Thanks for the feedback and links. I will add it to my ammunition. I went in with a very detailed letter from her GI doc, info the doc sent about Crohn's, and a template from ccfa for 504s. She kept focusing on the fact that right now she's in remission, so it's "not affecting her ability to access the curriculum", therefore no 504. She set up a meeting with the nurse to discuss a health plan next week. What research I have done indicates that the disease should be treated as if it is active when determining the eligibility because of the unpredictability of episodic health conditions, but I don't know if that's a suggestion or a mandate for the school. She kept reassuring me that they would work out what I was asking for and didn't need a written plan, but that's asking for me to be on board with a non-binding verbal agreement, and I am not the idiot she'd like me to be! She said they would convene an emergency meeting if she had a flare up, but in what timeframe, and how exactly should I do that if my child is inpatient or home ill? Are there any motivators for a school to have fewer 504's? The accommodations would cost them nothing, are not outrageous, so what's the big deal in refusing? Thanks!
