Afraid to start remicade and possibly HGH

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Joined
Oct 25, 2013
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Hi I'm 15 with crohns and i was diagnosed a year and a half ago. I have yet to reach symptom free remission and my GI is thinking about starting me in remicade after I finish tapering off of prednisone. I was taking 6mp every other night because I'm a slow metabolizor I guess, and that hasn't been doing much for me. I know remicade is given through an IV and that scares me a bit.

What should I expect from remicade? Also my endocrine doctor sai that if after being symptom free for a couple months, they might try to encore rate Growth Hormone. Has anyone with crohns used HGH?? Is there anything I should expect from it?

Neither of these things are definite, but that's where I'm leaning towards for he next couple months!
 
My son was diagnosed at 15 and was put on Remicade straight away. He now goes for his infusion every 6 weeks. The infusion is done at his GIs IV lab, there is a big flat screen TV, a Wii, WiFi and snacks and drinks available. At first, he wasn't thrilled with the idea of an IV but it wasn't painful and doesn't bother him at all now. Infusion lasts about 2.5 hours now but in the beginning they started slower so it ran about 3.

After infusion we grab a bite to eat then have a 2 hour drive home. Sometimes he will sleep part of the trip but I think that is due to the benedryl he is given before infusion. Other than that he doesn't experience any side effects. He is 17 now so this has been his regimen for awhile now. He also takes methotrexate each week at 7.5 mg.

He can bring movies, laptop, etc to infusion and usually catches up on homework during infusion. It can be a little chilly in the infusion lab but the nurses provide blankets.

I think there are a few members who have kids that were on HGH but I can't remember which. You may want to use the forum search function and keyword HGH and see what threads come up.
 
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