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Hello, I have tried Humira. Seems like next is Stelara or Entyvio. Humira has had a good financial aid (patient assistance program) which has helped me alot since my insurance has an enormous deductible and copays. So my first question in considering Stelara/Entyvio is which one has a...

Irishgal, are you on Borody's anti-map treatment? Are you in Australia?

Hi Joshua, I feel that the Modulen has been my biggest help. I feel that the Modulen has helped me with 3 things: 1. Crohn's. For the first time in 2 years I am tapering my prednisone and may even be able to stop it completely within a few months. 2. As I mentioned in my above post, I have...

So Xiaofa, do you.have an alternate research funding system in mind?

My surgeon today suggested I may have IBS. Where's the best spot to post about IBS? I didn't notice a spot on this forum devoted to IBS. Is there a particular reason for that? As I understand it, IBD'ers constitute the majority of IBS patients. I'd like to correspond with folks who do have...

I concur that beverages can play a large role in causing the boiling lava D. I would not dream of drinking OJ or soft drinks or coffee when flaring with D. Of course it can happen for other reasons as well, such as post-op which I recently dealt with. I need to have cold wet toilet paper on...

Hi Trish, sorry you have to contend with so many surgeries and so much pain. I just had my 3rd surgery recently. I explained to the anesthesia team right before the surgery that my 2nd surgery had a problem with the epidural, which required the team to alter the placement of the epi tube in my...

Jenbob, you need a lot more information than you currently have in order to make an informed decision over whether to have surgery. In my opinion, based on what you've stated so far, it does not sound as though you are a surgical candidate right now. What dose of Aza are you at right now...

During my recent surgery I narrowly averted what would have been a really unpleasant situation involving my urinary catheter. First of all, I was pleased to note that my hospital has changed the way they do things regarding insertion and removal of the NG tube and the urinary catheter. Namely...

I just got out of the hospital the other day from having my most recent surgery, so this stuff is fresh in my mind. It wasn't until the end of my stay that I became able to sit on the toilet, at which time I disappointedly discovered that my hospital is one of those that believes in furnishing...

The homemade chicken broth is a solid idea, if someone will bring it to you. I've gotten onto homemade broth recently and it' so delicious. And it's such a disgrace to see that virtually all hospital food is such processed chemical garbage. Travel light though since they may move you from...

1. If you wear glasses you should clean your lenses before going to the hospital and/or take your cleaner/wipes along. 2. Pen and a notebook to make notes. 3. If you are a tea drinker, take your own cup and tea; I've found that the room service delivers Luke warm water in plastic cups,but the...

I'm headed for surgery. My gi is proposing having a liver biopsy during surgery due to what was a temporary slightly elevated blood number, which has since returned to normal; he wants to rule out sclerosing cholangitis. Any thoughts on whether I should permit a biopsy during what was supposed...

Yes, they said specifically that they find that the patients recuperate quicker from the surgeries. When I looked this product up on line, it indicated that it helps to prevent infections for patients undergoing surgery, so the emphasis is a little different, but still aimed at patient...

Nestlé Impact pre op? My surgeon has advised me to drink Neatle Impact a couple days before my operation. Anyone have any experience with this product? I checked the ingredients and noted maltodextrin and carageenan, which I try to avoid due to reportedly being bad for CD. Any how, here are...

I've been having tons of trouble with my sleep. I've been thinking about the whole indoor lighting thing too and have been making a habit of turning the lights off in all rooms as much as possible to try to track the daily light schedule. There are so many artificial constructs in our...

Thanks for the input everyone, it's given me some good perspectives to consider. I have no concerns about the scar. I was pleasantly surprised on my first surgery that my scar was about 6 inches or so, beginning a bit under my naval and going up and swerving right round my naval and ending an...

Igor, what sort of allergic reaction do you have which puts your CD in full remission? This is the first time I've ever heard of such a thing - very interesting. Is it a food thing like your friend or airborne, like sneezing and such? Also, how long does your CD then stay in remission...

Anyone got a feel for how frequently lap surgery is being utilized for exploratory CD surgery these days? I've talked to a couple of local surgeons in the Seattle area, both of whom recommend open surgery in my case. But it seems like I read more about lap surgery becoming adopted in some...

Here is the abstract for the original study in which 17 patients, most of whom had failed balloon endoscopic dilation, received stents. And here is the link for the full-text pdf. http://onlinelibrary.wiley.com/doi/10.1111/apt.12039/pdf SUMMARY Background Balloon dilation (with or without...