist I saw really examining my actual joints.. He looked at my hands and said they didn't seem swollen (which they aren't 100% of the time) and then started poking me, looking at the pressure points they...

Thanks MLP My joints seem to flare up whenever they feel like it, sometimes when the crohns is calm, sometimes adjacent to crohns flares. Usually worst when the temperature is changing or when I've pushed myself too far. I've had blood tests which they said were for AS, but I'm not sure what...

This is one of the reasons why we want to approach my IBD team, as they *should* be able to give an opinion on whether they think there is SpA or entropathic arthritis (that's what my IBD nurse has mentioned in the past) and either adjust my treatment to encompass that or *hopefully * get a...

Crohns and anesthetic aren't a great mix, when I had my recent surgery they told me the anesthetic might make me flare so if you had a general anesthetic then it could be causing symptoms to worsen. The general mental and physical stress can also cause crohns to flare up. The rules about...

It's a wide spread rule with all surgery and biologics, partly because of a risk of post op infection. It's also a rule that you shouldn't have it for two weeks before or after any general anesthetic because they interact.

Hey all, So I managed to go see a GP this morning. For the immediate future we are upping my gabapentin as this has helped my pain in the past so there's a good chance upping the dose will help make me more comfortable. I'm going up to 300mg three times a day but have been told that if it's...

Hey Maya, I'm really hoping so! I have to get the gp to agree to refer me to a rhuemy but the physio I saw today clearly knew a lot more about fibro than the gp does so hopefully they will listen to him and take his word for it that it isn't that. The most painful joints are my hips and knees...

Hey guys, I'm still in a fair amount of pain with my stomach and suffering with nausea, but I am seeing my IBD nurse at the start of December and hopefully she will have a plan as she was going to speak to my consultant regarding next steps. I had an entyvio infusion the day after I left...

Is there any way you can get a second opinion? I have always been told that ulcers = inflammation. They are common yes, but not in the colon or small bowel, they are usually caused by some sort of on going inflammation like UC, Crohns or diverticulitis. Its possible that there is some...

The pip process is a tricky one. I personally didn't score enough to get it but that was before I got as sick as I am now. One thing to remember is that you must tell them what you need. So for example, say "I am unable to drive because of my medication so I struggle getting to appointments"...

In that case I would say that what you are getting is probably fair, if my memory is correct its not too far off the maximum weekly amount anyway. For some of us it just becomes impossible to work, personally I have a variety of conditions and have been advised its just not good for me to try to...

Hello, welcome to the forum From what I've heard that is a reasonable amount. PIP is supposed to be for adjustments needed such as hand rails or wheelchair adaptations, or to pay someone as a career to look after you. It's not supposed to be a wage or a sole income, if you are unable to work...

Hello and welcome to the forum, I'm sorry you're poorly but I'm really glad you've found us. You don't sound selfish at all, that is exactly what we are here for. Please have a look around and make yourself at home. If you have any questions please feel free to ask us and you are always...

Hello, welcome to the forum! I'm glad things seem to be stabilising for you. You mention you are still fatigued, when was the last time you had a full range of blood tests? There are many things that can cause tiredness and deficiencies in Iron, B12 and vitamin D are included in this. These...

Hello there, Azathioprine was good for me at the start but unfortunately I became unwell with side effects after a few months, I then tried Mercaptopurine, which really helped my symptoms but unfortunately made my white cell count far too low so I had to stop taking it because of infection...