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Hello I guess I'm one of the "old members" too. I stepped away because my health wasn't great, I have been diagnosed with a neurological condition that causes very very extreme headaches and it took a big toll. Then my dad passed away very suddenly and it was an extremely traumatic loss...

Hello I don't know if there are many here that will remember me, but I thought I would share a bit about me, my journey and where I have been. My name is Nicola, I am 32 on the 26th of December and I have been diagnosed with crohns disease since I was 19 years old. I had symptoms for five...

Hello I am glad to see you are having no issues with your treatment, I hope it keeps you well for many years. I have been on Entyvio for almost 8 years and it has kept me pretty stable during that time.

Hello How are you doing? Any luck getting to speak to a doctor? Crohns absolutely can play havoc with blood results, and a calprotectin of that level would support the theory of inflammation in the digestive system. I would suggest going to the GP if you haven't already been able to, and...

Hey Welcome to the forum Although doctors don't always admit it, it's not as uncommon as you would think to have normal bloods and even stool tests. My levels were fine even when I needed surgery! There are so many potential symptoms and they vary massively from person to person. I am glad...

Hello, I am so sorry that people who are supposed to be your friends are behaving this way. It sounds like your friends are what we in the UK call fair weather friends, they are happy to be around when things are happy and light or when they benefit from the friendship but quickly loose...

Hello, Looking at the combination of calprotectin and the biopsy results along with the capsule Endoscopy it does seem like you may have crohns disease. Very often diagnosing these Conditions is about pulling together information from various sources and eliminating other Illnesses. With...

The nurses probably wouldn't start any treatments without your nephew being seen but will understand the urgency of getting seen and may be able to pull strings or move him up the waiting list based on his symptoms. They may also be able to find out what consultant your nephew will be under and...

Hello, I'm sorry to hear that your nephew is dealing with this. Waiting times are a big problem in the UK and unfortunately it seems there isn't going to be much improvement for a while. Do you know where your nephew has been referred to? They may have I B D nurses available who would possibly...

Hi there, sorry its taken a little while to respond, what symptom is your doctor hoping the amitriptyline will help with? I personally take it to help with another condition called cluster headaches and in my case the main aim is helping with sleep. I know for some people it can also help with...

Hey there, sorry its been so long before you got a reply, you have quite the story. I just wondered if there has been any progress or if your situation has improved at all . If not are there any other symptoms leading you specifically to inflammatory bowel disease or if there is anything we...

Hello, sorry I'm late to the party but wanted to add just incase it is helpful for the future or for anyone else. Inflammatory bowel disease is such a patient specific condition that it can be difficult to assess things like calprotectin levels against other patients. My doctor always says that...

It is great to see that you are doing better! Have your doctors suggested any monitoring going forward to make sure that this is definitely not inflammatory bowel disease related and doesn't reoccur? I hope you continue to feel well and can continue to heal but do think On-going monitoring would...

Hello, unfortunately diseases that impact the digestive system are famously difficult to get assessed and diagnosed. It is not uncommon for patients to have symptoms for years before diagnosis. Do you mind me asking what testing you have had so far and what symptoms you're dealing with? It...

Hello everybody Just thought I'd update as it's been a while Unfortunately the flare continued and eventually got worse. I started to struggle to eat and drink, began to loose weight and the pain became increasingly hard to manage. I contacted my GP (as I still had a few weeks before my gi...

Hello Crohn's disease is a very individual illness, unfortunately there's no one size fits all so we can't tell you what will/won't work for you, but we can try to help you figure it out. One of my biggest tips regarding food is to keep a food and symptom diary. Write down what you eat and...

Hello Sorry I haven't replied sooner, I've been pretty sick and haven't checked in for a while. Have you had any of your test results back yet? IBD can vary a lot from person to person, because of this, treatments vary in success too. For some people, the first treatment they try will work...

Hi, I agree, it seems like your daughter still has active inflammation going on which is likely to be causing her symptoms. Unfortunately it can take up to 3 months for drugs like Remicade to really get into the system, so while it's really unpleasant the fact she's still having symptoms...

I totally understand, I went undiagnosed for almost 5 years and by the time I knew what was wrong I was desperate for help and to just feel better, most of us here can relate to that in one way or another. It's really hard waiting for treatment when you're struggling but having a good idea of...

Hello, I'm in the UK so policies may be different here, but I have been told by my doctors that I should continue to follow what's known as shielding. This means that I need to stay in my house most of the time, no crowds, no going into other peoples houses, no public transport, wearing masks...