have been on prednisone and lialda for over 4 mos. Doctor is suggesting 6mp and Remicade. For people using mm: do you find that it takes the place of 6mp, Remicade or prednisone in reducing inflammation and moving you to remission? Or is it just a "helping, partner" medicine?
6mp, Remicade, mm
- Thread starter Macgavock
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Help Support Crohn's Disease Forum:
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I know people here have achieved remission with high cbd regimens. Myself, I am using a high cbd tincture daily and I vaporize marijuana daily. I have failed remicade, then humira just last year. I finally weaned off prednisone a few months ago and haven't had to add it back for a flare in around 6 months. I hesitate to say I am in remission, my weight is still down, no matter how much I smoke I can't seem to get the munchies lol.
You can start using marijuana in addition to what you are on and see if it improves your symptoms.
You can start using marijuana in addition to what you are on and see if it improves your symptoms.
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I've never found medical marijuana to be much of a magical drug for my treatment, I would highly avoid attempting to replace any doctor prescribed drug with cannabis. Unless the prescribed drug is causing serious issues I wouldn't stop taking it; and if you do make sure your doctor is aware.
Keep in mind that doctors have to rely on scientific data, and for a multitude of reasons that is incredibly difficult with marijuana. Even if we did have numerous trials with various cannabis strains specific for crohns, doctors need to know what dosing you are on - which is almost impossible with cannabis. It's getting better, but even many highly reviewed edibles with their dosage levels included have been shown in independent tests to often be wildly inaccurate. That commercial grade brownie today may not be the same strength level as the one you get next week; this has been my biggest source of frustration with using cannabis as medicine.
With that said I'm not saying don't try MMJ - if it helps you then it's absolutely worth it, but in my experience I've found whenever I stop taking my doctor's prescribed meds I start to fall back towards a flare. I would say at least it should be considered to be used in addition to your other meds, but not in replacement of. I would at least wait until your symptoms improve before backing off of some of the prescription medications, and as always do this with your doctor aware of your intentions.
Is there a particular reason you don't want to start 6MP? I've been on it numerous times and it usually helps for short term use, and doesn't come with any noticeable side effects that I've experienced. Prednisone is a different story, it usually brings me out of a flare but also comes with a bunch of side effects making it not a very fun drug to go on.
Keep in mind that doctors have to rely on scientific data, and for a multitude of reasons that is incredibly difficult with marijuana. Even if we did have numerous trials with various cannabis strains specific for crohns, doctors need to know what dosing you are on - which is almost impossible with cannabis. It's getting better, but even many highly reviewed edibles with their dosage levels included have been shown in independent tests to often be wildly inaccurate. That commercial grade brownie today may not be the same strength level as the one you get next week; this has been my biggest source of frustration with using cannabis as medicine.
With that said I'm not saying don't try MMJ - if it helps you then it's absolutely worth it, but in my experience I've found whenever I stop taking my doctor's prescribed meds I start to fall back towards a flare. I would say at least it should be considered to be used in addition to your other meds, but not in replacement of. I would at least wait until your symptoms improve before backing off of some of the prescription medications, and as always do this with your doctor aware of your intentions.
Is there a particular reason you don't want to start 6MP? I've been on it numerous times and it usually helps for short term use, and doesn't come with any noticeable side effects that I've experienced. Prednisone is a different story, it usually brings me out of a flare but also comes with a bunch of side effects making it not a very fun drug to go on.
Each person is different with crohns, of course we know that and our dr.s know that.
Prednisone has done nothing for me, been on it 6 mos.
Lialda messed with my breathing and caused me to faint in a grocery store, I don't like a medicine that does that to me and I don't trust it, but now when I try to get off it my body does flare worse. I would really like to be off it.
flare got worse when I started 6mp. I don't feel better on it, and it does not appear to be helping.
Remicade has made all my joints ache and my fingers feel like sausages
if mj works it would be a relief. I heard it often can replace Remicade.
Prednisone has done nothing for me, been on it 6 mos.
Lialda messed with my breathing and caused me to faint in a grocery store, I don't like a medicine that does that to me and I don't trust it, but now when I try to get off it my body does flare worse. I would really like to be off it.
flare got worse when I started 6mp. I don't feel better on it, and it does not appear to be helping.
Remicade has made all my joints ache and my fingers feel like sausages
if mj works it would be a relief. I heard it often can replace Remicade.
