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Crohn's Disease Forum

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  1. M

    LDN and Marijuana

    Hi Eric- I don't have an answer to the mj question. I am a LDN'r and am loving it. In 4 months I have seen a dramatic change in my life. Hope it works as well for you. Wendy
  2. M

    Feeling Guilty

    Brenda, Pen is spot on. I think the guilty feeling is understandable. I feel very guilty at times. Make sure you take care of yourself. Do you have help with the daycare? Wendy
  3. M

    A lactose question

    Good morning! Try looking up the yogurt information on the website breakingtheviciouscycle.com . There is a very good article on there about making your on yogurt and lactose content. The starter you use is very important as well as processing the yogurt for 24hrs. The gas issue could be from...
  4. M

    Why does crohn's make no sense sometimes??

    I agree we JE. Sometimes I have trouble with raw veggies and sometimes I don't. The trick for me is to not large amounts at one time and to not eat a dinner size salad 2 days in a row. If I do make myself yucky, then I do a juice fast for a day. Resting the digestive system usually works. I...
  5. M

    Severe flare but no typical symptoms?

    Ian, Crohn's is a strange beast. I am a 20 year veteran in the war with my digestive system. In 2008 I had the flare of a lifetime. I would go thru periods of almost wellness. The doctors did not want to do surgery. I was in pretty bad shape but in the end, I had a resection (after a temp...
  6. M

    DGL for acid reflux

    I take DGL. It works. I just re read research on DGL and it takes about 2 weeks to really make a difference. It is natural so there is not the more instant relief you get from other OTC and prescribed meds. OTC and prescribed meds alter the ph in your tummy and it takes DGL time to restore...
  7. M

    Weird, but possible?

    Andi- Yes, I have had the sore nose. I don't know if it is Crohn's or if it is a by product of malnutrition. This disease is totally bizarre. I put vitamin E oil on a q-tip and lubricated the sore area. It helped a little. Wendy
  8. M

    Natural Remedies for GERD

    DGL is what I use for GERD. Prilosec, Prevacid, Nexium, and all cause horrible intestinal pain for me. DGL is all natural and has some side benefits. It is working for me. It is not an instant fix. Wendy
  9. M

    From the beginning to the end ?

    I am a 20 year veteran everywhere Crohnie, too! Stomach is similar to ulcer symptoms, I have GERD symptoms, hoarseness, mouth ulcers, shoulder pain, neck pain, and coughing. I have never had a flare everywhere at once. I am in remission now. Hugs, Wendy
  10. M

    Females and fisulas...odd question? Warning: Guys might want to avoid!

    I had the discharge in '91 and strangely enough when I was very anemic in '07. My other symptoms were EXTREMELY heavy bleeding lasting 3 weeks out of every 4, terrible cramping, and back pain. I had a bloody stool with mucuos once in '91. That occurred right before my surgery. My flow was...
  11. M

    Females and fisulas...odd question? Warning: Guys might want to avoid!

    Cookie- I actually had your symptoms back in '91 when I was diagnosed with the lovely Crohn's. I had an hysterectomy due to endimetriosis (sp?) and they found the Crohn's. I found out a couple of years ago that C&E can and will pair up... I do not know if it was the E causing that group of...
  12. M

    Latest GI appointment, round and round in circles (warning, long!)

    Hugs to you Star. I have no wonderful words of wisdom or comfort. Just to keep fighting. I really wish the med profession would take IBD more seriously. When I was first diagnosed in '91, I was told it was because I let my insecurities take over (it was in my head). The view hasn't changed...
  13. M

    Could it be Crohns?

    Suess, I hope you get answers soon. I do not have any food allergies or intolerances- I am "sensitive". I do know I feel better when my carbs come from fruits and veggies. Good luck. Wendy
  14. M

    On-the-go diet?

    Aloe- only use a product similar to George's Always Active. There is a compound in allow that can cause the big D. Aloe is very beneficial to the digestive system. You all have some wonderful to go ideas. I have been looking for breakfast grabs.
  15. M

    Tumeric in treating Crohn's

    I take Boswellia. I am adding Tumeric this weekend. I always start new things on Fridays so I can relax if I react:). Always remember that it takes a while to reach a therapeutic level.
  16. M

    Not exactly crohns but related and extremely rare condition

    Michael, malnutrition is diagnosed with blood tests. Malabsorption is dx'd during a scope. I am told my absorption is conditional. Inflammation keeps me from absorbing. Take care of your teeth. They will be affected. Have u tried veggie juices? Do you take probiotics? I have problems with...
  17. M

    Not exactly crohns but related and extremely rare condition

    Michael, Your reaction to sugars is a major clue. I am a holistic nutritionist and share your dislike of the med profession. They are necessary but it is frustrating and difficult to deal with them. Sometimes I think it is the front office more than the docs themselves and sometimes, well...
  18. M

    Mini-vents

    Andi- I am 46 and (shhhh!) - no gray! Julie- Yes, vacationitis can and will kill. I am with you... I NEED TO GET AWAY. My daughter is begging me to visit and it is getting real tempting to take time off without pay and head to New Orleans. Everytime I make beauty appointments something...
  19. M

    Searching for some words of wisdom

    Eric, Romance and Crohn's is possible. The thing, I think, is a partner who tries (and I say try because no one can really know but another IBD'er) to understand and support you. My hubby has been thru a temporary colostomy with me, near death, and months of me doing nothing. He learned to...
  20. M

    Best Protein Powder?

    Hemp protein works for me. Whey proteins cause me to cramp. Anything (except soy sauce,etc) with Soy causes pain and bloating. The rice protein does pretty good. One of the EAS products caused my ex husband to become tempermental. I can not remember which one. One thing I have learned is...
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