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Why was I harsh, lets see.... You ask if you should take it, and everyone is saying yes, but you are sitting there repeatedly saying I don't think I should. You won't listen to people stating that this disease isn't one to mess around with. Seriously, it's not. But then in the next breath you...

I agree, wondering if they are missing something. I would personally go to my family doc so bloodwork and such can be done in case he has really low levels of something. Sending many ((((hugs)))) hope you have answers soon

He has been through quite a lot! I am sorry to hear he isn't bouncing back as fast as you guys would like, but sometimes it takes time. Everyone is different. Have you mentioned your concerns to his GI? How long ago was his surgery?

Denial will not make it disappear. If you have a partial blockage, you have a chance for a full blockage. You say you have a disabled partner you take care of. If you continue to deny your disease, who will take care of your partner if you have a full blockage? You say you refuse to read about...

First infusion went well. They had coffee and snacks and recliners!! Woo!

First Remicade infusion in the AM. Excited and nervous all at the same time. Afraid it won't work and I will have to wait to get something that will.

Marijuana is Schedule I too.....

I had all the same symptoms, except the chest pain/heartburn part. Though I did have them when my gallbladder went (wasn't stones, very inflamed and swollen though). Hope you feel better soon. The steroids made a world of difference for me :)

I would double check with your pharmacist. Just make sure your cold meds don't have ibuprofen or naproxen in them. Those are NSAIDS and could make your tummy troubles worse

Way too high of a chance of the pill being contaminated with something weird, or something that may make you worse. It's an amphetamine, which is already hard for your body to process/digest. Plus the dry mouth you get, will result in you drinking more liquid. Not sure if diarrhea is one of your...

Check out leafly.com. You can input your disease and symptoms, and you can find a strain that will work. From there it's a matter of experimentation on which strain works the best. THC helps with pain, CBD with inflammation. The higher CBD will help slow your digestive tract and get to work on...

Yes, you do have to heat it. I usually put into a glass jar, put some water in the bottom of my slow cooker and then cook on high for 8-10 hours. I then filter out the plant material. :)

My family doc said he recently read an article, that it takes on average, 5 years from first symptoms to diagnosis. Took me 2.5 years from when my symptoms started to finally get my diagnosis. It really sucks, especially when no one takes you seriously, and treat you like all you want is drugs...

I'm tapering from Entocort. Started in on Oct 16th@ 9mg, Started to taper on Sat, down to 6mg. I haven't eaten anything out of the ordinary. ugh :(

Hope it helps! I am waiting to start Remicade myself :)

My taper started on Sat, woke up this morning in lots of pain. I haven't felt this crappy in a few weeks. Is it because I am starting my taper? Went from 9mg to 6 mg. I am miserable today, and ready to cry. Can't wait until I start Remicade, I sure hope it helps!

I am not looking for the monthly disability payment, I'm talking about the tax credit at income tax time. It's about 2k a year or so, supposed to be a help for having to travel to specialists, paying copays, etc. Incidentals that can add up in a year

Wow! Very cool! They should do something like that in Canada, I have a few friends and family members that would totally participate

That is fantastic that your employer is willing to accommodate you :) Sounds like you found a great place to work!

Defintiely talk to your GI if you are still experiencing pain on Remicade. They may have to increase your frequency of infusions and/or the amount you recieve. I feel your pain, I have been in a flare now for 2 years. I will be starting Remicade myself in the next couple of weeks