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Crohn's Disease Forum

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    Coronavirus/Covid-19

    I'm on stelara. Also worried. Although stelara seems to be less immunosuppressive than other medications?
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    Xifaxan

    I am on my first round. Seems to be working well. It's weird treating this, as I feel like when I had a real crohn's flare diagnosis it was easier to treat. Now I am not sure if I am treating the IBS or IBD. I hope it still continues to work after I discontinue the xifaxan.
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    Xifaxan

    how is the xifaxan working?
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    Xifaxan

    I have recently had symptoms of what I thought was Crohn's (gas, bloating, cramping, soft bowel movements). MRI shows no active inflammation. Tapering on Uceris. My doctor says I should try xifaxan. Anyone have experience with this drug?
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    What meds have failed before you starred stelara?

    Interesting. Only one injection per year?!
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    Repeat Loading Dose of Stelara

    So apparently the MRI showed no signs of inflammation. Doc thinks it may be SIBO. Although I am thinking maybe these symptoms are caused by the Florastor probiotic i've been taking.
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    Stelara and Neuropathy

    Yeah, mine resolved. Don't think it was stelara. I think it is most likely the Flagyl for you.
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    Stelara Cancer Risk

    I've been on stelara for over 2 years. Does anyone know if Stelara has an increased cancer risk compared to other biologics. And if so, is it worth switching to an anti tnf. Stelara is the only drug I tried.
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    Repeat Loading Dose of Stelara

    Just got the MRI yesterday. Anxiously awaiting the results.
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    MRI Enterography

    I am scheduled to undergo an MRI with gadolinium for a recent crohn's flare. I am having some reservations since I already had 2 MRI scans before. Should I ask my GI to schedule me just with oral contrast? I've just been reading various reports of long term toxicity with repeated MRIs. Any...
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    Reloading dose of Stelara....any success?

    Chronic_Ramgles, any luck with the reloading dose of stelara?
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    Repeat Loading Dose of Stelara

    Hi Everyone, Just want to say I appreciate this site as an amazing resource! I have been on stelara for 2.5 years, and it has worked amazing. Over the last 2 months I have had a flare. Few months prior to the flare I was on augmentin for a sinus infection. Previously I responded very well to...
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    Stelara stopped working

    I am beginning to wonder whether I have lost effectiveness from the Stelara. I have been on Stelara for 2.5 years. Last 2 months started getting symptoms. I was previously on every 4 weeks, then de-escalated to every 6 weeks. Getting MRI this coming week to see where inflammation is currently...
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    Crohn's Flare with Normal Inflammatory Markers?

    Symptoms have improved markedly on uceris, but still have bowel sounds and gas. Previously that has been a sign of active disease. Maybe adding oral prednisone would help? Definitely no longer having urgency and diarrhea like i did before.
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    Eye Problems / Iritis

    You would know if you have iritis. Decreased vision and light sensitivity are the main symptoms.
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    Entocort Losing Effectiveness

    Thanks. The uceris is helping, but I feel like previously when I have active bowel sounds and gas that is a sign of active disease. It's weird but the BMs have become less frequent and mostly formed ( a little soft). Maybe adding some oral prednisone to uceris would help?
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    Entocort Losing Effectiveness

    I noticed that even though most of my symptoms have gotten better, i still have some gas and bowel sounds. Previously when the entocort worked wonders I noticed that all my symptoms went away. Do the bowel sounds and gas mean that it is still active. BMs are mostly formed and 2 to 3 per day. No...
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    Heard from Doc today

    any advice about starting scd? been with crohn's for two years, on stelara. Just recently flared, seems like a mild/moderate flare. Now thinking about getting serious about scd. From my past experience in remission, I didn't really feel like food was associated with flare/exacerbations. The...
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    Where to start?

    So I am finally thinking about starting a diet approach. I have been in remission for 2 years, and then recently had a flare. Seems like the flare is in my colon because previously entocort worked, and now only uceris works, which targets the colon. Luckily it seems like the uceris is...
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    Entocort Losing Effectiveness

    Hm. Ok. I'll see what the GI says.
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