Daisy why are they not keen on plugs? May I ask what other options are being considered. I have multiple perianal fistulas.
Hi nogutsnoglory, the Colorectal surgeon said that there isn't a high success rate with fistula plugs and because my fistulae are complex he is excluding the fistula plug as an option.
My options are:
1) do nothing - leave things as they are i.e. two setons in place allowing for continual drainage (not that much discharge any more) and not much discomfort at present.
2) perform a temporary ileostomy to divert the faecal stream away from the fistulae which could aid the healing of the fistulae. Also at the same time do an advancement flap.
I'm not keen on a temporary ileostomy because on the one hand if the faecal stream is diverted then "yes" the fistuale can heal but my perianal disease is pretty active so there are no guarantees that new fistulae won't develop. Which is fair enough that the doc can't guarantee that and I totally accept that.
However, to have invasive surgery and everything that goes with that leaves me feeling very unsettled. I'm wanting to start work in the new year and thinking of having to ask for time off to have surgery and recovery time thereafter doesn't seem likely. The surgeon said to me I would need at least 3 months recovery time? I haven't worked in ages and I'm keen to rejoin the work force.
Something else to mention is my recent colonoscopy done in October showed that there is mild narrowing at my ileocaecal valve as well as a mild stricture in the proximal descending colon. This means that if the stenosis gets worse then I might have to have surgery down the line and my GI has already mentioned the option of total colectomy and said that I should keep that in the back of my mind...
'Bottom line' is I'm not keen to go through all the angst etc for an outcome that is uncertain.
I had an appointment at hospital yesterday and spoke to the GI and she said that she would complete the necessary paper work for me to travel to attend an appointment with a leading GI here in Aussie to discuss my situation and what the best plan would be for me in moving forward. I've been told that the GI is really the person that has the most input in this decision because the bigger picture (future) needs to be considered. So, that appointment will only happen in the new year sometime and hopefully there will be a good outcome for me.
nogutsnoglory how long have you had your fistulae?