Search results

I'm too new to taking azathioprine to know about my blood levels yet. I don't feel like I'm having any bad reactions as of yet, but I'd imagine that a blood test will be in order at my next appointment (late October). I'm also curious to see if I've developed antibodies to infliximab -- there's...

So yeah, like the title says, I'm starting azathioprine (adding it to infliximab), and tonight is my second night taking it. I'm starting on 150mg (I'm a large human), and we're going to see how I tolerate it. For those of you who have tried it but couldn't tolerate it, when did you know? Was it...

Has anyone out there started 6MP or aza after they had already started on Remicade, or did you start both at the same time?

Hey folks -- looks like the forum got a little spruced up since the last time I was here! Anyone out there on combination therapy with infliximab (Remicade) and azathioprine (Imuran)? Have you had success with it? I've been on 10mg/kg of Inflectra (an infliximab biosimilar) about 8 months, but...

Solidarity, you guys. I'm in the process of trying to find a treatment that works for me. After years of assuming that I only had Crohn's in my terminal ileum, a capsule endoscopy revealed that I have CD in multiple places in the small bowel. (Inflammation outside of the terminal ileum didn't...

Hello all! After a second partial obstruction that landed me in the hospital, it's starting to look like a strictureplasty may be in my future. Currently undergoing some more testing first (capsule endoscopy next week!), but it looks like there is a specific point that is narrowed in the small...

Well, first Inflectra infusion went OK last week. Took some Tylenol and Claritin, and then had the infusion. The only two bad parts: 1. I now have a huge bruise on my forearm around the injection site -- doesn't really hurt much, but it isn't pretty. 2. Even though it's streaming, Netflix...

Thanks for the input y'all! I FINALLY got approval to start my infusions next week, so I'll let you know how it goes. kiltubrid, this is interesting. I'm wondering if those patients experiencing the same thing were also started on Remicade, but then switched to a biosimilar and started...

Hello all -- looks like insurance denied Remicade, but Inflectra was listed as "preferred," so perhaps that's what I may be looking at. Waiting to hear. In the meantime, anyone here on Inflectra or another biosimilar? If so, what are your experiences on it?

Whelp, the plan is to start Remicade, but I'm currently waiting to hear back from my doctor's regarding insurance approval and scheduling. The waiting is truly the hardest part! Come on people, my gut hurts!! :p

This makes total sense, and you're 100% right -- keeping inflammation down is the name of the game! Really appreciate the insight and kind words. :D

Hi Crohn2357, I'm assuming you posted this link to point me to the researchgate article on a conference paper that concludes that the risk of cancer is not increased due to taking infliximab, which of course is good news. That said, are you currently on infliximab and do you have mild to...

Howdy everyone, Well, I had a pretty good run of relatively symptom-free life, but it looks like symptoms are flaring up (confirmed by endoscopy and colonoscopy), and my GI is talking about Remicade. I did OK for quite a bit on LDN and mesalamine, but I'm certainly open to getting this more...

Hi spirit3 -- I wish you the best of luck with LDN. Keep in mind that people's experiences seem to vary; some have said they felt a difference pretty quickly, and for others it takes time. My personal experience with LDN was very gradual improvement, and it took a while to really feel...

Hi guys! I'm not new here, but it's definitely been a while. A quick backstory... I was diagnosed with Crohn's in early 2012. Although my case was deemed "mild," I felt like it was anything but -- I was depressed, in pain, and I was losing tons of weight. Gradually, however, I started getting...

Hey scan buddy! I'm guessing that the LDN is still doing its thing... I certainly am not controlling this thing with diet, that's for sure. Which begs the question, are you on a pretty restricted diet, or are you eating whatever you like? Hopefully you can still enjoy the occasional cheese curd. ;)

Not yet. Ironically, I was trying to eat healthier a few days beforehand -- eating much less food, high fiber stuff (apples in particular), so that was my initial suspicion. However, the GI in the hospital wasn't so sure that was the cause, because it didn't seem like active inflammation, and...

I did have the MRI enterography while I was in the hospital, so perhaps my GI can tell me more about what they saw when they get back to me. It sounds like it was resolving by the time they put me in the MRI. Hmmmm...

Howdy folks, Been a while since I've contributed anything substantial here, but this is kind of an interesting set of circumstances and I thought the story was worth telling! My case is fairly "mild," from what I've been told -- but things didn't feel so mild this past Friday when I was...

I wish you the best of luck! Just be aware that it takes time (or it did for me, anyway). Not the most rapid-acting medication out there, but the side effect profile is really low. Aside from a couple of weird/vivid dreams, that was basically it for me.