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Crohn's Disease Forum

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  1. tots

    Period causes mini flare up of my Crohn's symptoms

    I actually got worse when I was pregnant, I jay cant conform! I can say the last 1 1/2 years without my period has been awesome! Lauren
  2. tots

    Arthritis as my main symptom right now

    I am glad you saw this post and answered. I have not been on lately- my husband died 3 months ago and just trying to figure stuff out. I saw my GP today and he has me back on Prednisone. I am no longer on Remicade because I lost my ins when my husband died. The year my husband had cancer I was...
  3. tots

    Anyone successful in getting on disability?

    I applied in September. I just recieved a letter to get a function eval from one of their Drs. Don't know if this is a good thing or bad thing. Also going to find a lawyer. Lauren
  4. tots

    Neuropathy from ???

    I just reread this- note to self no typing after you take a sleeping pill! L:ywow:
  5. tots

    How do you accept this type of failure?

    Thanks for your responces, somedays I deal with this better than others. I know he's in a bad place too, I just wish we could have a little bit of peace every once in awhile Lauren
  6. tots

    How do you accept this type of failure?

    I have been married 31 years, my husband as I have explained before is not at all understanding of my CD. I was diagnosed at 28, I am now 53, we started dating at 17. For various reasons my husband is not my biggest cheer leader, in his eyes I don't do much right, from folding his laundry to...
  7. tots

    Need help with getting Remicade infusions in the US

    Call Johnson and Johnson, they cover the cost of Remicade for some people. I think more than we think, I just don't want to give you bad info. Lauren
  8. tots

    Constant body aches

    low vit D can cause this problem. Lauren
  9. tots

    Pain on the left side

    i have has two episodes of that and its been diagnosed as ischemic colitis. Hope your feeling better Lauren
  10. tots

    Post offer medical questions (any lawyers on here? please help)

    would that not be considered discrimination? Lauren
  11. tots

    CD and ischemic colitis...

    I told the Dr my GIs plan, and that is the hospital he practices out of. I just wasn't sic enough. To be honest I didn't care what my number was, the amount of blood was disturbing plus I was already on Prednisone. My steroid was actually raised today at 60 mgs. So my house should be cleaned...
  12. tots

    CD and ischemic colitis...

    Thank you for responding. I saw my Dr on Wed, after trips to the ER on Monday and Tuesday. On Tuesday i was started on 40 mgs of pred. On Wed my Dr said I should have no further bleeding, if I do back to the ER and will be admitted. Started bleeding again late afternoon on Friday. Called the...
  13. tots

    Positive TB test, on Humira 7 years-

    My mom used to work as an admitting clerk in the ER, she was exposed to TB so she now tests positive. So for her they would do a chest X-ray to confirm there never was a TB infection. She never received treatment. Lauren
  14. tots

    CD and ischemic colitis...

    Thank you Ron. Lauren
  15. tots

    CD and ischemic colitis...

    I have had bleeding for the last 3 days, and a lot of it. I have CD and my GI doc thinks is ischemic colitis. I thought you got that our to trauma. When I joined in 2012, I was given the same Dx and i am pretty sure he said it was the same thing as having CD in my large colon. Maybe I am...
  16. tots

    How often do you think about your Crohn's?

    Every day! not in an obsessive way, just in making decisions about my day. I made plans with a friend tomorrow and i cant make it due to the symptoms i have had this week. I try not to feel bad but I do. Lauren
  17. tots

    Service Dog Anyone?

    Thats an awesome thing to have in light of everything going on in my life right now, I got a yellow lab pup, I named her Charli. Already at 4 months she knows the last 2 weeks have been very rough on me and she stays much closer than usual. instead of sleeping at the end of my bed she right up...
  18. tots

    Should I go tho the ER or wait until the morning?

    Thank you for all the responses! I was seen in the ER once Monday and again on Tuesday. Then my GI today. I was started on 40 mgs of prednisone yesterday. There was some confusion at the ER i guess as my Dr was really unhappy that no CT was ordered and they forget the fact that he wanted me...
  19. tots

    Prometheus test

    I won't have that test done for that reason. It is not a very reliable test and your medical ins while not paying for it, can refuse to pay for anything related to CD care should it be a false negative. Thank you for your responses.
  20. tots

    A pointless post

    There is never a pointless post here, every one of us have a chronic disease and understand just how low things can get, the great news about this forum is its "open 24/7' someone is always here to answer a post. Sure hope you find some help and a bit of peace here, NEVER give up!! If you...
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