Well I was here before, talking about how I wanted to do a stem cell transplant and share the information with you as I go on my pursuit. However an admin or moderator booted me. I am guessing this was because I had 2 handles(user names). I made another user name, as I felt I left a bit too mch information on the previous handle for my liking. I would love to share as much as I can about my history and experiances with all you fellow crohnnies, but am very private when it comes to my personal life and there for made another handle with less personal info in my posting. I wish the moderator would of just asked me about it before hand. None the less, I have enrolled in a trial in the US being done where they administer the transplants. I had to be approved by 3 doctors and and meet the criteria of such things like having tried all other drugs and options available. I was the 1st child ever to try remicade which has become a remarkable drug, and I am now willing to try this thearapy...mostly for myself but also to hopefully give people a better understanding of the treatment and maybe to help encourage other who are stuck with no more alternative options. I will be making a blog about this in another thread, explaining everything, every step, making some short videos, and i welcome any of you to join me in my journey if you are interested.
If an admin or moderator kicks me again without talking to me first I will simply go to another forum and share my story elsewhere. My goal is not to start trouble, or to tell people to take this route, not to promote anything, but simply to spread some knowledge to people in similiar situations who find themselves either facing an ostomy or worse. In all I just hope it helps at least a few of you get a better understanding. It is only the MOST effective therapy known to man for crohns to date. 80% success rate of full remission which would be of the worst cases of crohns in the US. I'll sign off for now and hopefully when I come back I wont be banned and can start my log. I fly to Chicago for the transplant on Monday BTW.
If an admin or moderator kicks me again without talking to me first I will simply go to another forum and share my story elsewhere. My goal is not to start trouble, or to tell people to take this route, not to promote anything, but simply to spread some knowledge to people in similiar situations who find themselves either facing an ostomy or worse. In all I just hope it helps at least a few of you get a better understanding. It is only the MOST effective therapy known to man for crohns to date. 80% success rate of full remission which would be of the worst cases of crohns in the US. I'll sign off for now and hopefully when I come back I wont be banned and can start my log. I fly to Chicago for the transplant on Monday BTW.
