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We were just at the optometrist for eye exams yesterday, my son has Crohn's and the Dr. asked if he was having any problems with his eyes (he's not), she said that when inflammation is active the eyes can also get inflamed, she went on to say that when this happens to just come in for some eye...

That was my thought EXACTLY.

Very good news Rhonda, what a relief to be going in the right direction hey. My son also has a fistula and has been on LDN and SCD since August, his is also slowly getting better, he has a couple of drainage holes and fistulas and one is completely dry and seems to be closing up, so a big high...

No, a fistula will not show up on a colonoscopy, you need an MRI to do that. (At least that's my understanding according to both pediatric GI and MRI tech). You're keeping it really clean which is most important, and hopefully you caught it before it develops a fistula (sounds like you have)...

Hi RedSoxFan Sometimes an openminded GP will prescribe the LDN rather than a GI, especially if you can take in the study from Penn State university and search this forum and others and print off some info on how others are doing on it. Also, you can ask him if you can at least try it for...

Hi Heather, Welcome to the forum, I have a 16 year old son that was diagnosed earlier in the year with the exact same problem, so I know how you are feeling, and I'm sorry that your family is dealing with this - not what a teenage boy should have to be thinking about. Here's a quick recap of...

Mitch (my son) took cipro and flagyl for 3 months, he was on 2 x 500 mg cipro and 2 x 250 mg flagyl per day. The flagyl really messed with him. He was on it for his abscess/fistula. He did have less pain with the abscess when he was on it, but it never completely cleared up and when they...

Birds, the small ones - like the barn swallows that swoop really low. yuck.

Yep, Mitch is on the SCD, started in the middle of July, he had gained 3 pounds from about April - August, started LDN Aug 22, gained 9 lbs from Aug to September. He is still on SCD.

Not in this house - my son definitely is eating more since being on LDN and has gained some (much needed) weight. I think it has more to do with the fact that his body is not working so hard to produce extra white blood cells to fight infection so now he's actually able to put on some weight.

Another really good product is Recovery Extra http://www.purica.com/recovery.htm It has the hyaluronic acid (same as the product that Santos suggested) which is supposed to attract fluid to the joints. I haven't used the*people* version - only the Recover EQ for my horses - but I've heard...

Hi RobK My son has been on LDN for 6 weeks now, and doing really well, I put a little bit more about our experience with LDN in this thread, including his blood work results. http://www.crohnsforum.com/showthread.php?t=7192&highlight=immune I'm very interested to hear the results of the Penn...

I don't know if you believe in homeopathic remedies at all, but there is a really good one from Heel homeopathics called Nervoheel. It just takes the edge off the nervousness, without any side effects. I need it every once in a while, and Mitch takes it on test days at school etc. I find it...

here are a couple of sites that tell you exactly what LDN is http://www.elaine-moore.com/MyArticles/LowDoseNaltrexone/BenefitsofLowDoseNaltrexone/tabid/112/Default.aspx http://www.lowdosenaltrexone.org/gazorpa/LDNFAQ.html I don't believe it is an opiate according to these sites and everything...

hi Shantel, try this thread, you posted re opiates here. http://www.crohnsforum.com/showthread.php?t=7192&highlight=immune (I think I pasted this right, if not, search immune booster)

Hey Naps, I don't know what you were eating on the SCD but if you can tolerate (and like) coconut, it can be a great source to get your calories up. Coconut Ice Cream has lots of good fat in it (made only with coconut milk and honey and fruit), find a source for organic coconut milk and add it...

LOTS of drugs are prescribed for conditions which they are not FDA approved. Cipro for children is not FDA approved, Mitch has been on it twice, Dr's do it all the time if they feel it is safe and the benefits outweigh the risk. Also, patients will do their own research (as we did) and go armed...

I wish someone else would jump in here and tell you more about LDN, but here goes I'll try. It is a prescription drug - Low Dose Naltrexone, it has been around since the 80's and was used to get addicts off of Heroin at 50 mg/day. There have been some limited trials showing that it works for...

Good question! Well, if immune boosters don't work then LDN would not be a good treatment method for Crohn's. My son has a GI appointment tomorrow and has been on LDN for a month now - I know what his imflammatory markers were in July, he had blood work done on Saturday - so it will be...

Sorry to hear that you're having to make such a hard decision. If you really enjoy your horses can you find an older experienced one to have around and be able to hop on without having the stress of not knowing how they are going to react after being off for a few months? I don't know...