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My 15 month old is due for his MMR and varicella shots. I'm on entyvio (in remission, yay!) and also pregnant. I can't seem to get a good answer from my GI or the pediatrician or my own research as to whether or not I need to worry about vaccine shedding. I know entyvio isn't supposed to be...

I have had uncontrolled crohns for about three years now. I failed remicade and humira. I have had two babies and went into remission during the pregnancies but when I'm not pregnant I'm in and out of flares. Prednisone stops the flares but then a few weeks after weaning I flare again and again...

I've had Crohns for a long time but recently started 6mp. I ended up having a huge flare shortly after starting (before it could take effect) and was hospitalized and put on IV prednisone. Prior to this hospitalization I had never had a slow heart rate. I usually had a fast heart rate! I had...

I have been on prednisone about five times and am on it now (currently down from 50 to 38.5). The first couple of times I just followed the doctor's weaning recommendations (drop 5mg each week.) I never had any issues with the flare returning but I did have an increase in anxiety and sleep...

I've had crohns for about ten years but it's been most severe in the past 2.5. I've failed humira and remicade. I flare 2-3 times a year. I have a stubborn fistula that is slowly healing. The dr wants me to take 6mp. I know that prednisone is not a good longterm drug and I know for most people...

I started at 40mg a couple of weeks ago and was on it for about eight days. Since then I've been tapering 5mg every six days. I didn't have many side effects initially but I'm having sleeping/anxiety issues and acne for the first two or three days after each taper. I went down to 20 yesterday...

The first time I was on prednisone I had classic side effects. However, the last time and this time I haven't. I started at 40mg and had some anxiety/insomnia and heartburn/bloating but now that I'm down to 30mg I don't really have any side effects- or at least not more than mild insomnia and...

I am in the middle of a flare and have been on 40mg prednisone for the past four days. I can definitely tell a difference but it seems the effect wears off by the early morning right before I take my next dose. I've been taking it with breakfast, around 630/7. But I feel the symptoms coming back...

I am on prednisone right now to control a flare. Remicade stopped working and Humira never worked. I know diet doesn't always work, but there are some pretty powerful testimonials of it working for many, many people, often without meds. I guess I'm just not one of those people.

I have been doing some version of SCD/GAPS/autoimmune paleo for nearly a year and a half with NO relief. I have fistulizing Crohns that hasn't been totally active but definitely nowhere near healed or in remission. I have tried to stay off the big gun drugs because I believe in these diets. But...

Hi- I'm also looking for info on Georgia marijuana use for Crohns. I already know my doctor will have no interest in it. He will want me to continue trying the biologics but I know marijuana works and is safer and the biologics give me side effects. Anyway, I really need to find a new doctor...

My crohns is not technically active but I have a fistula that is healing at an absurdly slow rate. I tend to go to the bathroom 2-3 times a day and to a normal person it would look healthy- slightly on the looser side, like Bristol scale 4, but healthy. However this amount of firmness always...

I am five weeks pregnant. I had a massive flare a year and a half ago which landed me with a terrible fistula. I have had seton drains since then. My crohns has been pretty under control but the fistula has not closed. My doctor is very set on a c-section. I totally see why, but I'm also...

Has anyone done the pillcam colon? I'm not talking about the original pillcam that only views the small intestine. I'm talking about the one that shows everything in place of a colonoscopy. I've got a bad fistula and refuse to do a colonoscopy as I know the prep and procedure would make the...

@droopymonthly they told me the same thing. Remicade worked on closing it for a little while but then I developed antibodies. They switched me to Humira which gave me psoriasis. I think those drugs can work wonders-- but they don't always work, have lots of side effects and risks, and most of...

I have had setons for over a year now. Taking a bath 3 plus times a day after using the bathroom is getting pretty annoying and inconvenient. If I don't do it then everything aches and feels gross all day. I tried just doing sitz baths but I just feel like those are even more gross to clean. The...

For those using cannabis as an effective treatment- how do you counteract the tiredness? Especially given that coffee and strong caffeine seem to be common irritants for Crohn's.

I have had a fistula for over a year now. I have had three seton surgeries to rework the setons and my final one being about a week ago. I am on an alternative immunotherapy treatment that is working, but very slowly. The doctor said she does see gradual healing. In the meantime, I feel like my...

Yeah I figured I probably should. I'm also so tired of this all and want to make sure they know exactly what they are dealing with. What does this kind of MRI involve? Do you have to do contrast? Fast? Does it involve any excessive bathroom trips? I have been avoiding a colonoscopy or anything...

So I talked to my CRS and she says that she thinks the problem may be that I have too many setons keeping things open when they are trying to heal (she noticed some healing last time she looked and wanted to take two of them out soon.) Anyway, she plans to do another EUA next week to take all...