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Crohn's Disease Forum

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  1. thike1966

    Travelling with Humira

    The Humira website states it will be safe for 14 days of travel as long as it stays below 77 degrees and not exposed to sunlight.
  2. thike1966

    Probiotics Reviews

    Thank you for this and all your posts and hugs 🤗
  3. thike1966

    Microbiome Composition in Crohn's Patients Predicts Who Will Respond to Stelara Treatment

    Ubiome.com is doing an analysis of my biome at no cost due to my non-income since being sidelined. One of my college professors advised us to have 6 months of liquid capital to cover ourselves. I did have that until I got divorced. When I get back in the game I will build that back up. Lesson...
  4. thike1966

    Humira Club Support Group

    My GI doctor told me it is common protocol after failing Remicade to go to Humira. Humira has human derived antibodies, hence the name. Remicade has antibodies derived from mice, which I had an allergic reaction to. He said it will likely work for at least a year. He wants me on Stellara, but...
  5. thike1966

    Probiotics Reviews

    Hello Everyone, I'm on 4 Floristar and and 2 Renew Life 50 Billion a day, recommended by the nutritionist at my GI's office. But at $6 a day retail I luckily get them at Amazon for half the cost. Unfortunately my Floristar was delayed for two weeks. A few days after I ran out, my cleared acne...
  6. thike1966

    Humira Club Support Group

    Hopefully it works quicker, some people feel results in the first few weeks and sometimes days. So I will cross my fingers for us both getting quick results.
  7. thike1966

    Humira Club Support Group

    Hello Everyone, I had my first 4 shot loading doses yesterday and it went pretty well. Patty, the infusion nurse was awesome. She calmly told me not to tighten up and her soothing voice worked. It was far from pleasant but not as bad as I thought would be. BTW: Canada and some other countries...
  8. thike1966

    Food Help

    My nutritionist put me on this diet, based on the Strict Carbohydrate Diet SCD. More liberal and three phases, check out the food list and recipes. I used many of them, the Iron-Rich Sheppard Pie About: https://www.umassmed.edu/nutrition/about-us/ Food List...
  9. thike1966

    Hello

    Trey, Wow, quite a journey you are on. Solid food and hopefully you will go home soon. Take care and best of wishes to you. Michael
  10. thike1966

    Savings Card, as low as $5

    Extortion Good luck, My doctor wants me on Stellara but we can't approved until I fail Humira, and it's still going to a difficult approval for the $30,000 to $70,000 yearly bill. These drugs are legal extortion.
  11. thike1966

    Is Humira and Imuran a good combo?

    Humira,Imuran and Prednisone I'm on Imuran and Prednisone hanging on since Remicade failed me into allergic reaction. I had to wait for 6 weeks to clear out the Remicade and have been waiting 2 more weeks for approval which I got yesterday. Monday I go to G.I. office with my Humira arriving on...
  12. thike1966

    Savings Card, as low as $5

    Abbvie sent me a booklet with 27 thick pages with info on how to use their drug Humira and why. It also included a savings card to pay as little as $5 with a phone number for activation and connecting with a Nurse Ambassador to answer any concerns about Humira and how to get the most savings...
  13. thike1966

    Can I eat whatever I want now?

    Just got the word, Humira to arrive Thursday. I will get my first injections on Monday. Thank you everyone for their posts that have prepared for the this, including the sting.
  14. thike1966

    How are you feeling today?

    Lynda, I hope you feel better. We are in the same boat. I called my GI office today, learning over the weekend on line that my insurance no longer requires prior authorization as of 1/20/18. They got the authorization today anyway and are ordering the Humira. Once I receive it I chose to go into...
  15. thike1966

    Feeling Sorry For Myself

    I joined the Criohn's Colitis Foundation and this is one of their support tools. I also found a local support group that is amazing. Great mini seminars from my local Colorado chapter too. It was the best $30 I ever spent. I talk to someone once a week who has faced similar issues. You are...
  16. thike1966

    Feeling Sorry For Myself

    First of all, Crohn's is such a cruel and individual disease that we all grieve the loss of our previous selves in our own way. Today, I realized that my way is not as simple as I thought. I attended a Vigil (Memorial Mass) for my my Uncle Bob. The common thread from everyone was that with a...
  17. thike1966

    Diagnosed at age 50 & over Support Group

    rrhood and JackG, I don't think I thanked you enough for your kind words. jackg I am inspired that you lived through the night and are doing so well. So Thank You Thank You for the great support and advice. rrhood, My nutritionist who works hand and hand with my doctor, doesn't like BRAT...
  18. thike1966

    Does ibd run in your family ?

    I didn't get until I was 51. The chances are 16 higher for a sibling, but still great odds in Vegas. I think mine started as a combination of a vitamin D deficiency, with my compromised biome from a childhood of many, many antibiotics and adult life, and finally the stress of taking care of my...
  19. thike1966

    Overview of Corticosteroids

    Hello, One thing you did not mention is eyes. I know it is not as common, but happens. My ophthalmologist said my random blurry vision is a result of my eyes swelling and my corneas being warped. When it happens I can't see anything beyond three feet away. It was happening when I got my eye...
  20. thike1966

    Antibiotics could be the cause of crohns??

    Erinbeck, I was on major antibiotics as a kid and many time more since. I was born with a heart condition that is now resolved. But as a kid, in the 1970's they thought antibiotics could not be over-prescribed. I got them every time I was ill, even when I got a cold. The medical community is...
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